caa a22 4500 445304782 CHVBK 20180317142609.0 cr unu---uuuuu 170323e20111201xx s 000 0 eng 10.1007/s10880-011-9254-3 doi (NATIONALLICENCE)springer-10.1007/s10880-011-9254-3 Health-Related Quality of Life and Adaptive Behaviors of Adolescents with Sickle Cell Disease: Stress Processing Moderators [Elektronische Daten] [Maisa Ziadni, Chavis Patterson, Elizabeth Pulgarón, M. Robinson, Lamia Barakat] The objective of this study was to examine resilience among adolescents with sickle cell disease (SCD), focusing on the interaction of health-related quality of life with stress processing to explain adaptive behavior. Forty-four adolescents with SCD completed paper-and-pencil measures of health-related quality of life, appraisals (hope), pain coping strategies (e.g. adherence), and adaptive behavior. Self-reported health-related quality of life was significantly associated with adaptive behavior, as was adherence. Findings for moderation were mixed. Pain coping strategies moderated the association of health-related quality of life with adaptive behavior such that at lower levels of Coping Strategies Questionnaire (CSQ) Adherence, better quality of life was associated with higher adaptive behavior. Similarly, at higher levels of hope, better quality of life was associated with higher adaptive behavior, and poorer quality of life was associated with lower adaptive behavior. Adolescents with SCD showed resilience, particularly in terms of personal adjustment, that may be explained by their appraisals and stress processing strategies. Interventions to support an optimistic or hopeful outlook and improve adherence to recommendations for medical management of sickle cell pain may result in improved resilience/adaptive behavior. Springer Science+Business Media, LLC, 2011 Sickle cell disease nationallicence Adolescents nationallicence Adaptive behavior nationallicence Stress processing nationallicence Coping strategies nationallicence Ziadni Maisa Division of Oncology, The Children's Hospital of Philadelphia, 3501 Civic Center Blvd., 10303 CTRB, 19104, Philadelphia, PA, USA aut Patterson Chavis Division of Oncology, The Children's Hospital of Philadelphia, 3501 Civic Center Blvd., 10303 CTRB, 19104, Philadelphia, PA, USA aut Pulgarón Elizabeth University of Miami Miller School of Medicine, Miami, FL, USA aut Robinson M. St. Christopher's Hospital for Children, Philadelphia, PA, USA aut Barakat Lamia Division of Oncology, The Children's Hospital of Philadelphia, 3501 Civic Center Blvd., 10303 CTRB, 19104, Philadelphia, PA, USA aut Journal of Clinical Psychology in Medical Settings Springer US; http://www.springer-ny.com 18/4(2011-12-01), 335-344 1068-9583 18:4<335 2011 18 10880 https://doi.org/10.1007/s10880-011-9254-3 text/html Onlinezugriff via DOI 1 research-article jats NATIONALLICENCE 856 40 https://doi.org/10.1007/s10880-011-9254-3 text/html Onlinezugriff via DOI NATIONALLICENCE 700 1- Ziadni Maisa Division of Oncology, The Children's Hospital of Philadelphia, 3501 Civic Center Blvd., 10303 CTRB, 19104, Philadelphia, PA, USA aut NATIONALLICENCE 700 1- Patterson Chavis Division of Oncology, The Children's Hospital of Philadelphia, 3501 Civic Center Blvd., 10303 CTRB, 19104, Philadelphia, PA, USA aut NATIONALLICENCE 700 1- Pulgarón Elizabeth University of Miami Miller School of Medicine, Miami, FL, USA aut NATIONALLICENCE 700 1- Robinson M. St. Christopher's Hospital for Children, Philadelphia, PA, USA aut NATIONALLICENCE 700 1- Barakat Lamia Division of Oncology, The Children's Hospital of Philadelphia, 3501 Civic Center Blvd., 10303 CTRB, 19104, Philadelphia, PA, USA aut NATIONALLICENCE 773 0- Journal of Clinical Psychology in Medical Settings Springer US; http://www.springer-ny.com 18/4(2011-12-01), 335-344 1068-9583 18:4<335 2011 18 10880 Metadata rights reserved Springer special CC-BY-NC licence nationallicence BK010053 XK010053 XK010000 NATIONALLICENCE NATIONALLICENCE NL-springer