caa a22 4500 445331097 CHVBK 20180317142737.0 cr unu---uuuuu 170323e20111201xx s 000 0 eng 10.1007/s10689-011-9460-z doi (NATIONALLICENCE)springer-10.1007/s10689-011-9460-z Communication of BRCA1 and BRCA2 genetic test results to health care providers following genetic testing at a tertiary care center [Elektronische Daten] [K. Ready, B. Arun, K. Schmeler, A. Uyei, J. Litton, K. Lu, C. Sun, S. Peterson] Individuals at high risk for hereditary cancers often receive genetic counseling and testing at tertiary care centers; however, they may receive care for long-term management of their cancer risk in community settings. Communication of genetic test results to health care providers outside of tertiary care settings can facilitate the long-term management of high risk individuals. This study assessed women's communication of BRCA1/BRCA2 genetic test results to health care providers outside of tertiary care settings (termed "outside” health care providers, or OHCPs) and women's perceptions regarding communication of results. Women (n=312) who underwent BRCA1/BRCA2 genetic counseling and testing completed a questionnaire assessing whether or not they shared test results with OHCPs and perceptions regarding the communication of test results to OHCPs. Most (72%) shared genetic test results with OHCPs. Women with no personal history of cancer were more likely to have shared results compared to women with a personal history of cancer. Mutation status did not significantly predict sharing of genetic information. Most reported positive perceptions regarding the disclosure of genetic test results to OHCPs. The majority did not report any concerns about potential insurance discrimination (88%) and indicated that OHCPs were able to appropriately address their questions (81%). Although most women shared their genetic test results with OHCPs, those with a personal history of cancer may need further encouragement to share this information. Tertiary care centers should facilitate outreach and education with OHCPs in order to assure appropriate long-term cancer risk management for high risk populations. Springer Science+Business Media B.V., 2011 BRCA1 nationallicence BRCA2 nationallicence Communication nationallicence Health care providers nationallicence Genetic testing nationallicence Test results nationallicence Ready K. Department of Breast Medical Oncology, University of Texas MD Anderson Cancer Center, Houston, TX, USA aut Arun B. Department of Breast Medical Oncology, University of Texas MD Anderson Cancer Center, Houston, TX, USA aut Schmeler K. Department of Gynecologic Oncology, University of Texas MD Anderson Cancer Center, Houston, TX, USA aut Uyei A. Southbay Oncology Hematology Partners, Campbell, CA, USA aut Litton J. Department of Breast Medical Oncology, University of Texas MD Anderson Cancer Center, Houston, TX, USA aut Lu K. Department of Gynecologic Oncology, University of Texas MD Anderson Cancer Center, Houston, TX, USA aut Sun C. Department of Gynecologic Oncology, University of Texas MD Anderson Cancer Center, Houston, TX, USA aut Peterson S. Department of Behavioral Science, The University of Texas MD Anderson Cancer Center, Unit 1330, P.O. Box 301439, 77230, Houston, TX, USA aut Familial Cancer Springer Netherlands 10/4(2011-12-01), 673-679 1389-9600 10:4<673 2011 10 10689 https://doi.org/10.1007/s10689-011-9460-z text/html Onlinezugriff via DOI 1 research-article jats NATIONALLICENCE 856 40 https://doi.org/10.1007/s10689-011-9460-z text/html Onlinezugriff via DOI NATIONALLICENCE 700 1- Ready K. Department of Breast Medical Oncology, University of Texas MD Anderson Cancer Center, Houston, TX, USA aut NATIONALLICENCE 700 1- Arun B. Department of Breast Medical Oncology, University of Texas MD Anderson Cancer Center, Houston, TX, USA aut NATIONALLICENCE 700 1- Schmeler K. Department of Gynecologic Oncology, University of Texas MD Anderson Cancer Center, Houston, TX, USA aut NATIONALLICENCE 700 1- Uyei A. Southbay Oncology Hematology Partners, Campbell, CA, USA aut NATIONALLICENCE 700 1- Litton J. Department of Breast Medical Oncology, University of Texas MD Anderson Cancer Center, Houston, TX, USA aut NATIONALLICENCE 700 1- Lu K. Department of Gynecologic Oncology, University of Texas MD Anderson Cancer Center, Houston, TX, USA aut NATIONALLICENCE 700 1- Sun C. Department of Gynecologic Oncology, University of Texas MD Anderson Cancer Center, Houston, TX, USA aut NATIONALLICENCE 700 1- Peterson S. Department of Behavioral Science, The University of Texas MD Anderson Cancer Center, Unit 1330, P.O. Box 301439, 77230, Houston, TX, USA aut NATIONALLICENCE 773 0- Familial Cancer Springer Netherlands 10/4(2011-12-01), 673-679 1389-9600 10:4<673 2011 10 10689 Metadata rights reserved Springer special CC-BY-NC licence nationallicence BK010053 XK010053 XK010000 NATIONALLICENCE NATIONALLICENCE NL-springer