caa a22 4500 445355352 CHVBK 20180317142858.0 cr unu---uuuuu 170323e20110201xx s 000 0 eng 10.1007/s10072-010-0435-x doi (NATIONALLICENCE)springer-10.1007/s10072-010-0435-x How parkinsonism influences life: the patients' point of view [Elektronische Daten] [E. Martignoni, Antonietta Citterio, R. Zangaglia, L. Godi, C. Pacchetti, C. Fundarò, E. Corengia, G. Bono, G. Nappi] To explore the experience of living with parkinsonism, a survey form was sent to the members of a patients' association; 1,256 forms were analysed. The mean age was 65.75±9.29years; 64.4% males. A family history was reported by 19.2%. Basic abilities were preserved in 75% of the responders; the ability to do indoor and outdoor activities was preserved in 42 and 28%, respectively. 70% of the responders liked to meet other people and about 50% liked discussing their condition.80.3% of the responders lived with partner, while 7.8% did not live with family. Of the patients' partners, 38.9% took drugs, and 9.4% themselves needed assistance. Care programmes for parkinsonians should take into account the disease duration, the degree of disability, the presence of caregiver/s, and the level of caregiver burden; but it should also be appreciated that social habits, need of help, and severity of symptoms influence disability. Springer-Verlag, 2010 Parkinsonism nationallicence Quality of life nationallicence Familiarity nationallicence Work nationallicence Social habits nationallicence Unmet needs nationallicence Martignoni E. Unit of Neurorehabilitation and Movement Disorders, IRCCS "Salvatore Maugeri” Foundation, Scientific Institute of Tradate, 21049, Tradate (VA), Italy aut Citterio Antonietta IRCCS "C. Mondino National Institute of Neurology Foundation”, Via Mondino 2, 27100, Pavia, Italy aut Zangaglia R. IRCCS "C. Mondino National Institute of Neurology Foundation”, Via Mondino 2, 27100, Pavia, Italy aut Godi L. Unit of Neurology, Novara Local Health Authority, 28100, Novara, Italy aut Pacchetti C. IRCCS "C. Mondino National Institute of Neurology Foundation”, Via Mondino 2, 27100, Pavia, Italy aut Fundarò C. Department of Clinical Neurophysiology, IRCCS "Salvatore Maugeri” Foundation, Scientific Institute of Montescano, 27040, Montescano (PV), Italy aut Corengia E. Neurology Unit, Valduce Hospital, 22100, Como, Italy aut Bono G. Neurological Clinic, University of Insubria, 21100, Varese, Italy aut Nappi G. IRCCS "C. Mondino National Institute of Neurology Foundation”, Via Mondino 2, 27100, Pavia, Italy aut Neurological Sciences Springer Milan 32/1(2011-02-01), 125-131 1590-1874 32:1<125 2011 32 10072 https://doi.org/10.1007/s10072-010-0435-x text/html Onlinezugriff via DOI 1 research-article jats NATIONALLICENCE 856 40 https://doi.org/10.1007/s10072-010-0435-x text/html Onlinezugriff via DOI NATIONALLICENCE 700 1- Martignoni E. Unit of Neurorehabilitation and Movement Disorders, IRCCS "Salvatore Maugeri” Foundation, Scientific Institute of Tradate, 21049, Tradate (VA), Italy aut NATIONALLICENCE 700 1- Citterio Antonietta IRCCS "C. Mondino National Institute of Neurology Foundation”, Via Mondino 2, 27100, Pavia, Italy aut NATIONALLICENCE 700 1- Zangaglia R. IRCCS "C. Mondino National Institute of Neurology Foundation”, Via Mondino 2, 27100, Pavia, Italy aut NATIONALLICENCE 700 1- Godi L. Unit of Neurology, Novara Local Health Authority, 28100, Novara, Italy aut NATIONALLICENCE 700 1- Pacchetti C. IRCCS "C. Mondino National Institute of Neurology Foundation”, Via Mondino 2, 27100, Pavia, Italy aut NATIONALLICENCE 700 1- Fundarò C. Department of Clinical Neurophysiology, IRCCS "Salvatore Maugeri” Foundation, Scientific Institute of Montescano, 27040, Montescano (PV), Italy aut NATIONALLICENCE 700 1- Corengia E. Neurology Unit, Valduce Hospital, 22100, Como, Italy aut NATIONALLICENCE 700 1- Bono G. Neurological Clinic, University of Insubria, 21100, Varese, Italy aut NATIONALLICENCE 700 1- Nappi G. IRCCS "C. Mondino National Institute of Neurology Foundation”, Via Mondino 2, 27100, Pavia, Italy aut NATIONALLICENCE 773 0- Neurological Sciences Springer Milan 32/1(2011-02-01), 125-131 1590-1874 32:1<125 2011 32 10072 Metadata rights reserved Springer special CC-BY-NC licence nationallicence BK010053 XK010053 XK010000 NATIONALLICENCE NATIONALLICENCE NL-springer