caa a22 4500 445356898 CHVBK 20180317142903.0 cr unu---uuuuu 170323e20111101xx s 000 0 eng 10.1007/s10072-011-0792-0 doi (NATIONALLICENCE)springer-10.1007/s10072-011-0792-0 Privacy-solidarity conflict: the communication with the support group [Elektronische Daten] [C. Finocchiaro, A. Botturi, E. Lamperti, S. Gauri, A. Petruzzi, G. Simonetti, L. Sarno, A. Salmaggi] Actually guidelines require that patient must be informed about his condition so that he can choose the persons he wants to share these information with. Nonetheless, the caregiver usually gets an intermediary role in doctor-patient communication thus becoming the doctor's main conversation partner and claiming to be given more information than the patient himself. A more complex situation is about brain tumours patients sometimes affected by cognitive deficiencies, compromising their comprehension skills or their capability of keeping the information they are being given. A preliminary study allowed to submit separately to brain tumour patients and their family members a semi-structured interview. Although doctors communicate diagnosis and therapeutic plans, patients and their family members often do not seem to remember the information they are given. An important percentage of patients and their carers cannot tell correctly what they was said by the doctors. Only a minor percentage of patients do not want to know all details of their disease. Instead, most of the family members, would rather their beloved were given just partial information on their conditions or even not given information at all. Communication with patients and their carers requires careful re-negotiation in a multiple time-points, rather than a one-off communication episode. Springer-Verlag, 2011 Brain tumours nationallicence Support group nationallicence Doctor-patient communication nationallicence Caregivers nationallicence Privacy-solidarity conflict nationallicence Finocchiaro C. Department of Neurooncology, Fondazione IRCCS Istituto Neurologico C. Besta, Neuro-Oncology Unit, Via Celoria, 11, 20133, Milan, Italy aut Botturi A. Department of Neurooncology, Fondazione IRCCS Istituto Neurologico C. Besta, Neuro-Oncology Unit, Via Celoria, 11, 20133, Milan, Italy aut Lamperti E. Department of Neurooncology, Fondazione IRCCS Istituto Neurologico C. Besta, Neuro-Oncology Unit, Via Celoria, 11, 20133, Milan, Italy aut Gauri S. London School of Publishing, London, UK aut Petruzzi A. Department of Neurooncology, Fondazione IRCCS Istituto Neurologico C. Besta, Neuro-Oncology Unit, Via Celoria, 11, 20133, Milan, Italy aut Simonetti G. Department of Neurooncology, Fondazione IRCCS Istituto Neurologico C. Besta, Neuro-Oncology Unit, Via Celoria, 11, 20133, Milan, Italy aut Sarno L. Vita-Salute San Raffaele University, Milan, Italy aut Salmaggi A. Department of Neurooncology, Fondazione IRCCS Istituto Neurologico C. Besta, Neuro-Oncology Unit, Via Celoria, 11, 20133, Milan, Italy aut Neurological Sciences Springer Milan 32(2011-11-01), 225-227 1590-1874 32<225 2011 32 10072 https://doi.org/10.1007/s10072-011-0792-0 text/html Onlinezugriff via DOI 1 research-article jats NATIONALLICENCE 856 40 https://doi.org/10.1007/s10072-011-0792-0 text/html Onlinezugriff via DOI NATIONALLICENCE 700 1- Finocchiaro C. Department of Neurooncology, Fondazione IRCCS Istituto Neurologico C. Besta, Neuro-Oncology Unit, Via Celoria, 11, 20133, Milan, Italy aut NATIONALLICENCE 700 1- Botturi A. Department of Neurooncology, Fondazione IRCCS Istituto Neurologico C. Besta, Neuro-Oncology Unit, Via Celoria, 11, 20133, Milan, Italy aut NATIONALLICENCE 700 1- Lamperti E. Department of Neurooncology, Fondazione IRCCS Istituto Neurologico C. Besta, Neuro-Oncology Unit, Via Celoria, 11, 20133, Milan, Italy aut NATIONALLICENCE 700 1- Gauri S. London School of Publishing, London, UK aut NATIONALLICENCE 700 1- Petruzzi A. Department of Neurooncology, Fondazione IRCCS Istituto Neurologico C. Besta, Neuro-Oncology Unit, Via Celoria, 11, 20133, Milan, Italy aut NATIONALLICENCE 700 1- Simonetti G. Department of Neurooncology, Fondazione IRCCS Istituto Neurologico C. Besta, Neuro-Oncology Unit, Via Celoria, 11, 20133, Milan, Italy aut NATIONALLICENCE 700 1- Sarno L. Vita-Salute San Raffaele University, Milan, Italy aut NATIONALLICENCE 700 1- Salmaggi A. Department of Neurooncology, Fondazione IRCCS Istituto Neurologico C. Besta, Neuro-Oncology Unit, Via Celoria, 11, 20133, Milan, Italy aut NATIONALLICENCE 773 0- Neurological Sciences Springer Milan 32(2011-11-01), 225-227 1590-1874 32<225 2011 32 10072 Metadata rights reserved Springer special CC-BY-NC licence nationallicence BK010053 XK010053 XK010000 NATIONALLICENCE NATIONALLICENCE NL-springer