caa a22 4500 445357851 CHVBK 20180317142906.0 cr unu---uuuuu 170323e20111201xx s 000 0 eng 10.1007/s10072-011-0725-y doi (NATIONALLICENCE)springer-10.1007/s10072-011-0725-y Chiari and Syringomyelia Consortium: a model of multidisciplinary and sharing path for Rare Diseases [Elektronische Daten] [Palma Ciaramitaro, Simone Baldovino, Dario Roccatello, Edo Bottacchi, Giuliano Faccani] Piemonte and Valle d'Aosta Interregional Network for Rare Diseases (RD) is a model of "diffuse” network; it involves all the health system specialists devoted to the diagnosis, the therapy and the follow-up of a RD. The Consortium is a multidisciplinary team operating throughout the Region composed of volunteer Physicians and Biologists that promotes periodical meetings to develop shared protocols. In 2008 the Specialist-Technical Committee for the Interregional RD Network approved the set up of the "Chiari and Syringomyelia Consortium” (CSC) with two specific objectives: to identify the shared diagnostic criteria and to develop the interdisciplinary diagnostic-therapeutic-assistance path (DTAP) to be used interregionally. Other objectives are: to define the prevalence of the pathologies (both symptomatic and asymptomatic, both in adults and children) and to improve collaboration between the patient Associations and the Physicians. Springer-Verlag, 2011 Chiari malformation nationallicence Syringomyelia nationallicence Rare diseases nationallicence Diagnostic-therapeutic-assistance path nationallicence Ciaramitaro Palma Clinical Neurophysiology Unit, AOU CTO, Turin, Italy aut Baldovino Simone Centro di Ricerche di Immunopatologia e Documentazione su Malattie Rare, Struttura Complessa a Direzione Universitaria di Immunologia Clinica Ospedale S.G. Bosco, Turin, Italy aut Roccatello Dario Centro di Ricerche di Immunopatologia e Documentazione su Malattie Rare, Struttura Complessa a Direzione Universitaria di Immunologia Clinica Ospedale S.G. Bosco, Turin, Italy aut Bottacchi Edo Department of Neurology, Ospedale Regionale, Aosta, Italy aut Faccani Giuliano Neurosurgery Division, AOU CTO, Turin, Italy aut Neurological Sciences Springer Milan 32(2011-12-01), 271-273 1590-1874 32<271 2011 32 10072 https://doi.org/10.1007/s10072-011-0725-y text/html Onlinezugriff via DOI 1 research-article jats NATIONALLICENCE 856 40 https://doi.org/10.1007/s10072-011-0725-y text/html Onlinezugriff via DOI NATIONALLICENCE 700 1- Ciaramitaro Palma Clinical Neurophysiology Unit, AOU CTO, Turin, Italy aut NATIONALLICENCE 700 1- Baldovino Simone Centro di Ricerche di Immunopatologia e Documentazione su Malattie Rare, Struttura Complessa a Direzione Universitaria di Immunologia Clinica Ospedale S.G. Bosco, Turin, Italy aut NATIONALLICENCE 700 1- Roccatello Dario Centro di Ricerche di Immunopatologia e Documentazione su Malattie Rare, Struttura Complessa a Direzione Universitaria di Immunologia Clinica Ospedale S.G. Bosco, Turin, Italy aut NATIONALLICENCE 700 1- Bottacchi Edo Department of Neurology, Ospedale Regionale, Aosta, Italy aut NATIONALLICENCE 700 1- Faccani Giuliano Neurosurgery Division, AOU CTO, Turin, Italy aut NATIONALLICENCE 773 0- Neurological Sciences Springer Milan 32(2011-12-01), 271-273 1590-1874 32<271 2011 32 10072 Metadata rights reserved Springer special CC-BY-NC licence nationallicence BK010053 XK010053 XK010000 NATIONALLICENCE NATIONALLICENCE NL-springer