caa a22 4500 44535822X CHVBK 20180317142907.0 cr unu---uuuuu 170323e20110401xx s 000 0 eng 10.1007/s10072-010-0365-7 doi (NATIONALLICENCE)springer-10.1007/s10072-010-0365-7 Sudden unexpected death in epilepsy (SUDEP): a pilot study on truth telling among Italian epileptologists [Elektronische Daten] [Elena Vegni, Daniela Leone, Maria Canevini, Paolo Tinuper, Egidio Moja] Sudden unexpected death in epilepsy (SUDEP) is a syndrome where a person with epilepsy dies suddenly and no other cause of death is found. The question of informing patients and their families about SUDEP remains a problematic issue. The aim of this study is to explore whether Italian physicians interested in epilepsy believe that they should discuss SUDEP with patients and/or their families. A total of 315 questionnaire were distributed, of which 195 (61.9%) were returned. Seventeen respondents (8.76%) discussed SUDEP with all of their patients, 38 (19.59%) with the majority of patients, 120 (61.85%) with very few of their patients and 15 (7.73%) with none of their patients. No statistical differences among groups were found for gender, professional age (≤10years; ≥11years≤20years; ≥21years≤30years; ≥31years) and medical specialty (neurologists vs. others). Open questions offered insights into the physicians' problem of managing the negative emotions of patients/family and why the physicians decided to give information. Springer-Verlag, 2010 Epilepsy nationallicence SUDEP nationallicence Truth telling nationallicence Questionnaires nationallicence Vegni Elena School of Medicine, University of Milan, Milan, Italy aut Leone Daniela Centro CURA, University of Milan, Milan, Italy aut Canevini Maria Epilepsy Centre, School of Medicine, San Paolo University Hospital, University of Milan, Milan, Italy aut Tinuper Paolo Department of Neurological Sciences, University of Bologna, Bologna, Italy aut Moja Egidio School of Medicine, University of Milan, Milan, Italy aut Neurological Sciences Springer Milan 32/2(2011-04-01), 331-335 1590-1874 32:2<331 2011 32 10072 https://doi.org/10.1007/s10072-010-0365-7 text/html Onlinezugriff via DOI 1 research-article jats NATIONALLICENCE 856 40 https://doi.org/10.1007/s10072-010-0365-7 text/html Onlinezugriff via DOI NATIONALLICENCE 700 1- Vegni Elena School of Medicine, University of Milan, Milan, Italy aut NATIONALLICENCE 700 1- Leone Daniela Centro CURA, University of Milan, Milan, Italy aut NATIONALLICENCE 700 1- Canevini Maria Epilepsy Centre, School of Medicine, San Paolo University Hospital, University of Milan, Milan, Italy aut NATIONALLICENCE 700 1- Tinuper Paolo Department of Neurological Sciences, University of Bologna, Bologna, Italy aut NATIONALLICENCE 700 1- Moja Egidio School of Medicine, University of Milan, Milan, Italy aut NATIONALLICENCE 773 0- Neurological Sciences Springer Milan 32/2(2011-04-01), 331-335 1590-1874 32:2<331 2011 32 10072 Metadata rights reserved Springer special CC-BY-NC licence nationallicence BK010053 XK010053 XK010000 NATIONALLICENCE NATIONALLICENCE NL-springer