caa a22 4500 445825618 CHVBK 20180317145258.0 cr unu---uuuuu 170323e20111201xx s 000 0 eng 10.1007/s00246-011-0039-0 doi (NATIONALLICENCE)springer-10.1007/s00246-011-0039-0 Quality of Life Experienced by Adolescents and Young Adults With Congenital Heart Disease [Elektronische Daten] [Flávio Teixeira, Rosália Coelho, Cidália Proença, Ana Silva, Daniela Vieira, Cláudia Vaz, Cláudia Moura, Victor Viana, José Areias, Maria Areias] This study aimed to assess the quality of life (QOL) experienced by adolescents and young adults with congenital heart disease (CHD) and to determine which factors negatively affect adjustment and which factors increase resilience. The participants in the study were 74 patients with CHD (41 males and 33 females) ranging in age from 12 to 26years (mean age, 18.76±3.86years). Demographic information and a complete clinical history were obtained. The participants were interviewed regarding topics such as social support, family educational style, self-image, and physical limitations. They responded to questions in a standardized psychiatric interview (SADS-L) and completed a self-report questionnaire (WHOQOL-BREF) for assessment of QOL. Compared with the Portuguese population as a whole, the study patients had better QOL, especially with regard to the environmental dimension (t=3.754; P=0.000) and social relationships (t=2.333; P=0.022). Patients who had undergone surgery experienced poorer QOL in the physical dimension (t=−1.989; P=0.050), in social relationships (t=−2.012; P=0.048) and overall (Mann-Whitney U=563.000; P=0.037). Social support played a positive role in the QOL of the patients, both in the physical dimension (t=3.287; P=0.002) and in social relationships (t=3.669; P=0.000). A higher school achievement also was associated with higher levels of QOL overall (Mann-Whitney U=457.000; P=0.046) as well as in the physical (t=2.045; P=0.045) and environmental (t=2.413; P=0.018) dimensions. Physical limitations had a detrimental impact on general QOL (Mann-Whitney U=947.500; P=0.001) and on the physical (t=−2.910; p=0.005) and psychological (t=−2,046; P=0.044) dimensions. Patients with CHD tended to perceive QOL as better when their social networks were supportive. Springer Science+Business Media, LLC, 2011 Congenital heart disease nationallicence Quality of life nationallicence Social support nationallicence Teixeira Flávio Department of Psychology, Instituto Superior de Ciências da Saúde do Norte (CESPU), Rua Central de Gandra 1317, 585-116, Gandra PRD, Portugal aut Coelho Rosália Department of Psychology, Instituto Superior de Ciências da Saúde do Norte (CESPU), Rua Central de Gandra 1317, 585-116, Gandra PRD, Portugal aut Proença Cidália Department of Psychology, Instituto Superior de Ciências da Saúde do Norte (CESPU), Rua Central de Gandra 1317, 585-116, Gandra PRD, Portugal aut Silva Ana Department of Psychology, Instituto Superior de Ciências da Saúde do Norte (CESPU), Rua Central de Gandra 1317, 585-116, Gandra PRD, Portugal aut Vieira Daniela Department of Psychology, Instituto Superior de Ciências da Saúde do Norte (CESPU), Rua Central de Gandra 1317, 585-116, Gandra PRD, Portugal aut Vaz Cláudia Department of Psychology, Instituto Superior de Ciências da Saúde do Norte (CESPU), Rua Central de Gandra 1317, 585-116, Gandra PRD, Portugal aut Moura Cláudia Department of Paediatrics (Cardiology), Hospital São João Porto Medical School, University of Porto, Porto, Portugal aut Viana Victor Department of Paediatrics (Cardiology), Hospital São João Porto Medical School, University of Porto, Porto, Portugal aut Areias José Department of Paediatrics (Cardiology), Hospital São João Porto Medical School, University of Porto, Porto, Portugal aut Areias Maria Department of Psychology, Instituto Superior de Ciências da Saúde do Norte (CESPU), Rua Central de Gandra 1317, 585-116, Gandra PRD, Portugal aut Pediatric Cardiology Springer-Verlag 32/8(2011-12-01), 1132-1138 0172-0643 32:8<1132 2011 32 246 https://doi.org/10.1007/s00246-011-0039-0 text/html Onlinezugriff via DOI 1 research-article jats NATIONALLICENCE 856 40 https://doi.org/10.1007/s00246-011-0039-0 text/html Onlinezugriff via DOI NATIONALLICENCE 700 1- Teixeira Flávio Department of Psychology, Instituto Superior de Ciências da Saúde do Norte (CESPU), Rua Central de Gandra 1317, 585-116, Gandra PRD, Portugal aut NATIONALLICENCE 700 1- Coelho Rosália Department of Psychology, Instituto Superior de Ciências da Saúde do Norte (CESPU), Rua Central de Gandra 1317, 585-116, Gandra PRD, Portugal aut NATIONALLICENCE 700 1- Proença Cidália Department of Psychology, Instituto Superior de Ciências da Saúde do Norte (CESPU), Rua Central de Gandra 1317, 585-116, Gandra PRD, Portugal aut NATIONALLICENCE 700 1- Silva Ana Department of Psychology, Instituto Superior de Ciências da Saúde do Norte (CESPU), Rua Central de Gandra 1317, 585-116, Gandra PRD, Portugal aut NATIONALLICENCE 700 1- Vieira Daniela Department of Psychology, Instituto Superior de Ciências da Saúde do Norte (CESPU), Rua Central de Gandra 1317, 585-116, Gandra PRD, Portugal aut NATIONALLICENCE 700 1- Vaz Cláudia Department of Psychology, Instituto Superior de Ciências da Saúde do Norte (CESPU), Rua Central de Gandra 1317, 585-116, Gandra PRD, Portugal aut NATIONALLICENCE 700 1- Moura Cláudia Department of Paediatrics (Cardiology), Hospital São João Porto Medical School, University of Porto, Porto, Portugal aut NATIONALLICENCE 700 1- Viana Victor Department of Paediatrics (Cardiology), Hospital São João Porto Medical School, University of Porto, Porto, Portugal aut NATIONALLICENCE 700 1- Areias José Department of Paediatrics (Cardiology), Hospital São João Porto Medical School, University of Porto, Porto, Portugal aut NATIONALLICENCE 700 1- Areias Maria Department of Psychology, Instituto Superior de Ciências da Saúde do Norte (CESPU), Rua Central de Gandra 1317, 585-116, Gandra PRD, Portugal aut NATIONALLICENCE 773 0- Pediatric Cardiology Springer-Verlag 32/8(2011-12-01), 1132-1138 0172-0643 32:8<1132 2011 32 246 Metadata rights reserved Springer special CC-BY-NC licence nationallicence BK010053 XK010053 XK010000 NATIONALLICENCE NATIONALLICENCE NL-springer