caa a22 4500 445860766 CHVBK 20180317145442.0 cr unu---uuuuu 170323e20110901xx s 000 0 eng 10.1007/s00439-011-1061-2 doi (NATIONALLICENCE)springer-10.1007/s00439-011-1061-2 Biobanking and public health: is a human rights approach the tie that binds? [Elektronische Daten] [Eric Meslin, Ibrahim Garba] Ethical principles guiding public health and genomic medicine are often at odds: whereas public health practice adopts collectivist principles that emphasize population-based benefits, recent advances in genomic and personalized medicine are grounded in an individualist ethic that privileges informed consent, and the balancing of individual risk and benefit. Indeed, the attraction of personalized medicine is the promise it holds out to help individuals get the "right medicine for the right problem at the right time.” Research biobanks are an effective tool in the genomic medicine toolbox. Biobanking in public health presents a unique case study to unpack some of these issues in more detail. For example, there is a long history of using banked tissue obtained under clinical diagnostic conditions for later public health uses. But despite the collectivist approach of public health, the principles applied to the ethical challenges of biobanking (e.g. informed consent, autonomy, privacy) remain individualist. We demonstrate the value of using human rights as a public health ethics framework to address this tension in biobanking by applying it to two illustrative cases. Springer-Verlag, 2011 Meslin Eric Indiana University Center for Bioethics, 410 W 10th Street, Suite 3100, 46202, Indianapolis, IN, USA aut Garba Ibrahim Indiana University Center for Bioethics, 410 W 10th Street, Suite 3100, 46202, Indianapolis, IN, USA aut Human Genetics Springer-Verlag 130/3(2011-09-01), 451-463 0340-6717 130:3<451 2011 130 439 https://doi.org/10.1007/s00439-011-1061-2 text/html Onlinezugriff via DOI 1 research-article jats NATIONALLICENCE 856 40 https://doi.org/10.1007/s00439-011-1061-2 text/html Onlinezugriff via DOI NATIONALLICENCE 700 1- Meslin Eric Indiana University Center for Bioethics, 410 W 10th Street, Suite 3100, 46202, Indianapolis, IN, USA aut NATIONALLICENCE 700 1- Garba Ibrahim Indiana University Center for Bioethics, 410 W 10th Street, Suite 3100, 46202, Indianapolis, IN, USA aut NATIONALLICENCE 773 0- Human Genetics Springer-Verlag 130/3(2011-09-01), 451-463 0340-6717 130:3<451 2011 130 439 Metadata rights reserved Springer special CC-BY-NC licence nationallicence BK010053 XK010053 XK010000 NATIONALLICENCE NATIONALLICENCE NL-springer