caa a22 4500 445860790 CHVBK 20180317145442.0 cr unu---uuuuu 170323e20110901xx s 000 0 eng 10.1007/s00439-011-1065-y doi (NATIONALLICENCE)springer-10.1007/s00439-011-1065-y Biobanks and the phantom public [Elektronische Daten] [Herbert Gottweis, Haidan Chen, Johannes Starkbaum] This paper surveys the current state of knowledge about the relationship between different national publics and biobanks, how different publics perceive biobanks, and which issues are identified as important by various stakeholders. We discuss existing studies and emerging governance strategies dealing with the biobank-publics interface and argue that the search for phantom (biobank) public(s) is on, but still much needs to be done. We argue that the existing data originate in a relatively few regions, among them Northern Europe, the United Kingdom, and in certain U.S. states and are often based on survey research with small samples and short questionnaires. Combined usage of qualitative and quantitative methodology in studies is still rare though of great importance in order to investigate distributions of public opinion and also to be able to explain these patterns. Many important questions in the relationship between publics and biobanks are unexplored, or the existing data are inconsistent. Springer-Verlag, 2011 Gottweis Herbert University of Vienna, Vienna, Austria aut Chen Haidan Center for the Study of Language and Cognition, Zhejiang University, Hangzhou, China aut Starkbaum Johannes University of Vienna, Vienna, Austria aut Human Genetics Springer-Verlag 130/3(2011-09-01), 433-440 0340-6717 130:3<433 2011 130 439 https://doi.org/10.1007/s00439-011-1065-y text/html Onlinezugriff via DOI 1 research-article jats NATIONALLICENCE 856 40 https://doi.org/10.1007/s00439-011-1065-y text/html Onlinezugriff via DOI NATIONALLICENCE 700 1- Gottweis Herbert University of Vienna, Vienna, Austria aut NATIONALLICENCE 700 1- Chen Haidan Center for the Study of Language and Cognition, Zhejiang University, Hangzhou, China aut NATIONALLICENCE 700 1- Starkbaum Johannes University of Vienna, Vienna, Austria aut NATIONALLICENCE 773 0- Human Genetics Springer-Verlag 130/3(2011-09-01), 433-440 0340-6717 130:3<433 2011 130 439 Metadata rights reserved Springer special CC-BY-NC licence nationallicence BK010053 XK010053 XK010000 NATIONALLICENCE NATIONALLICENCE NL-springer