caa a22 4500 463249747 CHVBK 20180405153336.0 cr unu---uuuuu 170326e20071001xx s 000 0 eng 10.1007/s10803-006-0293-9 doi (NATIONALLICENCE)springer-10.1007/s10803-006-0293-9 Development of a Video-based Evaluation Tool in Rett Syndrome [Elektronische Daten] [S. Fyfe, J. Downs, O. McIlroy, B. Burford, J. Lister, S. Reilly, C. Laurvick, C. Philippe, M. Msall, W. Kaufmann, C. Ellaway, H. Leonard] This paper describes the development of a video-based evaluation tool for use in Rett syndrome (RTT). Components include a parent-report checklist, and video filming and coding protocols that contain items on eating, drinking, communication, hand function and movements, personal care and mobility. Ninety-seven of the 169 families who initially agreed to participate returned a videotape within 8 months of the first request. Subjects whose videos were returned had a similar age profile to those who did not provide a video but were more likely to have classical than atypical RTT. Evidence of the content and social validity and inter-rater reliability on 11 videos is provided. Video may provide detailed, objective assessment of function and behaviour in RTT. Springer Science+Business Media, LLC, 2006 Rett syndrome nationallicence Video analysis nationallicence Functional ability nationallicence Movement disorder nationallicence Behavioural phenotype nationallicence Participatory research nationallicence Fyfe S. Curtin University of Technology, Perth, WA, Australia aut Downs J. Telethon Institute for Child Health Research, Centre for Child Health Research, The University of Western Australia, P.O. Box 855, 6872, West Perth, Australia aut McIlroy O. Telethon Institute for Child Health Research, Centre for Child Health Research, The University of Western Australia, P.O. Box 855, 6872, West Perth, Australia aut Burford B. Section of Psychological Medicine, University of Glasgow, Glasgow, UK aut Lister J. Curtin University of Technology, Perth, WA, Australia aut Reilly S. Faculty of Health Sciences, Murdoch Children's Research Institute, La Trobe University, Melbourne, VIC, Australia aut Laurvick C. Telethon Institute for Child Health Research, Centre for Child Health Research, The University of Western Australia, P.O. Box 855, 6872, West Perth, Australia aut Philippe C. Telethon Institute for Child Health Research, Centre for Child Health Research, The University of Western Australia, P.O. Box 855, 6872, West Perth, Australia aut Msall M. Pritzker School of Medicine, University of Chicago, Chicago, IL, USA aut Kaufmann W. Center for Genetic Disorders of Cognition and Behavior, Kennedy Krieger Institute, Johns Hopkins University School of Medicine, Baltimore, MD, USA aut Ellaway C. Discipline of Paediatrics and Child Health, University of Sydney, Sydney, NSW, Australia aut Leonard H. Telethon Institute for Child Health Research, Centre for Child Health Research, The University of Western Australia, P.O. Box 855, 6872, West Perth, Australia aut Journal of Autism and Developmental Disorders Springer US; http://www.springer-ny.com 37/9(2007-10-01), 1636-1646 0162-3257 37:9<1636 2007 37 10803 https://doi.org/10.1007/s10803-006-0293-9 text/html Onlinezugriff via DOI 1 research-article jats NATIONALLICENCE 856 40 https://doi.org/10.1007/s10803-006-0293-9 text/html Onlinezugriff via DOI NATIONALLICENCE 700 1- Fyfe S. Curtin University of Technology, Perth, WA, Australia aut NATIONALLICENCE 700 1- Downs J. Telethon Institute for Child Health Research, Centre for Child Health Research, The University of Western Australia, P.O. Box 855, 6872, West Perth, Australia aut NATIONALLICENCE 700 1- McIlroy O. Telethon Institute for Child Health Research, Centre for Child Health Research, The University of Western Australia, P.O. Box 855, 6872, West Perth, Australia aut NATIONALLICENCE 700 1- Burford B. Section of Psychological Medicine, University of Glasgow, Glasgow, UK aut NATIONALLICENCE 700 1- Lister J. Curtin University of Technology, Perth, WA, Australia aut NATIONALLICENCE 700 1- Reilly S. Faculty of Health Sciences, Murdoch Children's Research Institute, La Trobe University, Melbourne, VIC, Australia aut NATIONALLICENCE 700 1- Laurvick C. Telethon Institute for Child Health Research, Centre for Child Health Research, The University of Western Australia, P.O. Box 855, 6872, West Perth, Australia aut NATIONALLICENCE 700 1- Philippe C. Telethon Institute for Child Health Research, Centre for Child Health Research, The University of Western Australia, P.O. Box 855, 6872, West Perth, Australia aut NATIONALLICENCE 700 1- Msall M. Pritzker School of Medicine, University of Chicago, Chicago, IL, USA aut NATIONALLICENCE 700 1- Kaufmann W. Center for Genetic Disorders of Cognition and Behavior, Kennedy Krieger Institute, Johns Hopkins University School of Medicine, Baltimore, MD, USA aut NATIONALLICENCE 700 1- Ellaway C. Discipline of Paediatrics and Child Health, University of Sydney, Sydney, NSW, Australia aut NATIONALLICENCE 700 1- Leonard H. Telethon Institute for Child Health Research, Centre for Child Health Research, The University of Western Australia, P.O. Box 855, 6872, West Perth, Australia aut NATIONALLICENCE 773 0- Journal of Autism and Developmental Disorders Springer US; http://www.springer-ny.com 37/9(2007-10-01), 1636-1646 0162-3257 37:9<1636 2007 37 10803 Metadata rights reserved Springer special CC-BY-NC licence nationallicence BK010053 XK010053 XK010000 NATIONALLICENCE NATIONALLICENCE NL-springer