caa a22 4500 467896488 CHVBK 20180406152805.0 cr unu---uuuuu 170328e20060301xx s 000 0 eng 10.1007/s11019-005-7984-4 doi (NATIONALLICENCE)springer-10.1007/s11019-005-7984-4 Human Tissue Samples and Ethics [Elektronische Daten] - Attitudes of the General Public in Sweden to Biobank Research [Tore Nilstun, Göran Hermerén] Purpose: To survey the attitudes of the general public in Sweden to biobank research and to discuss the findings in the light of some well-known ethical principles. Methods: A questionnaire was used to survey the opinions of the general public in Sweden, and an ethical analysis (using the principles of autonomy, non-maleficence, beneficence and justice) was performed to discuss the possible conditions of such research. Findings: Between 3 and 9% answered that they did not want their samples to be collected and stored in a biobank. Many respondents required information about the purpose of the research and wanted to be able to consent or refuse. About one third of the respondents said they would have answered differently if financial gain was involved and those who commented indicated a more negative attitude. The principle of autonomy maintains that the right to self-determination should be respected, and the principles of non-maleficence and beneficence that the probable harms and benefits resulting from a particular project by using samples from a biobank should be balanced. The general public disagree about how these principles are to be balanced. Interpretation: In the light of the findings different interpretations of the situation as well as possible alternatives are discussed in this paper. Springer, 2006 autonomy nationallicence beneficence nationallicence biobank nationallicence research nationallicence non-maleficence nationallicence Nilstun Tore Department of Medical Ethics, Lund University, SE-222 22, Lund, Sweden aut Hermerén Göran Department of Medical Ethics, Lund University, SE-222 22, Lund, Sweden aut Medicine, Health Care and Philosophy Kluwer Academic Publishers 9/1(2006-03-01), 81-86 1386-7423 9:1<81 2006 9 11019 https://doi.org/10.1007/s11019-005-7984-4 text/html Onlinezugriff via DOI 1 research-article jats NATIONALLICENCE 856 40 https://doi.org/10.1007/s11019-005-7984-4 text/html Onlinezugriff via DOI NATIONALLICENCE 700 1- Nilstun Tore Department of Medical Ethics, Lund University, SE-222 22, Lund, Sweden aut NATIONALLICENCE 700 1- Hermerén Göran Department of Medical Ethics, Lund University, SE-222 22, Lund, Sweden aut NATIONALLICENCE 773 0- Medicine, Health Care and Philosophy Kluwer Academic Publishers 9/1(2006-03-01), 81-86 1386-7423 9:1<81 2006 9 11019 Metadata rights reserved Springer special CC-BY-NC licence nationallicence BK010053 XK010053 XK010000 NATIONALLICENCE NATIONALLICENCE NL-springer