caa a22 4500 477084664 CHVBK 20180405111500.0 cr unu---uuuuu 170330e19960201xx s 000 0 eng 10.1007/BF00435966 doi (NATIONALLICENCE)springer-10.1007/BF00435966 Measuring quality of life in the parents of children with asthma [Elektronische Daten] [E. Juniper, G. Guyatt, D. Feeny, P. Ferrie, L. Griffith, M. Townsend] Parents and primary caregivers of children with asthma are limited in normal daily activities and experience anxieties and fears due to the child's illness. We have developed the Paediatric Asthma Caregiver's Quality of Life Questionnaire (PACQLQ) to measure these impairments. The objective of this study was to evaluate the measurement properties of the PACQLQ. A 9-week single cohort study was conducted with assessments at 1, 5 and 9 weeks. Participants in the study were primary caregivers of 52 children (age 7-17 years) with symptomatic asthma, recruited from notices in the local media and paediatric asthma clinics. Caregivers completed the PACQLQ, Impact-on-Family Scale and Global Rating of Change Questionnaires. Patients completed the Paediatric Asthma Quality of Life Questionnaire and an asthma control questionnaire. Spirornetry and β-agonist use were recorded. The PACQLQ was able to detect quality of life changes in those caregivers who changed (p<0.001) and to differentiate these from the caregivers whose quality of life remained stable (p<0.0001). The PACQLQ is reproducible in subjects who are stable (ICC=0.84), and showed acceptable levels of longitudinal and cross-sectional correlations with the child's asthma status and health-related quality of life and with other measures of caregiver health-related quality of life. The PACQLQ functions well as both an evaluative and a discriminative instrument. Rapid Science Publishers, 1996 Asthma nationallicence health-related quality of life nationallicence paediatrics nationallicence Juniper E. Department of Clinical Epidemiology and Biostatistics, McMaster University Medical Centre, Hamilton, Ontario, Canada aut Guyatt G. Department of Clinical Epidemiology and Biostatistics, McMaster University Medical Centre, Hamilton, Ontario, Canada aut Feeny D. Department of Clinical Epidemiology and Biostatistics, McMaster University Medical Centre, Hamilton, Ontario, Canada aut Ferrie P. Department of Clinical Epidemiology and Biostatistics, McMaster University Medical Centre, Hamilton, Ontario, Canada aut Griffith L. Department of Clinical Epidemiology and Biostatistics, McMaster University Medical Centre, Hamilton, Ontario, Canada aut Townsend M. Department of Clinical Epidemiology and Biostatistics, McMaster University Medical Centre, Hamilton, Ontario, Canada aut Quality of Life Research Kluwer Academic Publishers 5/1(1996-02-01), 27-34 0962-9343 5:1<27 1996 5 11136 https://doi.org/10.1007/BF00435966 text/html Onlinezugriff via DOI 1 research-article jats NATIONALLICENCE 856 40 https://doi.org/10.1007/BF00435966 text/html Onlinezugriff via DOI NATIONALLICENCE 700 1- Juniper E. Department of Clinical Epidemiology and Biostatistics, McMaster University Medical Centre, Hamilton, Ontario, Canada aut NATIONALLICENCE 700 1- Guyatt G. Department of Clinical Epidemiology and Biostatistics, McMaster University Medical Centre, Hamilton, Ontario, Canada aut NATIONALLICENCE 700 1- Feeny D. Department of Clinical Epidemiology and Biostatistics, McMaster University Medical Centre, Hamilton, Ontario, Canada aut NATIONALLICENCE 700 1- Ferrie P. Department of Clinical Epidemiology and Biostatistics, McMaster University Medical Centre, Hamilton, Ontario, Canada aut NATIONALLICENCE 700 1- Griffith L. Department of Clinical Epidemiology and Biostatistics, McMaster University Medical Centre, Hamilton, Ontario, Canada aut NATIONALLICENCE 700 1- Townsend M. Department of Clinical Epidemiology and Biostatistics, McMaster University Medical Centre, Hamilton, Ontario, Canada aut NATIONALLICENCE 773 0- Quality of Life Research Kluwer Academic Publishers 5/1(1996-02-01), 27-34 0962-9343 5:1<27 1996 5 11136 Metadata rights reserved Springer special CC-BY-NC licence nationallicence SWISSBIB 477084648 BK010053 XK010053 XK010000 NATIONALLICENCE NATIONALLICENCE NL-springer