caa a22 4500 477084826 CHVBK 20180405111500.0 cr unu---uuuuu 170330e19961201xx s 000 0 eng 10.1007/BF00439227 doi (NATIONALLICENCE)springer-10.1007/BF00439227 Quality of life in pre-adolescence: A 17-dimensional health-related measure (17D) [Elektronische Daten] [M. Apajasalo, J. Rautonen, C. Holmberg, J. Sinkkonen, V. Aalberg, H. Pihko, M. Siimes, I. Kaitila, A. Mäkelä, K. Erkkilä, H. Sintonen] Although interest in the health-related quality of life (HRQOL) of children has increased in the last years, validated methods for assessing the HRQOL-and especially the perceived HRQOL—of children have been missing. We introduced a 17-dimensional, illustrated, generic measure of perceived HRQOL (17D) for pre-adolescents, and demonstrated its application to three populations of children aged 8-11 years: (1) 244 normal schoolchildren; (2) 22 patients surviving organ transplantation and (3) 10 patients with genetic skeletal dysplasias. The HRQOL scores and profiles of the patients differed significantly according to the diagnosis, giving support to its construct validity. The reliability of the measure was high: its repeatability coefficient was 95%. As a structured interview of 20-30 minutes, the measurement burden is reasonable. We conclude that the assessment of quality of life of pre-adolescents can and should be based on data collected from the children themselves. Our initial experience indicates that 17D is comprehensive, reliable, and valid. Rapid Science Publishers, 1996 Assessment nationallicence children nationallicence measure nationallicence pre-adolescent nationallicence quality of life nationallicence Apajasalo M. Children's Hospital, University of Helsinki, Helsinki, Finland aut Rautonen J. Children's Hospital, University of Helsinki, Helsinki, Finland aut Holmberg C. Children's Hospital, University of Helsinki, Helsinki, Finland aut Sinkkonen J. Children's Hospital, University of Helsinki, Helsinki, Finland aut Aalberg V. Children's Hospital, University of Helsinki, Helsinki, Finland aut Pihko H. Children's Hospital, University of Helsinki, Helsinki, Finland aut Siimes M. Children's Hospital, University of Helsinki, Helsinki, Finland aut Kaitila I. Department of Medical Genetics, University of Helsinki, Helsinki, Finland aut Mäkelä A. Children's Hospital, University of Helsinki, Helsinki, Finland aut Erkkilä K. Children's Hospital, University of Helsinki, Helsinki, Finland aut Sintonen H. Department of Health Policy and Management, University of Kuopio, Kuopio, Finland aut Quality of Life Research Kluwer Academic Publishers 5/6(1996-12-01), 532-538 0962-9343 5:6<532 1996 5 11136 https://doi.org/10.1007/BF00439227 text/html Onlinezugriff via DOI 1 research-article jats NATIONALLICENCE 856 40 https://doi.org/10.1007/BF00439227 text/html Onlinezugriff via DOI NATIONALLICENCE 700 1- Apajasalo M. Children's Hospital, University of Helsinki, Helsinki, Finland aut NATIONALLICENCE 700 1- Rautonen J. Children's Hospital, University of Helsinki, Helsinki, Finland aut NATIONALLICENCE 700 1- Holmberg C. Children's Hospital, University of Helsinki, Helsinki, Finland aut NATIONALLICENCE 700 1- Sinkkonen J. Children's Hospital, University of Helsinki, Helsinki, Finland aut NATIONALLICENCE 700 1- Aalberg V. Children's Hospital, University of Helsinki, Helsinki, Finland aut NATIONALLICENCE 700 1- Pihko H. Children's Hospital, University of Helsinki, Helsinki, Finland aut NATIONALLICENCE 700 1- Siimes M. Children's Hospital, University of Helsinki, Helsinki, Finland aut NATIONALLICENCE 700 1- Kaitila I. Department of Medical Genetics, University of Helsinki, Helsinki, Finland aut NATIONALLICENCE 700 1- Mäkelä A. Children's Hospital, University of Helsinki, Helsinki, Finland aut NATIONALLICENCE 700 1- Erkkilä K. Children's Hospital, University of Helsinki, Helsinki, Finland aut NATIONALLICENCE 700 1- Sintonen H. Department of Health Policy and Management, University of Kuopio, Kuopio, Finland aut NATIONALLICENCE 773 0- Quality of Life Research Kluwer Academic Publishers 5/6(1996-12-01), 532-538 0962-9343 5:6<532 1996 5 11136 Metadata rights reserved Springer special CC-BY-NC licence nationallicence BK010053 XK010053 XK010000 NATIONALLICENCE NATIONALLICENCE NL-springer