caa a22 4500 477085199 CHVBK 20180405111501.0 cr unu---uuuuu 170330e19960401xx s 000 0 eng 10.1007/BF00434742 doi (NATIONALLICENCE)springer-10.1007/BF00434742 Quality of life in early adolescence: A sixteendimensional health-related measure (16D) [Elektronische Daten] [M. Apajasalo, H. Sintonen, C. Holmberg, J. Sinkkonen, V. Aalberg, H. Pihko, M. Siimes, I. Kaitila, A. Mäkelä, K. Rantakari, R. Anttila, J. Rautonen] While data on the health-related quality of life (HRQOL) of adults are accumulating, very little is known about the HRQOL—and especially the perceived HRQOL—of children. In our study we introduced a 16-dimensional, generic self-assessment measure of HRQOL (16D) for early adolescents, and demonstrated its use with four populations of children aged 12-15: (1) 239 normal schoolchildren, (2) patients waiting for organ transplantation (n=5), (3) patients with genetic skeletal dysplasias (n=19), and (4) patients with epilepsy (n=32). The HRQOL profiles of the patients differed significantly according to the diagnosis, giving support to its construct validity. The reliability of the measure was high: its repeatability coefficient was 91%. The quality of life ratings of the healthy boys and their parents differed on the dimensions of distress, vitality, speech, mental function, and discomfort and symptoms (p<0.05). In addition, there were significant differences in the health-related valuations between the girls, boys and their parents. We conclude that the assessment of quality of life of adolescents should be based on data collected from the adolescents themselves. Further, the 16D is so far the only generic HRQOL measure designed specifically for this purpose. It is capable of differentiating the HRQOL of healthy adolescents as well as patients with various diagnoses. Our experience also indicates that it is easy to use, yet it seems comprehensive, reliable, and valid. Rapid Science Publishers, 1996 Adolescents nationallicence children nationallicence measure nationallicence quality of life nationallicence self-assessment nationallicence Apajasalo M. Children's Hospital, University of Helsinki, Helsinki, Finland aut Sintonen H. Department of Health Policy and Management, University of Kuopio, Kuopio, Finland aut Holmberg C. Children's Hospital, University of Helsinki, Helsinki, Finland aut Sinkkonen J. Children's Hospital, University of Helsinki, Helsinki, Finland aut Aalberg V. Department of Psychiatry, University of Helsinki, Helsinki, Finland aut Pihko H. Children's Hospital, University of Helsinki, Helsinki, Finland aut Siimes M. Children's Hospital, University of Helsinki, Helsinki, Finland aut Kaitila I. Department of Medical Genetics, University of Helsinki, Helsinki, Finland aut Mäkelä A. Children's Hospital, University of Helsinki, Helsinki, Finland aut Rantakari K. Children's Hospital, University of Helsinki, Helsinki, Finland aut Anttila R. Children's Hospital, University of Helsinki, Helsinki, Finland aut Rautonen J. Children's Hospital, University of Helsinki, Helsinki, Finland aut Quality of Life Research Kluwer Academic Publishers 5/2(1996-04-01), 205-211 0962-9343 5:2<205 1996 5 11136 https://doi.org/10.1007/BF00434742 text/html Onlinezugriff via DOI 1 research-article jats NATIONALLICENCE 856 40 https://doi.org/10.1007/BF00434742 text/html Onlinezugriff via DOI NATIONALLICENCE 700 1- Apajasalo M. Children's Hospital, University of Helsinki, Helsinki, Finland aut NATIONALLICENCE 700 1- Sintonen H. Department of Health Policy and Management, University of Kuopio, Kuopio, Finland aut NATIONALLICENCE 700 1- Holmberg C. Children's Hospital, University of Helsinki, Helsinki, Finland aut NATIONALLICENCE 700 1- Sinkkonen J. Children's Hospital, University of Helsinki, Helsinki, Finland aut NATIONALLICENCE 700 1- Aalberg V. Department of Psychiatry, University of Helsinki, Helsinki, Finland aut NATIONALLICENCE 700 1- Pihko H. Children's Hospital, University of Helsinki, Helsinki, Finland aut NATIONALLICENCE 700 1- Siimes M. Children's Hospital, University of Helsinki, Helsinki, Finland aut NATIONALLICENCE 700 1- Kaitila I. Department of Medical Genetics, University of Helsinki, Helsinki, Finland aut NATIONALLICENCE 700 1- Mäkelä A. Children's Hospital, University of Helsinki, Helsinki, Finland aut NATIONALLICENCE 700 1- Rantakari K. Children's Hospital, University of Helsinki, Helsinki, Finland aut NATIONALLICENCE 700 1- Anttila R. Children's Hospital, University of Helsinki, Helsinki, Finland aut NATIONALLICENCE 700 1- Rautonen J. Children's Hospital, University of Helsinki, Helsinki, Finland aut NATIONALLICENCE 773 0- Quality of Life Research Kluwer Academic Publishers 5/2(1996-04-01), 205-211 0962-9343 5:2<205 1996 5 11136 Metadata rights reserved Springer special CC-BY-NC licence nationallicence BK010053 XK010053 XK010000 NATIONALLICENCE NATIONALLICENCE NL-springer