Towards an ICF core set for ADHD: a worldwide expert survey on ability and disability

Verfasser / Beitragende:
[Elles de Schipper, Soheil Mahdi, David Coghill, Petrus de Vries, Susan Gau, Mats Granlund, Martin Holtmann, Sunil Karande, Florence Levy, Omar Almodayfer, Luis Rohde, Rosemary Tannock, Sven Bölte]
Ort, Verlag, Jahr:
2015
Enthalten in:
European Child & Adolescent Psychiatry, 24/12(2015-12-01), 1509-1521
Format:
Artikel (online)
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024 7 0 |a 10.1007/s00787-015-0778-1  |2 doi 
035 |a (NATIONALLICENCE)springer-10.1007/s00787-015-0778-1 
245 0 0 |a Towards an ICF core set for ADHD: a worldwide expert survey on ability and disability  |h [Elektronische Daten]  |c [Elles de Schipper, Soheil Mahdi, David Coghill, Petrus de Vries, Susan Gau, Mats Granlund, Martin Holtmann, Sunil Karande, Florence Levy, Omar Almodayfer, Luis Rohde, Rosemary Tannock, Sven Bölte] 
520 3 |a This is the second in a series of four empirical studies designed to develop International Classification of Functioning, Disability and Health (ICF and Children and Youth version, ICF-CY) core sets for attention deficit hyperactivity disorder (ADHD). The objective of this stage was to gather the opinions from international experts on which ability and disability concepts were considered relevant to functioning in ADHD. An email-based survey was carried out amongst international experts in ADHD. Relevant functional ability and disability concepts were extracted from their responses and linked to the ICF/-CY categories by two independent researchers using a standardised linking procedure. 174 experts from 11 different disciplines and 45 different countries completed the survey. Meaningful concepts identified in their responses were linked to 185 ICF/-CY categories. Of these, 83 categories were identified by at least 5% of the experts and considered the most relevant to ADHD: 30 of these were related to Body functions (most identified: attention functions, 85%), 30 to Activities and Participation (most identified: school education, 52%), 20 to Environmental factors (most identified: support from immediate family, 61%), and 3 to Body structures (most identified: structure of brain, 83%). Experts also provided their views on particular abilities related to ADHD, naming characteristics such as high-energy levels, flexibility and resiliency. Gender differences in the expression of ADHD identified by experts pertained mainly to females showing more internalising (e.g. anxiety, low self-esteem) and less externalising behaviours (e.g. hyperactivity), leading to a risk of late- and under-diagnosis in females. Results indicate that the impact of ADHD extends beyond the core symptom domains, into all areas of life and across the lifespan. The current study in combination with three additional preparatory studies (comprehensive scoping review, focus groups, clinical study) will provide the scientific basis to define the ADHD ICF/-CY core sets for multi-purpose use in basic and applied research and every day clinical practice. 
540 |a The Author(s), 2015 
690 7 |a ADHD  |2 nationallicence 
690 7 |a Neurodevelopmental disorder  |2 nationallicence 
690 7 |a Gender differences  |2 nationallicence 
690 7 |a Neurodiversity  |2 nationallicence 
690 7 |a Quality of life  |2 nationallicence 
690 7 |a Assessment  |2 nationallicence 
690 7 |a Psychiatry  |2 nationallicence 
690 7 |a ICD  |2 nationallicence 
690 7 |a DSM  |2 nationallicence 
700 1 |a de Schipper  |D Elles  |u Paediatric Neuropsychiatry Unit, Department of Women's and Children's Health, Center of Neurodevelopmental Disorders (KIND), Karolinska Institutet, Stockholm, Sweden  |4 aut 
700 1 |a Mahdi  |D Soheil  |u Paediatric Neuropsychiatry Unit, Department of Women's and Children's Health, Center of Neurodevelopmental Disorders (KIND), Karolinska Institutet, Stockholm, Sweden  |4 aut 
700 1 |a Coghill  |D David  |u Division of Neuroscience, Medical Research Institute, University of Dundee, Ninewells Hospital and Medical School, Dundee, UK  |4 aut 
700 1 |a de Vries  |D Petrus  |u Division of Child and Adolescent Psychiatry, University of Cape Town, Cape Town, South Africa  |4 aut 
700 1 |a Gau  |D Susan  |u Department of Psychiatry, National Taiwan University Hospital and College of Medicine, Taipei, Taiwan  |4 aut 
700 1 |a Granlund  |D Mats  |u CHILD, SIDR, Jönköping University, Jönköping, Sweden  |4 aut 
700 1 |a Holtmann  |D Martin  |u LWL-University Hospital for Child and Adolescent Psychiatry, Psychotherapy and Psychosomatics of the Ruhr University Bochum, Hamm, Germany  |4 aut 
700 1 |a Karande  |D Sunil  |u Learning Disability Clinic, Department of Paediatrics, Seth G.S. Medical College and K.E.M. Hospital, Mumbai, India  |4 aut 
700 1 |a Levy  |D Florence  |u School of Psychiatry, Prince of Wales Hospital and University of New South Wales, Sydney, Australia  |4 aut 
700 1 |a Almodayfer  |D Omar  |u Psychiatry Section, King Abdulaziz Medical City, College of Medicine, Riyadh, Saudi Arabia  |4 aut 
700 1 |a Rohde  |D Luis  |u Child Psychiatric Division, Departmant of Psychiatry, Hospital de Clinicas de Porto Alegre, Federal University of Rio Grande do Sul, Porto Alegre, Brazil  |4 aut 
700 1 |a Tannock  |D Rosemary  |u Neurosciences and Mental Health Research Program, The Hospital for Sick Children, University of Toronto, Toronto, Canada  |4 aut 
700 1 |a Bölte  |D Sven  |u Paediatric Neuropsychiatry Unit, Department of Women's and Children's Health, Center of Neurodevelopmental Disorders (KIND), Karolinska Institutet, Stockholm, Sweden  |4 aut 
773 0 |t European Child & Adolescent Psychiatry  |d Springer Berlin Heidelberg  |g 24/12(2015-12-01), 1509-1521  |x 1018-8827  |q 24:12<1509  |1 2015  |2 24  |o 787 
856 4 0 |u https://doi.org/10.1007/s00787-015-0778-1  |q text/html  |z Onlinezugriff via DOI 
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908 |D 1  |a research-article  |2 jats 
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950 |B NATIONALLICENCE  |P 700  |E 1-  |a de Schipper  |D Elles  |u Paediatric Neuropsychiatry Unit, Department of Women's and Children's Health, Center of Neurodevelopmental Disorders (KIND), Karolinska Institutet, Stockholm, Sweden  |4 aut 
950 |B NATIONALLICENCE  |P 700  |E 1-  |a Mahdi  |D Soheil  |u Paediatric Neuropsychiatry Unit, Department of Women's and Children's Health, Center of Neurodevelopmental Disorders (KIND), Karolinska Institutet, Stockholm, Sweden  |4 aut 
950 |B NATIONALLICENCE  |P 700  |E 1-  |a Coghill  |D David  |u Division of Neuroscience, Medical Research Institute, University of Dundee, Ninewells Hospital and Medical School, Dundee, UK  |4 aut 
950 |B NATIONALLICENCE  |P 700  |E 1-  |a de Vries  |D Petrus  |u Division of Child and Adolescent Psychiatry, University of Cape Town, Cape Town, South Africa  |4 aut 
950 |B NATIONALLICENCE  |P 700  |E 1-  |a Gau  |D Susan  |u Department of Psychiatry, National Taiwan University Hospital and College of Medicine, Taipei, Taiwan  |4 aut 
950 |B NATIONALLICENCE  |P 700  |E 1-  |a Granlund  |D Mats  |u CHILD, SIDR, Jönköping University, Jönköping, Sweden  |4 aut 
950 |B NATIONALLICENCE  |P 700  |E 1-  |a Holtmann  |D Martin  |u LWL-University Hospital for Child and Adolescent Psychiatry, Psychotherapy and Psychosomatics of the Ruhr University Bochum, Hamm, Germany  |4 aut 
950 |B NATIONALLICENCE  |P 700  |E 1-  |a Karande  |D Sunil  |u Learning Disability Clinic, Department of Paediatrics, Seth G.S. Medical College and K.E.M. Hospital, Mumbai, India  |4 aut 
950 |B NATIONALLICENCE  |P 700  |E 1-  |a Levy  |D Florence  |u School of Psychiatry, Prince of Wales Hospital and University of New South Wales, Sydney, Australia  |4 aut 
950 |B NATIONALLICENCE  |P 700  |E 1-  |a Almodayfer  |D Omar  |u Psychiatry Section, King Abdulaziz Medical City, College of Medicine, Riyadh, Saudi Arabia  |4 aut 
950 |B NATIONALLICENCE  |P 700  |E 1-  |a Rohde  |D Luis  |u Child Psychiatric Division, Departmant of Psychiatry, Hospital de Clinicas de Porto Alegre, Federal University of Rio Grande do Sul, Porto Alegre, Brazil  |4 aut 
950 |B NATIONALLICENCE  |P 700  |E 1-  |a Tannock  |D Rosemary  |u Neurosciences and Mental Health Research Program, The Hospital for Sick Children, University of Toronto, Toronto, Canada  |4 aut 
950 |B NATIONALLICENCE  |P 700  |E 1-  |a Bölte  |D Sven  |u Paediatric Neuropsychiatry Unit, Department of Women's and Children's Health, Center of Neurodevelopmental Disorders (KIND), Karolinska Institutet, Stockholm, Sweden  |4 aut 
950 |B NATIONALLICENCE  |P 773  |E 0-  |t European Child & Adolescent Psychiatry  |d Springer Berlin Heidelberg  |g 24/12(2015-12-01), 1509-1521  |x 1018-8827  |q 24:12<1509  |1 2015  |2 24  |o 787