BRCA Genetic Counseling Among At-Risk Latinas in New York City: New Beliefs Shape New Generation
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| 024 | 7 | 0 | |a 10.1007/s10897-014-9746-z |2 doi |
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| 245 | 0 | 0 | |a BRCA Genetic Counseling Among At-Risk Latinas in New York City: New Beliefs Shape New Generation |h [Elektronische Daten] |c [Katarina Sussner, Tiffany Edwards, Cristina Villagra, M. Rodriguez, Hayley Thompson, Lina Jandorf, Heiddis Valdimarsdottir] |
| 520 | 3 | |a Despite the life-saving information that genetic counseling can provide for women at hereditary breast and/or ovarian cancer (HBOC) risk, Latinas disproportionately underuse such services. Understanding Latinas' beliefs and attitudes about BRCA genetic counseling may be the key to better health promotion within this underserved, at-risk group. We conducted 12 focus groups (N = 54) with at-risk Latina women in New York City, followed by 30 in-depth interviews among a subset of the focus group women. Both were professionally transcribed, translated where applicable and data analysis was completed by two coders trained in qualitative methods. Results revealed personal and community knowledge about BRCA genetic counseling was relatively low, although women felt largely positive about counseling. The main motivator to undergo genetic counseling was concerns about learning family members' cancer status, while the main barrier was competing demands. Generational differences were apparent, with younger women (approximately <55years) reporting that they were more interested in educating themselves about counseling and other ways to prevent cancer. Younger women were also less likely to ascribe to traditionally Latino-centered cultural beliefs which could serve as barriers (e.g. machismo, fatalismo, destino) to undergoing genetic counseling. Participants were largely enthusiastic about educational efforts to increase awareness of genetic counseling among Latinos. Revealing the beliefs and attitudes of underserved Latinas may help shape culturally appropriate educational materials and promotion programs to increase BRCA genetic counseling uptake within this underrepresented community. | |
| 540 | |a National Society of Genetic Counselors, Inc., 2014 | ||
| 690 | 7 | |a BRCA |2 nationallicence | |
| 690 | 7 | |a Genetic counseling |2 nationallicence | |
| 690 | 7 | |a Latinas |2 nationallicence | |
| 690 | 7 | |a Breast cancer |2 nationallicence | |
| 700 | 1 | |a Sussner |D Katarina |u Department of Oncological Sciences, Division of Cancer Prevention and Control, Icahn School of Medicine at Mount Sinai, New York, NY, USA |4 aut | |
| 700 | 1 | |a Edwards |D Tiffany |u Center for Community-Engaged Research, Fordham University, New York, NY, USA |4 aut | |
| 700 | 1 | |a Villagra |D Cristina |u Department of Oncological Sciences, Division of Cancer Prevention and Control, Icahn School of Medicine at Mount Sinai, New York, NY, USA |4 aut | |
| 700 | 1 | |a Rodriguez |D M. |u Department of Oncological Sciences, Division of Cancer Prevention and Control, Icahn School of Medicine at Mount Sinai, New York, NY, USA |4 aut | |
| 700 | 1 | |a Thompson |D Hayley |u Karmanos Cancer Institute, Population Studies and Disparities Research, Wayne State University School of Medicine, Detroit, MI, USA |4 aut | |
| 700 | 1 | |a Jandorf |D Lina |u Department of Oncological Sciences, Division of Cancer Prevention and Control, Icahn School of Medicine at Mount Sinai, New York, NY, USA |4 aut | |
| 700 | 1 | |a Valdimarsdottir |D Heiddis |u Department of Oncological Sciences, Division of Cancer Prevention and Control, Icahn School of Medicine at Mount Sinai, New York, NY, USA |4 aut | |
| 773 | 0 | |t Journal of Genetic Counseling |d Springer US; http://www.springer-ny.com |g 24/1(2015-02-01), 134-148 |x 1059-7700 |q 24:1<134 |1 2015 |2 24 |o 10897 | |
| 856 | 4 | 0 | |u https://doi.org/10.1007/s10897-014-9746-z |q text/html |z Onlinezugriff via DOI |
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| 900 | 7 | |a Metadata rights reserved |b Springer special CC-BY-NC licence |2 nationallicence | |
| 908 | |D 1 |a research-article |2 jats | ||
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| 950 | |B NATIONALLICENCE |P 856 |E 40 |u https://doi.org/10.1007/s10897-014-9746-z |q text/html |z Onlinezugriff via DOI | ||
| 950 | |B NATIONALLICENCE |P 700 |E 1- |a Sussner |D Katarina |u Department of Oncological Sciences, Division of Cancer Prevention and Control, Icahn School of Medicine at Mount Sinai, New York, NY, USA |4 aut | ||
| 950 | |B NATIONALLICENCE |P 700 |E 1- |a Edwards |D Tiffany |u Center for Community-Engaged Research, Fordham University, New York, NY, USA |4 aut | ||
| 950 | |B NATIONALLICENCE |P 700 |E 1- |a Villagra |D Cristina |u Department of Oncological Sciences, Division of Cancer Prevention and Control, Icahn School of Medicine at Mount Sinai, New York, NY, USA |4 aut | ||
| 950 | |B NATIONALLICENCE |P 700 |E 1- |a Rodriguez |D M. |u Department of Oncological Sciences, Division of Cancer Prevention and Control, Icahn School of Medicine at Mount Sinai, New York, NY, USA |4 aut | ||
| 950 | |B NATIONALLICENCE |P 700 |E 1- |a Thompson |D Hayley |u Karmanos Cancer Institute, Population Studies and Disparities Research, Wayne State University School of Medicine, Detroit, MI, USA |4 aut | ||
| 950 | |B NATIONALLICENCE |P 700 |E 1- |a Jandorf |D Lina |u Department of Oncological Sciences, Division of Cancer Prevention and Control, Icahn School of Medicine at Mount Sinai, New York, NY, USA |4 aut | ||
| 950 | |B NATIONALLICENCE |P 700 |E 1- |a Valdimarsdottir |D Heiddis |u Department of Oncological Sciences, Division of Cancer Prevention and Control, Icahn School of Medicine at Mount Sinai, New York, NY, USA |4 aut | ||
| 950 | |B NATIONALLICENCE |P 773 |E 0- |t Journal of Genetic Counseling |d Springer US; http://www.springer-ny.com |g 24/1(2015-02-01), 134-148 |x 1059-7700 |q 24:1<134 |1 2015 |2 24 |o 10897 | ||