caa a22 4500 605544336 CHVBK 20210128100931.0 cr unu---uuuuu 210128e20151201xx s 000 0 eng 10.1007/s10897-015-9843-7 doi (NATIONALLICENCE)springer-10.1007/s10897-015-9843-7 Perception of Genetic Testing for Deafness and Factors Associated with Interest in Genetic Testing Among Deaf People in a Selected Population in Sub-Saharan Africa [Elektronische Daten] [Babatunde Adedokun, Bidemi Yusuf, J. Lasisi, A. Jinadu, M. Sunmonu, A. Ashanke, O. Lasisi] Understanding the perceptions of genetic testing by members of the deaf community may help in planning deafness genetics research, especially so in the context of strong adherence to cultural values as found among native Africans. Among Yorubas in Nigeria, deafness is perceived to be caused by some offensive actions of the mother during pregnancy, spiritual attack, and childhood infections. We studied attitudes towards, and acceptance of genetic testing by the deaf community in Nigeria. Structured questionnaires were administered to individuals sampled from the Vocational Training Centre for the Deaf, the religious Community, and government schools, among others. The main survey items elicited information about the community in which the deaf people participate, their awareness of genetic testing, whether or not they view genetic testing as acceptable, and their understanding of the purpose of genetic testing. There were 150 deaf participants (61.3% males, 38.7% females) with mean age of 26.7years ±9.8. A majority of survey respondents indicated they relate only with other members of the deaf community (78%) and reported believing genetic testing does more good than harm (79.3%); 57% expressed interest in genetic testing. Interest in genetic testing for deafness or in genetic testing in pregnancy was not related to whether respondents relate primarily to the deaf or to the hearing community. However, a significantly higher number of male respondents and respondents with low education reported interest in genetic testing. National Society of Genetic Counselors, Inc., 2015 Perception nationallicence Genetic testing nationallicence Interest nationallicence Deaf nationallicence Demographic profile nationallicence Nigeria nationallicence Attitude nationallicence Genetic counseling nationallicence Adedokun Babatunde Department of Epidemiology and Medical Statistics, College of Medicine, University of Ibadan, Ibadan, Nigeria aut Yusuf Bidemi Department of Epidemiology and Medical Statistics, College of Medicine, University of Ibadan, Ibadan, Nigeria aut Lasisi J. Department of Physiology, University College Hospital, Ibadan, Nigeria aut Jinadu A. Department of Public Health, Oyo State Teaching Service Commission, Ibadan, Nigeria aut Sunmonu M. Research Assistant, Oyo State Teaching Service Commission, Ibadan, Nigeria aut Ashanke A. Research Assistant, Oyo State Teaching Service Commission, Ibadan, Nigeria aut Lasisi O. Department of Otorhinolaryngology, Faculty of Clinical Sciences, College of Medicine, University of Ibadan, PO Box 22040, Ibadan, Nigeria aut Journal of Genetic Counseling Springer US; http://www.springer-ny.com 24/6(2015-12-01), 1037-1043 1059-7700 24:6<1037 2015 24 10897 https://doi.org/10.1007/s10897-015-9843-7 text/html Onlinezugriff via DOI BK010053 XK010053 XK010000 Metadata rights reserved Springer special CC-BY-NC licence nationallicence 1 research-article jats NATIONALLICENCE NATIONALLICENCE NL-springer NATIONALLICENCE 856 40 https://doi.org/10.1007/s10897-015-9843-7 text/html Onlinezugriff via DOI NATIONALLICENCE 700 1- Adedokun Babatunde Department of Epidemiology and Medical Statistics, College of Medicine, University of Ibadan, Ibadan, Nigeria aut NATIONALLICENCE 700 1- Yusuf Bidemi Department of Epidemiology and Medical Statistics, College of Medicine, University of Ibadan, Ibadan, Nigeria aut NATIONALLICENCE 700 1- Lasisi J. Department of Physiology, University College Hospital, Ibadan, Nigeria aut NATIONALLICENCE 700 1- Jinadu A. Department of Public Health, Oyo State Teaching Service Commission, Ibadan, Nigeria aut NATIONALLICENCE 700 1- Sunmonu M. Research Assistant, Oyo State Teaching Service Commission, Ibadan, Nigeria aut NATIONALLICENCE 700 1- Ashanke A. Research Assistant, Oyo State Teaching Service Commission, Ibadan, Nigeria aut NATIONALLICENCE 700 1- Lasisi O. Department of Otorhinolaryngology, Faculty of Clinical Sciences, College of Medicine, University of Ibadan, PO Box 22040, Ibadan, Nigeria aut NATIONALLICENCE 773 0- Journal of Genetic Counseling Springer US; http://www.springer-ny.com 24/6(2015-12-01), 1037-1043 1059-7700 24:6<1037 2015 24 10897