caa a22 4500 605544425 CHVBK 20210128100931.0 cr unu---uuuuu 210128e20151201xx s 000 0 eng 10.1007/s10897-015-9832-x doi (NATIONALLICENCE)springer-10.1007/s10897-015-9832-x Support Desired by Women Following Termination of Pregnancy for a Fetal Anomaly [Elektronische Daten] [Aarti Ramdaney, Syed Hashmi, Manju Monga, Rebecca Carter, Jennifer Czerwinski] With the rapidly evolving field of prenatal testing, there is a growing need to provide support for women pursuing termination of pregnancy following the discovery of a fetal anomaly. Previous studies have documented that women in this situation often feel unsupported, but the type of resources desired by this population remains undetermined. We studied the awareness and utilization of support resources in 51 women at the time of the procedure, at 6weeks, and at 3months following the event. Though largely knowledgeable of existing resources at the time of the procedure, only 50% admitted contemplating their individualized need for support. Most expected to rely on the support of family and friends. Additionally, 50% expressed the desire to commemorate the pregnancy, though none wanted direct contact with their healthcare provider(s). Responses from the 6weeks and 3months assessments were consistent with previous literature as many women indicated not coping as expected and were unprepared for the psychological consequences following the procedure. Our findings indicate that women in these situations may not realize what their long-term support needs will be. They further indicate that guidelines for routine follow-up care should be established among healthcare providers that respect this population's initial desires to avoid reminders of the pregnancy and promote a flexible timeframe for support uptake. Additional support resources that promote flexible uptake as well as meet the desires of anonymity and ease of access need to be developed for this population. National Society of Genetic Counselors, Inc., 2015 Termination of pregnancy nationallicence Abortion nationallicence Fetal anomaly nationallicence Support resources nationallicence Prenatal testing nationallicence Genetic counseling nationallicence Ramdaney Aarti Genetic Counseling Program at The University of Texas Graduate School of Biomedical Science at Houston, 77030, Houston, TX, USA aut Hashmi Syed Department of Pediatrics at The University of Texas Medical School at Houston, Houston, TX, USA aut Monga Manju Department of Obstetrics & Gynecology at Baylor College of Medicine, Houston, TX, USA aut Carter Rebecca Genetic Counseling Program at The University of Texas Graduate School of Biomedical Science at Houston, 77030, Houston, TX, USA aut Czerwinski Jennifer Genetic Counseling Program at The University of Texas Graduate School of Biomedical Science at Houston, 77030, Houston, TX, USA aut Journal of Genetic Counseling Springer US; http://www.springer-ny.com 24/6(2015-12-01), 952-960 1059-7700 24:6<952 2015 24 10897 https://doi.org/10.1007/s10897-015-9832-x text/html Onlinezugriff via DOI BK010053 XK010053 XK010000 Metadata rights reserved Springer special CC-BY-NC licence nationallicence 1 research-article jats NATIONALLICENCE NATIONALLICENCE NL-springer NATIONALLICENCE 856 40 https://doi.org/10.1007/s10897-015-9832-x text/html Onlinezugriff via DOI NATIONALLICENCE 700 1- Ramdaney Aarti Genetic Counseling Program at The University of Texas Graduate School of Biomedical Science at Houston, 77030, Houston, TX, USA aut NATIONALLICENCE 700 1- Hashmi Syed Department of Pediatrics at The University of Texas Medical School at Houston, Houston, TX, USA aut NATIONALLICENCE 700 1- Monga Manju Department of Obstetrics & Gynecology at Baylor College of Medicine, Houston, TX, USA aut NATIONALLICENCE 700 1- Carter Rebecca Genetic Counseling Program at The University of Texas Graduate School of Biomedical Science at Houston, 77030, Houston, TX, USA aut NATIONALLICENCE 700 1- Czerwinski Jennifer Genetic Counseling Program at The University of Texas Graduate School of Biomedical Science at Houston, 77030, Houston, TX, USA aut NATIONALLICENCE 773 0- Journal of Genetic Counseling Springer US; http://www.springer-ny.com 24/6(2015-12-01), 952-960 1059-7700 24:6<952 2015 24 10897