Facilitators and Challenges in Psychosocial Adaptation to Being at Increased Familial Risk of Breast Cancer
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| 024 | 7 | 0 | |a 10.1007/s10897-015-9824-x |2 doi |
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| 245 | 0 | 0 | |a Facilitators and Challenges in Psychosocial Adaptation to Being at Increased Familial Risk of Breast Cancer |h [Elektronische Daten] |c [Louise Heiniger, Melanie Price, Margaret Charles, Phyllis Butow] |
| 520 | 3 | |a Little is known about the process of psychosocial adaptation to familial risk in tested and untested individuals at increased familial risk of cancer. This paper presents findings from a qualitative study of 36 women participating in the Kathleen Cuningham Consortium for Research into Familial Breast cancer (kConFab) Psychosocial study. Facilitators and challenges in psychosocial adaptation were identified through semi-structured interviews. The women, who were either tested (carriers or non-carriers of breast cancer susceptibility mutations) or untested (ineligible for testing or eligible but delayed or declined testing), described personal, support network and healthcare characteristics that impacted on the adaptation process. Challenges in one domain could be overcome by facilitators in other domains and key differences relating to whether women had undergone testing, or not, were identified. Tested and untested women with an increased familial risk of breast cancer may benefit from support tailored to their mutation testing status in order to enhance adaptation. | |
| 540 | |a National Society of Genetic Counselors, Inc., 2015 | ||
| 690 | 7 | |a Breast cancer |2 nationallicence | |
| 690 | 7 | |a Genetic testing |2 nationallicence | |
| 690 | 7 | |a Psychosocial adaptation |2 nationallicence | |
| 690 | 7 | |a Declined |2 nationallicence | |
| 690 | 7 | |a Delayed |2 nationallicence | |
| 690 | 7 | |a Ineligible for testing |2 nationallicence | |
| 690 | 7 | |a Qualitative |2 nationallicence | |
| 700 | 1 | |a Heiniger |D Louise |u Psycho-Oncology Cooperative Research Group (PoCoG), University of Sydney, Level 6 North, Chris O'Brien Lifehouse (C39Z), 2006, Sydney, NSW, Australia |4 aut | |
| 700 | 1 | |a Price |D Melanie |u Psycho-Oncology Cooperative Research Group (PoCoG), University of Sydney, Level 6 North, Chris O'Brien Lifehouse (C39Z), 2006, Sydney, NSW, Australia |4 aut | |
| 700 | 1 | |a Charles |D Margaret |u School of Psychology, University of Sydney, 2006, Sydney, NSW, Australia |4 aut | |
| 700 | 1 | |a Butow |D Phyllis |u Psycho-Oncology Cooperative Research Group (PoCoG), University of Sydney, Level 6 North, Chris O'Brien Lifehouse (C39Z), 2006, Sydney, NSW, Australia |4 aut | |
| 773 | 0 | |t Journal of Genetic Counseling |d Springer US; http://www.springer-ny.com |g 24/6(2015-12-01), 890-907 |x 1059-7700 |q 24:6<890 |1 2015 |2 24 |o 10897 | |
| 856 | 4 | 0 | |u https://doi.org/10.1007/s10897-015-9824-x |q text/html |z Onlinezugriff via DOI |
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| 900 | 7 | |a Metadata rights reserved |b Springer special CC-BY-NC licence |2 nationallicence | |
| 908 | |D 1 |a research-article |2 jats | ||
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| 950 | |B NATIONALLICENCE |P 856 |E 40 |u https://doi.org/10.1007/s10897-015-9824-x |q text/html |z Onlinezugriff via DOI | ||
| 950 | |B NATIONALLICENCE |P 700 |E 1- |a Heiniger |D Louise |u Psycho-Oncology Cooperative Research Group (PoCoG), University of Sydney, Level 6 North, Chris O'Brien Lifehouse (C39Z), 2006, Sydney, NSW, Australia |4 aut | ||
| 950 | |B NATIONALLICENCE |P 700 |E 1- |a Price |D Melanie |u Psycho-Oncology Cooperative Research Group (PoCoG), University of Sydney, Level 6 North, Chris O'Brien Lifehouse (C39Z), 2006, Sydney, NSW, Australia |4 aut | ||
| 950 | |B NATIONALLICENCE |P 700 |E 1- |a Charles |D Margaret |u School of Psychology, University of Sydney, 2006, Sydney, NSW, Australia |4 aut | ||
| 950 | |B NATIONALLICENCE |P 700 |E 1- |a Butow |D Phyllis |u Psycho-Oncology Cooperative Research Group (PoCoG), University of Sydney, Level 6 North, Chris O'Brien Lifehouse (C39Z), 2006, Sydney, NSW, Australia |4 aut | ||
| 950 | |B NATIONALLICENCE |P 773 |E 0- |t Journal of Genetic Counseling |d Springer US; http://www.springer-ny.com |g 24/6(2015-12-01), 890-907 |x 1059-7700 |q 24:6<890 |1 2015 |2 24 |o 10897 | ||