caa a22 4500 605544433 CHVBK 20210128100931.0 cr unu---uuuuu 210128e20151201xx s 000 0 eng 10.1007/s10897-015-9824-x doi (NATIONALLICENCE)springer-10.1007/s10897-015-9824-x Facilitators and Challenges in Psychosocial Adaptation to Being at Increased Familial Risk of Breast Cancer [Elektronische Daten] [Louise Heiniger, Melanie Price, Margaret Charles, Phyllis Butow] Little is known about the process of psychosocial adaptation to familial risk in tested and untested individuals at increased familial risk of cancer. This paper presents findings from a qualitative study of 36 women participating in the Kathleen Cuningham Consortium for Research into Familial Breast cancer (kConFab) Psychosocial study. Facilitators and challenges in psychosocial adaptation were identified through semi-structured interviews. The women, who were either tested (carriers or non-carriers of breast cancer susceptibility mutations) or untested (ineligible for testing or eligible but delayed or declined testing), described personal, support network and healthcare characteristics that impacted on the adaptation process. Challenges in one domain could be overcome by facilitators in other domains and key differences relating to whether women had undergone testing, or not, were identified. Tested and untested women with an increased familial risk of breast cancer may benefit from support tailored to their mutation testing status in order to enhance adaptation. National Society of Genetic Counselors, Inc., 2015 Breast cancer nationallicence Genetic testing nationallicence Psychosocial adaptation nationallicence Declined nationallicence Delayed nationallicence Ineligible for testing nationallicence Qualitative nationallicence Heiniger Louise Psycho-Oncology Cooperative Research Group (PoCoG), University of Sydney, Level 6 North, Chris O'Brien Lifehouse (C39Z), 2006, Sydney, NSW, Australia aut Price Melanie Psycho-Oncology Cooperative Research Group (PoCoG), University of Sydney, Level 6 North, Chris O'Brien Lifehouse (C39Z), 2006, Sydney, NSW, Australia aut Charles Margaret School of Psychology, University of Sydney, 2006, Sydney, NSW, Australia aut Butow Phyllis Psycho-Oncology Cooperative Research Group (PoCoG), University of Sydney, Level 6 North, Chris O'Brien Lifehouse (C39Z), 2006, Sydney, NSW, Australia aut Journal of Genetic Counseling Springer US; http://www.springer-ny.com 24/6(2015-12-01), 890-907 1059-7700 24:6<890 2015 24 10897 https://doi.org/10.1007/s10897-015-9824-x text/html Onlinezugriff via DOI BK010053 XK010053 XK010000 Metadata rights reserved Springer special CC-BY-NC licence nationallicence 1 research-article jats NATIONALLICENCE NATIONALLICENCE NL-springer NATIONALLICENCE 856 40 https://doi.org/10.1007/s10897-015-9824-x text/html Onlinezugriff via DOI NATIONALLICENCE 700 1- Heiniger Louise Psycho-Oncology Cooperative Research Group (PoCoG), University of Sydney, Level 6 North, Chris O'Brien Lifehouse (C39Z), 2006, Sydney, NSW, Australia aut NATIONALLICENCE 700 1- Price Melanie Psycho-Oncology Cooperative Research Group (PoCoG), University of Sydney, Level 6 North, Chris O'Brien Lifehouse (C39Z), 2006, Sydney, NSW, Australia aut NATIONALLICENCE 700 1- Charles Margaret School of Psychology, University of Sydney, 2006, Sydney, NSW, Australia aut NATIONALLICENCE 700 1- Butow Phyllis Psycho-Oncology Cooperative Research Group (PoCoG), University of Sydney, Level 6 North, Chris O'Brien Lifehouse (C39Z), 2006, Sydney, NSW, Australia aut NATIONALLICENCE 773 0- Journal of Genetic Counseling Springer US; http://www.springer-ny.com 24/6(2015-12-01), 890-907 1059-7700 24:6<890 2015 24 10897