caa a22 4500 605544441 CHVBK 20210128100931.0 cr unu---uuuuu 210128e20151201xx s 000 0 eng 10.1007/s10897-015-9839-3 doi (NATIONALLICENCE)springer-10.1007/s10897-015-9839-3 Knowledge, Attitudes, and Practice Regarding Genetic Testing and Genetic Counselors in Jordan: A Population-Based Survey [Elektronische Daten] [Mamoun Ahram, Majd Soubani, Lana Abu Salem, Haneen Saker, Muayyad Ahmad] Genetic testing has a potential in the prevention of genetic diseases, particularly in communities with high rates of consanguineous marriage. Therefore, knowledge, practice, and attitudes of the public in Jordan regarding genetic testing were investigated. Individuals (N = 3,196) were questioned about the concepts of genetic testing and genetic counselors, if they underwent any genetic tests, the type of test, the method of consenting to the test, as well as their level of satisfaction with the privacy of the genetic testing service. The likelihood of pursuing predictive genetic testing for cancer was also investigated. Although almost 70% of respondents knew the term "genetic testing,” only 18% had undergone genetic testing, primarily the mandatory premarital test. In addition, there was a lack of general knowledge about genetic counselors. Many of those who had genetic testing (45%) indicated they did not go through a consent process, and a lack of consent was significantly related to dissatisfaction with the privacy of the service. Approximately 55% of respondents indicated they would potentially pursue predictive genetic testing for cancer. Going for routine health checkups was not significantly correlated with either actual or potential uptake of genetic testing, suggesting health care providers do not play an influential role in patients' testing decisions. Our results show a gap between the knowledge and uptake of genetic testing and may help to guide the design of effective strategies to initiate successful genetic counseling and testing services. National Society of Genetic Counselors, Inc., 2015 Genetic testing nationallicence Genetic counselors nationallicence Cancer nationallicence Jordan nationallicence Quantitative research nationallicence Ahram Mamoun Department of Physiology and Biochemistry, Faculty of Medicine, The University of Jordan, 11942, Amman, Jordan aut Soubani Majd Department of Physiology and Biochemistry, Faculty of Medicine, The University of Jordan, 11942, Amman, Jordan aut Abu Salem Lana Department of Physiology and Biochemistry, Faculty of Medicine, The University of Jordan, 11942, Amman, Jordan aut Saker Haneen Department of Physiology and Biochemistry, Faculty of Medicine, The University of Jordan, 11942, Amman, Jordan aut Ahmad Muayyad Department of Clinical Nursing, Faculty of Nursing, The University of Jordan, Amman, Jordan aut Journal of Genetic Counseling Springer US; http://www.springer-ny.com 24/6(2015-12-01), 1001-1010 1059-7700 24:6<1001 2015 24 10897 https://doi.org/10.1007/s10897-015-9839-3 text/html Onlinezugriff via DOI BK010053 XK010053 XK010000 Metadata rights reserved Springer special CC-BY-NC licence nationallicence 1 research-article jats NATIONALLICENCE NATIONALLICENCE NL-springer NATIONALLICENCE 856 40 https://doi.org/10.1007/s10897-015-9839-3 text/html Onlinezugriff via DOI NATIONALLICENCE 700 1- Ahram Mamoun Department of Physiology and Biochemistry, Faculty of Medicine, The University of Jordan, 11942, Amman, Jordan aut NATIONALLICENCE 700 1- Soubani Majd Department of Physiology and Biochemistry, Faculty of Medicine, The University of Jordan, 11942, Amman, Jordan aut NATIONALLICENCE 700 1- Abu Salem Lana Department of Physiology and Biochemistry, Faculty of Medicine, The University of Jordan, 11942, Amman, Jordan aut NATIONALLICENCE 700 1- Saker Haneen Department of Physiology and Biochemistry, Faculty of Medicine, The University of Jordan, 11942, Amman, Jordan aut NATIONALLICENCE 700 1- Ahmad Muayyad Department of Clinical Nursing, Faculty of Nursing, The University of Jordan, Amman, Jordan aut NATIONALLICENCE 773 0- Journal of Genetic Counseling Springer US; http://www.springer-ny.com 24/6(2015-12-01), 1001-1010 1059-7700 24:6<1001 2015 24 10897