Perceptions of Tissue Storage in a Dementia Population Among Spouses and Offspring
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| 024 | 7 | 0 | |a 10.1007/s10897-015-9818-8 |2 doi |
| 035 | |a (NATIONALLICENCE)springer-10.1007/s10897-015-9818-8 | ||
| 245 | 0 | 0 | |a Perceptions of Tissue Storage in a Dementia Population Among Spouses and Offspring |h [Elektronische Daten] |c [Megan Martin, Erin Rothwell, Vickie Venne, Norman Foster] |
| 520 | 3 | |a Cognitively impaired patients with dementia often rely on health advocates or guardians, such as spouses or adult offspring, to consent for medical procedures. These family members may also decide whether an autopsy is performed after death or whether their family member donates tissues. However, spouses are not genetically related to the patient and may have different perspectives than genetically related family members when making medical decisions with genetic implications, such as participation in a tissue repository (biobank). Interviews were conducted with spouses and adult offspring of individuals with a progressive dementing disease. Both spouses and offspring were supportive of the patient with dementia to participate in tissue storage. The top perceived benefits of tissue storage in both offspring and spouses were future value for family members and advancement of medical knowledge. Concerns included misuse of the tissue and insurance discrimination. Although the personal genetic implications differ between spouses and offspring, they share similar attitudes about the importance of tissue banking for the individual with a dementing disease. | |
| 540 | |a National Society of Genetic Counselors, Inc., 2015 | ||
| 690 | 7 | |a Dementia |2 nationallicence | |
| 690 | 7 | |a Surrogate Decision Making |2 nationallicence | |
| 690 | 7 | |a Alzheimer Disease |2 nationallicence | |
| 690 | 7 | |a Tissue Storage |2 nationallicence | |
| 690 | 7 | |a Biobank |2 nationallicence | |
| 690 | 7 | |a Autopsy |2 nationallicence | |
| 700 | 1 | |a Martin |D Megan |u Clinical Services, Lineagen, Inc., 2677 E Parleys Way, 84109, Salt Lake City, UT, USA |4 aut | |
| 700 | 1 | |a Rothwell |D Erin |u University of Utah College of Nursing, Salt Lake City, UT, USA |4 aut | |
| 700 | 1 | |a Venne |D Vickie |u Department of Veterans Affairs, Salt Lake City, UT, USA |4 aut | |
| 700 | 1 | |a Foster |D Norman |u Center for Alzheimers Care, Imaging, and Research, Department of Neurology, University of Utah, Salt Lake City, UT, USA |4 aut | |
| 773 | 0 | |t Journal of Genetic Counseling |d Springer US; http://www.springer-ny.com |g 24/3(2015-06-01), 503-511 |x 1059-7700 |q 24:3<503 |1 2015 |2 24 |o 10897 | |
| 856 | 4 | 0 | |u https://doi.org/10.1007/s10897-015-9818-8 |q text/html |z Onlinezugriff via DOI |
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| 900 | 7 | |a Metadata rights reserved |b Springer special CC-BY-NC licence |2 nationallicence | |
| 908 | |D 1 |a research-article |2 jats | ||
| 949 | |B NATIONALLICENCE |F NATIONALLICENCE |b NL-springer | ||
| 950 | |B NATIONALLICENCE |P 856 |E 40 |u https://doi.org/10.1007/s10897-015-9818-8 |q text/html |z Onlinezugriff via DOI | ||
| 950 | |B NATIONALLICENCE |P 700 |E 1- |a Martin |D Megan |u Clinical Services, Lineagen, Inc., 2677 E Parleys Way, 84109, Salt Lake City, UT, USA |4 aut | ||
| 950 | |B NATIONALLICENCE |P 700 |E 1- |a Rothwell |D Erin |u University of Utah College of Nursing, Salt Lake City, UT, USA |4 aut | ||
| 950 | |B NATIONALLICENCE |P 700 |E 1- |a Venne |D Vickie |u Department of Veterans Affairs, Salt Lake City, UT, USA |4 aut | ||
| 950 | |B NATIONALLICENCE |P 700 |E 1- |a Foster |D Norman |u Center for Alzheimers Care, Imaging, and Research, Department of Neurology, University of Utah, Salt Lake City, UT, USA |4 aut | ||
| 950 | |B NATIONALLICENCE |P 773 |E 0- |t Journal of Genetic Counseling |d Springer US; http://www.springer-ny.com |g 24/3(2015-06-01), 503-511 |x 1059-7700 |q 24:3<503 |1 2015 |2 24 |o 10897 | ||