Public Awareness of Genetic Nondiscrimination Laws in Four States and Perceived Importance of Life Insurance Protections
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| 024 | 7 | 0 | |a 10.1007/s10897-014-9771-y |2 doi |
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| 245 | 0 | 0 | |a Public Awareness of Genetic Nondiscrimination Laws in Four States and Perceived Importance of Life Insurance Protections |h [Elektronische Daten] |c [Alicia Parkman, Joan Foland, Beth Anderson, Debra Duquette, Holly Sobotka, Mary Lynn, Shelley Nottingham, William Dotson, Katherine Kolor, Summer Cox] |
| 520 | 3 | |a Genetic testing has grown dramatically in the past decade and is becoming an integral part of health care. Genetic nondiscrimination laws have been passed in many states, and the Genetic Information Nondiscrimination Act (GINA) was passed at the federal level in 2008. These laws generally protect individuals from discrimination by health insurers or employers based on genetic information, including test results. In 2010, Connecticut, Michigan, Ohio, and Oregon added four questions to their Behavioral Risk Factor Surveillance System (BRFSS) survey to assess interest in genetic testing, awareness of genetic nondiscrimination laws, concern about genetic discrimination in determining life insurance eligibility and cost, and perceived importance of genetic nondiscrimination laws that address life insurance. Survey results showed that awareness of genetic nondiscrimination laws was low (less than 20% of the adult population), while perceived importance of these types of laws was high (over 80% of respondents rated them as very or somewhat important). Over two-thirds of respondents indicated they were very or somewhat concerned about life insurance companies using genetic test results to determine life insurance coverage and costs. Results indicate a need for more public education to raise awareness of protections provided through current genetic nondiscrimination laws. The high rate of concern about life insurance discrimination indicates an additional need for continued dialogue regarding the extent of legal protections in genetic nondiscrimination laws. | |
| 540 | |a National Society of Genetic Counselors, Inc., 2014 | ||
| 690 | 7 | |a GINA |2 nationallicence | |
| 690 | 7 | |a Genetic discrimination |2 nationallicence | |
| 690 | 7 | |a Genetic privacy |2 nationallicence | |
| 690 | 7 | |a Insurance |2 nationallicence | |
| 690 | 7 | |a Regulation |2 nationallicence | |
| 700 | 1 | |a Parkman |D Alicia |u Genetics Program, Oregon Public Health Division, 800 NE Oregon St, Ste 370, 97232, Portland, OR, USA |4 aut | |
| 700 | 1 | |a Foland |D Joan |u Genomics Office, Connecticut Department of Public Health, Hartford, CT, USA |4 aut | |
| 700 | 1 | |a Anderson |D Beth |u Cancer Genomics, Michigan Department of Community Health, Lansing, MI, USA |4 aut | |
| 700 | 1 | |a Duquette |D Debra |u Cancer Genomics, Michigan Department of Community Health, Lansing, MI, USA |4 aut | |
| 700 | 1 | |a Sobotka |D Holly |u Chronic Disease and Behavioral Epidemiology Program, Ohio Department of Health, Columbus, OH, USA |4 aut | |
| 700 | 1 | |a Lynn |D Mary |u Comprehensive Cancer Control Program, Ohio Department of Health, Columbus, OH, USA |4 aut | |
| 700 | 1 | |a Nottingham |D Shelley |u Genetics Program, Ohio Department of Health, Columbus, OH, USA |4 aut | |
| 700 | 1 | |a Dotson |D William |u Office of Public Health Genomics, Centers for Disease Control and Prevention, Atlanta, GA, USA |4 aut | |
| 700 | 1 | |a Kolor |D Katherine |u Office of Public Health Genomics, Centers for Disease Control and Prevention, Atlanta, GA, USA |4 aut | |
| 700 | 1 | |a Cox |D Summer |u Genetics Program, Oregon Public Health Division, 800 NE Oregon St, Ste 370, 97232, Portland, OR, USA |4 aut | |
| 773 | 0 | |t Journal of Genetic Counseling |d Springer US; http://www.springer-ny.com |g 24/3(2015-06-01), 512-521 |x 1059-7700 |q 24:3<512 |1 2015 |2 24 |o 10897 | |
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| 950 | |B NATIONALLICENCE |P 700 |E 1- |a Parkman |D Alicia |u Genetics Program, Oregon Public Health Division, 800 NE Oregon St, Ste 370, 97232, Portland, OR, USA |4 aut | ||
| 950 | |B NATIONALLICENCE |P 700 |E 1- |a Foland |D Joan |u Genomics Office, Connecticut Department of Public Health, Hartford, CT, USA |4 aut | ||
| 950 | |B NATIONALLICENCE |P 700 |E 1- |a Anderson |D Beth |u Cancer Genomics, Michigan Department of Community Health, Lansing, MI, USA |4 aut | ||
| 950 | |B NATIONALLICENCE |P 700 |E 1- |a Duquette |D Debra |u Cancer Genomics, Michigan Department of Community Health, Lansing, MI, USA |4 aut | ||
| 950 | |B NATIONALLICENCE |P 700 |E 1- |a Sobotka |D Holly |u Chronic Disease and Behavioral Epidemiology Program, Ohio Department of Health, Columbus, OH, USA |4 aut | ||
| 950 | |B NATIONALLICENCE |P 700 |E 1- |a Lynn |D Mary |u Comprehensive Cancer Control Program, Ohio Department of Health, Columbus, OH, USA |4 aut | ||
| 950 | |B NATIONALLICENCE |P 700 |E 1- |a Nottingham |D Shelley |u Genetics Program, Ohio Department of Health, Columbus, OH, USA |4 aut | ||
| 950 | |B NATIONALLICENCE |P 700 |E 1- |a Dotson |D William |u Office of Public Health Genomics, Centers for Disease Control and Prevention, Atlanta, GA, USA |4 aut | ||
| 950 | |B NATIONALLICENCE |P 700 |E 1- |a Kolor |D Katherine |u Office of Public Health Genomics, Centers for Disease Control and Prevention, Atlanta, GA, USA |4 aut | ||
| 950 | |B NATIONALLICENCE |P 700 |E 1- |a Cox |D Summer |u Genetics Program, Oregon Public Health Division, 800 NE Oregon St, Ste 370, 97232, Portland, OR, USA |4 aut | ||
| 950 | |B NATIONALLICENCE |P 773 |E 0- |t Journal of Genetic Counseling |d Springer US; http://www.springer-ny.com |g 24/3(2015-06-01), 512-521 |x 1059-7700 |q 24:3<512 |1 2015 |2 24 |o 10897 | ||