caa a22 4500 605544581 CHVBK 20210128100932.0 cr unu---uuuuu 210128e20150601xx s 000 0 eng 10.1007/s10897-014-9771-y doi (NATIONALLICENCE)springer-10.1007/s10897-014-9771-y Public Awareness of Genetic Nondiscrimination Laws in Four States and Perceived Importance of Life Insurance Protections [Elektronische Daten] [Alicia Parkman, Joan Foland, Beth Anderson, Debra Duquette, Holly Sobotka, Mary Lynn, Shelley Nottingham, William Dotson, Katherine Kolor, Summer Cox] Genetic testing has grown dramatically in the past decade and is becoming an integral part of health care. Genetic nondiscrimination laws have been passed in many states, and the Genetic Information Nondiscrimination Act (GINA) was passed at the federal level in 2008. These laws generally protect individuals from discrimination by health insurers or employers based on genetic information, including test results. In 2010, Connecticut, Michigan, Ohio, and Oregon added four questions to their Behavioral Risk Factor Surveillance System (BRFSS) survey to assess interest in genetic testing, awareness of genetic nondiscrimination laws, concern about genetic discrimination in determining life insurance eligibility and cost, and perceived importance of genetic nondiscrimination laws that address life insurance. Survey results showed that awareness of genetic nondiscrimination laws was low (less than 20% of the adult population), while perceived importance of these types of laws was high (over 80% of respondents rated them as very or somewhat important). Over two-thirds of respondents indicated they were very or somewhat concerned about life insurance companies using genetic test results to determine life insurance coverage and costs. Results indicate a need for more public education to raise awareness of protections provided through current genetic nondiscrimination laws. The high rate of concern about life insurance discrimination indicates an additional need for continued dialogue regarding the extent of legal protections in genetic nondiscrimination laws. National Society of Genetic Counselors, Inc., 2014 GINA nationallicence Genetic discrimination nationallicence Genetic privacy nationallicence Insurance nationallicence Regulation nationallicence Parkman Alicia Genetics Program, Oregon Public Health Division, 800 NE Oregon St, Ste 370, 97232, Portland, OR, USA aut Foland Joan Genomics Office, Connecticut Department of Public Health, Hartford, CT, USA aut Anderson Beth Cancer Genomics, Michigan Department of Community Health, Lansing, MI, USA aut Duquette Debra Cancer Genomics, Michigan Department of Community Health, Lansing, MI, USA aut Sobotka Holly Chronic Disease and Behavioral Epidemiology Program, Ohio Department of Health, Columbus, OH, USA aut Lynn Mary Comprehensive Cancer Control Program, Ohio Department of Health, Columbus, OH, USA aut Nottingham Shelley Genetics Program, Ohio Department of Health, Columbus, OH, USA aut Dotson William Office of Public Health Genomics, Centers for Disease Control and Prevention, Atlanta, GA, USA aut Kolor Katherine Office of Public Health Genomics, Centers for Disease Control and Prevention, Atlanta, GA, USA aut Cox Summer Genetics Program, Oregon Public Health Division, 800 NE Oregon St, Ste 370, 97232, Portland, OR, USA aut Journal of Genetic Counseling Springer US; http://www.springer-ny.com 24/3(2015-06-01), 512-521 1059-7700 24:3<512 2015 24 10897 https://doi.org/10.1007/s10897-014-9771-y text/html Onlinezugriff via DOI BK010053 XK010053 XK010000 Metadata rights reserved Springer special CC-BY-NC licence nationallicence 1 research-article jats NATIONALLICENCE NATIONALLICENCE NL-springer NATIONALLICENCE 856 40 https://doi.org/10.1007/s10897-014-9771-y text/html Onlinezugriff via DOI NATIONALLICENCE 700 1- Parkman Alicia Genetics Program, Oregon Public Health Division, 800 NE Oregon St, Ste 370, 97232, Portland, OR, USA aut NATIONALLICENCE 700 1- Foland Joan Genomics Office, Connecticut Department of Public Health, Hartford, CT, USA aut NATIONALLICENCE 700 1- Anderson Beth Cancer Genomics, Michigan Department of Community Health, Lansing, MI, USA aut NATIONALLICENCE 700 1- Duquette Debra Cancer Genomics, Michigan Department of Community Health, Lansing, MI, USA aut NATIONALLICENCE 700 1- Sobotka Holly Chronic Disease and Behavioral Epidemiology Program, Ohio Department of Health, Columbus, OH, USA aut NATIONALLICENCE 700 1- Lynn Mary Comprehensive Cancer Control Program, Ohio Department of Health, Columbus, OH, USA aut NATIONALLICENCE 700 1- Nottingham Shelley Genetics Program, Ohio Department of Health, Columbus, OH, USA aut NATIONALLICENCE 700 1- Dotson William Office of Public Health Genomics, Centers for Disease Control and Prevention, Atlanta, GA, USA aut NATIONALLICENCE 700 1- Kolor Katherine Office of Public Health Genomics, Centers for Disease Control and Prevention, Atlanta, GA, USA aut NATIONALLICENCE 700 1- Cox Summer Genetics Program, Oregon Public Health Division, 800 NE Oregon St, Ste 370, 97232, Portland, OR, USA aut NATIONALLICENCE 773 0- Journal of Genetic Counseling Springer US; http://www.springer-ny.com 24/3(2015-06-01), 512-521 1059-7700 24:3<512 2015 24 10897