caa a22 4500 605544700 CHVBK 20210128100932.0 cr unu---uuuuu 210128e20150801xx s 000 0 eng 10.1007/s10897-014-9782-8 doi (NATIONALLICENCE)springer-10.1007/s10897-014-9782-8 Genetic Counseling for Indigenous Australians: an Exploratory Study from the Perspective of Genetic Health Professionals [Elektronische Daten] [Emma Kowal, Lyndon Gallacher, Ivan Macciocca, Margaret Sahhar] Indigenous populations are thought to have particularly low levels of access to genetic health services, and cultural issues may be a contributing factor. This article presents the findings of the first study of genetic health service provision to Indigenous Australians. This qualitative study aimed to identify elements of culturally-competent genetic health service provision in Indigenous Australian contexts. Twelve semi-structured interviews were conducted with genetic counselors and clinical geneticists from around Australia who had delivered services to Indigenous Australians. Participants were asked to describe their experiences and identify any collective cultural needs of Indigenous clients, as well as comment on specific training and resources they had received or used. Interviews were audio-recorded and transcribed with thematic analysis conducted on the data. The findings show that participants were reluctant to generalize the needs of Indigenous peoples. Some participants asserted that Indigenous peoples have needs that differ from the general population, while others felt that there were no collective cultural needs, instead advocating an individualized approach. Being flexible and practical, taking time to build rapport, recognizing different family structures and decision-making processes, as well as socio-economic disadvantage were all identified as important factors in participants' interactions with Indigenous clients. Indigenous support workers and hospital liaison officers were seen as valuable resources for effective service provision. The implications of this study for training and practice are discussed. National Society of Genetic Counselors, Inc., 2014 Genetic counseling nationallicence Indigenous Australians nationallicence Aboriginal and Torres Strait Islanders nationallicence Culture nationallicence Genetic health services nationallicence Access nationallicence Cultural competence nationallicence Kowal Emma Centre for Citizenship and Globalisation, Deakin University, 3125, Burwood, Victoria, Australia aut Gallacher Lyndon Department of Paediatrics, The University of Melbourne, Royal Children's Hospital, 3052, Parkville, Victoria, Australia aut Macciocca Ivan Victorian Clinical Genetics Services, Murdoch Childrens Research Institute, Royal Children's Hospital, 3052, Parkville, Victoria, Australia aut Sahhar Margaret Department of Paediatrics, The University of Melbourne, Royal Children's Hospital, 3052, Parkville, Victoria, Australia aut Journal of Genetic Counseling Springer US; http://www.springer-ny.com 24/4(2015-08-01), 597-607 1059-7700 24:4<597 2015 24 10897 https://doi.org/10.1007/s10897-014-9782-8 text/html Onlinezugriff via DOI BK010053 XK010053 XK010000 Metadata rights reserved Springer special CC-BY-NC licence nationallicence 1 research-article jats NATIONALLICENCE NATIONALLICENCE NL-springer NATIONALLICENCE 856 40 https://doi.org/10.1007/s10897-014-9782-8 text/html Onlinezugriff via DOI NATIONALLICENCE 700 1- Kowal Emma Centre for Citizenship and Globalisation, Deakin University, 3125, Burwood, Victoria, Australia aut NATIONALLICENCE 700 1- Gallacher Lyndon Department of Paediatrics, The University of Melbourne, Royal Children's Hospital, 3052, Parkville, Victoria, Australia aut NATIONALLICENCE 700 1- Macciocca Ivan Victorian Clinical Genetics Services, Murdoch Childrens Research Institute, Royal Children's Hospital, 3052, Parkville, Victoria, Australia aut NATIONALLICENCE 700 1- Sahhar Margaret Department of Paediatrics, The University of Melbourne, Royal Children's Hospital, 3052, Parkville, Victoria, Australia aut NATIONALLICENCE 773 0- Journal of Genetic Counseling Springer US; http://www.springer-ny.com 24/4(2015-08-01), 597-607 1059-7700 24:4<597 2015 24 10897