Perceptions of Latinas on the Traditional Prenatal Genetic Counseling Model

Verfasser / Beitragende:
[Stephanie Thompson, Sarah Noblin, Jennifer Lemons, Susan Peterson, Carlos Carreno, Andrea Harbison]
Ort, Verlag, Jahr:
2015
Enthalten in:
Journal of Genetic Counseling, 24/4(2015-08-01), 675-682
Format:
Artikel (online)
ID: 605544727
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024 7 0 |a 10.1007/s10897-014-9797-1  |2 doi 
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245 0 0 |a Perceptions of Latinas on the Traditional Prenatal Genetic Counseling Model  |h [Elektronische Daten]  |c [Stephanie Thompson, Sarah Noblin, Jennifer Lemons, Susan Peterson, Carlos Carreno, Andrea Harbison] 
520 3 |a The traditional genetic counseling model encompasses an individualized counseling session that includes the presentation of information about genes, chromosomes, personalized risk assessment, and genetic testing and screening options. Counselors are challenged to balance the provision of enough basic genetic information to ensure clients' understanding of the genetic condition in question with a personalized discussion of what this information means to them. This study explored the perceptions Latinas have about prenatal genetic counseling sessions and aimed to determine if they had preferences about the delivery of care. Data were collected through focus groups and one-on-one, semi-structured interviews of 25 Spanish speaking Latinas who received genetic counseling during their current pregnancy. We implemented grounded theory to evaluate participant responses, and were able to identify common emergent themes. Several themes were identified including an overall satisfaction with their prenatal genetic counseling appointment, desire for a healthy baby, peace of mind following their appointment, lack of desire for invasive testing, and faith in God. Several participants stated a preference for group genetic counseling over the traditional individual genetic counseling model. Our data indicate that Latinas value the information presented at prenatal genetic counseling appointments despite disinterest in pursuing genetic testing or screening and suggest that group prenatal genetic counseling may be an effective alternative to the traditional genetic counseling model in the Latina population. 
540 |a National Society of Genetic Counselors, Inc., 2014 
690 7 |a Prenatal genetic counseling  |2 nationallicence 
690 7 |a Traditional model  |2 nationallicence 
690 7 |a Group model  |2 nationallicence 
690 7 |a Latinas  |2 nationallicence 
690 7 |a Satisfaction  |2 nationallicence 
700 1 |a Thompson  |D Stephanie  |u Genetic Counseling Program, The University of Texas Graduate School of Biomedical Science at Houston, 77030, Houston, TX, USA  |4 aut 
700 1 |a Noblin  |D Sarah  |u Genetic Counseling Program, The University of Texas Graduate School of Biomedical Science at Houston, 77030, Houston, TX, USA  |4 aut 
700 1 |a Lemons  |D Jennifer  |u Genetic Counseling Program, The University of Texas Graduate School of Biomedical Science at Houston, 77030, Houston, TX, USA  |4 aut 
700 1 |a Peterson  |D Susan  |u Genetic Counseling Program, The University of Texas Graduate School of Biomedical Science at Houston, 77030, Houston, TX, USA  |4 aut 
700 1 |a Carreno  |D Carlos  |u Obstetrics, Gynecology, and Reproductive Sciences, The University of Texas Graduate School of Biomedical Sciences at Houston, 77030, Houston, TX, USA  |4 aut 
700 1 |a Harbison  |D Andrea  |u Genetic Counseling Program, The University of Texas Graduate School of Biomedical Science at Houston, 77030, Houston, TX, USA  |4 aut 
773 0 |t Journal of Genetic Counseling  |d Springer US; http://www.springer-ny.com  |g 24/4(2015-08-01), 675-682  |x 1059-7700  |q 24:4<675  |1 2015  |2 24  |o 10897 
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900 7 |a Metadata rights reserved  |b Springer special CC-BY-NC licence  |2 nationallicence 
908 |D 1  |a research-article  |2 jats 
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950 |B NATIONALLICENCE  |P 700  |E 1-  |a Thompson  |D Stephanie  |u Genetic Counseling Program, The University of Texas Graduate School of Biomedical Science at Houston, 77030, Houston, TX, USA  |4 aut 
950 |B NATIONALLICENCE  |P 700  |E 1-  |a Noblin  |D Sarah  |u Genetic Counseling Program, The University of Texas Graduate School of Biomedical Science at Houston, 77030, Houston, TX, USA  |4 aut 
950 |B NATIONALLICENCE  |P 700  |E 1-  |a Lemons  |D Jennifer  |u Genetic Counseling Program, The University of Texas Graduate School of Biomedical Science at Houston, 77030, Houston, TX, USA  |4 aut 
950 |B NATIONALLICENCE  |P 700  |E 1-  |a Peterson  |D Susan  |u Genetic Counseling Program, The University of Texas Graduate School of Biomedical Science at Houston, 77030, Houston, TX, USA  |4 aut 
950 |B NATIONALLICENCE  |P 700  |E 1-  |a Carreno  |D Carlos  |u Obstetrics, Gynecology, and Reproductive Sciences, The University of Texas Graduate School of Biomedical Sciences at Houston, 77030, Houston, TX, USA  |4 aut 
950 |B NATIONALLICENCE  |P 700  |E 1-  |a Harbison  |D Andrea  |u Genetic Counseling Program, The University of Texas Graduate School of Biomedical Science at Houston, 77030, Houston, TX, USA  |4 aut 
950 |B NATIONALLICENCE  |P 773  |E 0-  |t Journal of Genetic Counseling  |d Springer US; http://www.springer-ny.com  |g 24/4(2015-08-01), 675-682  |x 1059-7700  |q 24:4<675  |1 2015  |2 24  |o 10897