Family Communication in a Population at Risk for Hypertrophic Cardiomyopathy
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| 024 | 7 | 0 | |a 10.1007/s10897-014-9774-8 |2 doi |
| 035 | |a (NATIONALLICENCE)springer-10.1007/s10897-014-9774-8 | ||
| 245 | 0 | 0 | |a Family Communication in a Population at Risk for Hypertrophic Cardiomyopathy |h [Elektronische Daten] |c [Brittany Batte, Jane Sheldon, Patricia Arscott, Darcy Huismann, Lisa Salberg, Sharlene Day, Beverly Yashar] |
| 520 | 3 | |a Encouraging family communication is an integral component of genetic counseling; therefore, we sought to identify factors impacting communication to family members at risk for Hypertrophic Cardiomyopathy (HCM). Participants (N = 383) completed an online survey assessing: 1) demographics (gender, genetic test results, HCM family history, and disease severity); 2) illness representations; 3) family functioning and cohesiveness; 4) coping styles; 5) comprehension of HCM autosomal dominant inheritance; and 6) communication of HCM risk information to at-risk relatives. Participants were a national sample of individuals with HCM, recruited through the Hypertrophic Cardiomyopathy Association. Data from 183 participants were analyzed using a logistic regression analysis, with family communication as a dichotomous dependent variable. We found that female gender and higher comprehension of autosomal dominant inheritance were significant predictors of participants' communication of HCM risk information to all their siblings and children. Our results suggest that utilizing interventions that promote patient comprehension (e.g., a teaching-focused model of genetic counseling) are important and may positively impact family communication within families with HCM. | |
| 540 | |a National Society of Genetic Counselors, Inc., 2014 | ||
| 690 | 7 | |a Family Communication |2 nationallicence | |
| 690 | 7 | |a Hypertrophic Cardiomyopathy |2 nationallicence | |
| 690 | 7 | |a Risk Information |2 nationallicence | |
| 690 | 7 | |a Gender |2 nationallicence | |
| 690 | 7 | |a Genetic Comprehension |2 nationallicence | |
| 690 | 7 | |a Genetic Counseling |2 nationallicence | |
| 700 | 1 | |a Batte |D Brittany |u Department of Human Genetics, University of Michigan, Ann Arbor, MI, USA |4 aut | |
| 700 | 1 | |a Sheldon |D Jane |u Department of Behavioral Sciences, University of Michigan-Dearborn, Dearborn, MI, USA |4 aut | |
| 700 | 1 | |a Arscott |D Patricia |u Department of Internal Medicine, University of Michigan, Ann Arbor, MI, USA |4 aut | |
| 700 | 1 | |a Huismann |D Darcy |u Adult Genetics Clinic, University of Colorado Hospital, Aurora, CO, USA |4 aut | |
| 700 | 1 | |a Salberg |D Lisa |u Hypertrophic Cardiomyopathy Association, Hibernia, NJ, USA |4 aut | |
| 700 | 1 | |a Day |D Sharlene |u Department of Internal Medicine, University of Michigan, Ann Arbor, MI, USA |4 aut | |
| 700 | 1 | |a Yashar |D Beverly |u Department of Human Genetics, University of Michigan, Ann Arbor, MI, USA |4 aut | |
| 773 | 0 | |t Journal of Genetic Counseling |d Springer US; http://www.springer-ny.com |g 24/2(2015-04-01), 336-348 |x 1059-7700 |q 24:2<336 |1 2015 |2 24 |o 10897 | |
| 856 | 4 | 0 | |u https://doi.org/10.1007/s10897-014-9774-8 |q text/html |z Onlinezugriff via DOI |
| 898 | |a BK010053 |b XK010053 |c XK010000 | ||
| 900 | 7 | |a Metadata rights reserved |b Springer special CC-BY-NC licence |2 nationallicence | |
| 908 | |D 1 |a research-article |2 jats | ||
| 949 | |B NATIONALLICENCE |F NATIONALLICENCE |b NL-springer | ||
| 950 | |B NATIONALLICENCE |P 856 |E 40 |u https://doi.org/10.1007/s10897-014-9774-8 |q text/html |z Onlinezugriff via DOI | ||
| 950 | |B NATIONALLICENCE |P 700 |E 1- |a Batte |D Brittany |u Department of Human Genetics, University of Michigan, Ann Arbor, MI, USA |4 aut | ||
| 950 | |B NATIONALLICENCE |P 700 |E 1- |a Sheldon |D Jane |u Department of Behavioral Sciences, University of Michigan-Dearborn, Dearborn, MI, USA |4 aut | ||
| 950 | |B NATIONALLICENCE |P 700 |E 1- |a Arscott |D Patricia |u Department of Internal Medicine, University of Michigan, Ann Arbor, MI, USA |4 aut | ||
| 950 | |B NATIONALLICENCE |P 700 |E 1- |a Huismann |D Darcy |u Adult Genetics Clinic, University of Colorado Hospital, Aurora, CO, USA |4 aut | ||
| 950 | |B NATIONALLICENCE |P 700 |E 1- |a Salberg |D Lisa |u Hypertrophic Cardiomyopathy Association, Hibernia, NJ, USA |4 aut | ||
| 950 | |B NATIONALLICENCE |P 700 |E 1- |a Day |D Sharlene |u Department of Internal Medicine, University of Michigan, Ann Arbor, MI, USA |4 aut | ||
| 950 | |B NATIONALLICENCE |P 700 |E 1- |a Yashar |D Beverly |u Department of Human Genetics, University of Michigan, Ann Arbor, MI, USA |4 aut | ||
| 950 | |B NATIONALLICENCE |P 773 |E 0- |t Journal of Genetic Counseling |d Springer US; http://www.springer-ny.com |g 24/2(2015-04-01), 336-348 |x 1059-7700 |q 24:2<336 |1 2015 |2 24 |o 10897 | ||