caa a22 4500 605544964 CHVBK 20210128100933.0 cr unu---uuuuu 210128e20150401xx s 000 0 eng 10.1007/s10897-014-9774-8 doi (NATIONALLICENCE)springer-10.1007/s10897-014-9774-8 Family Communication in a Population at Risk for Hypertrophic Cardiomyopathy [Elektronische Daten] [Brittany Batte, Jane Sheldon, Patricia Arscott, Darcy Huismann, Lisa Salberg, Sharlene Day, Beverly Yashar] Encouraging family communication is an integral component of genetic counseling; therefore, we sought to identify factors impacting communication to family members at risk for Hypertrophic Cardiomyopathy (HCM). Participants (N = 383) completed an online survey assessing: 1) demographics (gender, genetic test results, HCM family history, and disease severity); 2) illness representations; 3) family functioning and cohesiveness; 4) coping styles; 5) comprehension of HCM autosomal dominant inheritance; and 6) communication of HCM risk information to at-risk relatives. Participants were a national sample of individuals with HCM, recruited through the Hypertrophic Cardiomyopathy Association. Data from 183 participants were analyzed using a logistic regression analysis, with family communication as a dichotomous dependent variable. We found that female gender and higher comprehension of autosomal dominant inheritance were significant predictors of participants' communication of HCM risk information to all their siblings and children. Our results suggest that utilizing interventions that promote patient comprehension (e.g., a teaching-focused model of genetic counseling) are important and may positively impact family communication within families with HCM. National Society of Genetic Counselors, Inc., 2014 Family Communication nationallicence Hypertrophic Cardiomyopathy nationallicence Risk Information nationallicence Gender nationallicence Genetic Comprehension nationallicence Genetic Counseling nationallicence Batte Brittany Department of Human Genetics, University of Michigan, Ann Arbor, MI, USA aut Sheldon Jane Department of Behavioral Sciences, University of Michigan-Dearborn, Dearborn, MI, USA aut Arscott Patricia Department of Internal Medicine, University of Michigan, Ann Arbor, MI, USA aut Huismann Darcy Adult Genetics Clinic, University of Colorado Hospital, Aurora, CO, USA aut Salberg Lisa Hypertrophic Cardiomyopathy Association, Hibernia, NJ, USA aut Day Sharlene Department of Internal Medicine, University of Michigan, Ann Arbor, MI, USA aut Yashar Beverly Department of Human Genetics, University of Michigan, Ann Arbor, MI, USA aut Journal of Genetic Counseling Springer US; http://www.springer-ny.com 24/2(2015-04-01), 336-348 1059-7700 24:2<336 2015 24 10897 https://doi.org/10.1007/s10897-014-9774-8 text/html Onlinezugriff via DOI BK010053 XK010053 XK010000 Metadata rights reserved Springer special CC-BY-NC licence nationallicence 1 research-article jats NATIONALLICENCE NATIONALLICENCE NL-springer NATIONALLICENCE 856 40 https://doi.org/10.1007/s10897-014-9774-8 text/html Onlinezugriff via DOI NATIONALLICENCE 700 1- Batte Brittany Department of Human Genetics, University of Michigan, Ann Arbor, MI, USA aut NATIONALLICENCE 700 1- Sheldon Jane Department of Behavioral Sciences, University of Michigan-Dearborn, Dearborn, MI, USA aut NATIONALLICENCE 700 1- Arscott Patricia Department of Internal Medicine, University of Michigan, Ann Arbor, MI, USA aut NATIONALLICENCE 700 1- Huismann Darcy Adult Genetics Clinic, University of Colorado Hospital, Aurora, CO, USA aut NATIONALLICENCE 700 1- Salberg Lisa Hypertrophic Cardiomyopathy Association, Hibernia, NJ, USA aut NATIONALLICENCE 700 1- Day Sharlene Department of Internal Medicine, University of Michigan, Ann Arbor, MI, USA aut NATIONALLICENCE 700 1- Yashar Beverly Department of Human Genetics, University of Michigan, Ann Arbor, MI, USA aut NATIONALLICENCE 773 0- Journal of Genetic Counseling Springer US; http://www.springer-ny.com 24/2(2015-04-01), 336-348 1059-7700 24:2<336 2015 24 10897