caa a22 4500 605544980 CHVBK 20210128100934.0 cr unu---uuuuu 210128e20150401xx s 000 0 eng 10.1007/s10897-014-9772-x doi (NATIONALLICENCE)springer-10.1007/s10897-014-9772-x A Qualitative Evaluation of the Psychosocial Impact of Family History Screening in Australian Primary Care [Elektronische Daten] [Gabrielle Reid, Fiona Walter, Jon Emery] Whilst the family history is perceived as a routine part of the medical family history it is not used in a systematic way to tailor disease prevention in primary care. Family history questionnaires (FHQs) may have an important role in primary care as a screening tool to support tailored disease prevention. The potential harms and benefits of family history screening in primary care require investigation before routine adoption. This study aimed: first to explore the experience and impact of family history collection via a novel family history questionnaire and subsequent familial risk assessment, and secondly, to assess the acceptability and feasibility of using the questionnaire in Australian primary care. Twenty-eight semi-structured telephone interviews were conducted with patients already enrolled in a family history screening study through their family physician. Qualitative constant comparative analysis was undertaken of transcript data. Common themes included the way in which the family unit, individual stage of life and a number of external triggers interact and contribute to how an individual comes to terms with familial disease risk. Unique findings emerged relating to the Australian perspective of participants. Living in Australia created a barrier to effective communication amongst family members about family health, and family history collection. In addition to the vast geographical distance both within Australia, and between Australia and other countries, there was an additional sense of isolation described within an historical context. The family history screening questionnaire was considered user-friendly and a worthwhile approach to supporting disease prevention in primary care, although some participants did not retain an accurate understanding of their familial cancer risk. In conclusion, a person's response to family history screening is reliant on a complex interplay of family, personal and external factors, which in turn are driven by their stage of life. The impact of immigration and geographic isolation from family members may further complicate a person's response to undertaking family history screening. National Society of Genetic Counselors, Inc., 2014 Chronic disease nationallicence Family history screening nationallicence Psychosocial impact nationallicence Reid Gabrielle Genetic Services of Western Australia, Perth, Australia aut Walter Fiona The Primary Care Unit, Department of Public Health & Primary Care, University of Cambridge, Cambridge, UK aut Emery Jon Discipline of General Practice, University of Western Australia, Perth, Australia aut Journal of Genetic Counseling Springer US; http://www.springer-ny.com 24/2(2015-04-01), 312-324 1059-7700 24:2<312 2015 24 10897 https://doi.org/10.1007/s10897-014-9772-x text/html Onlinezugriff via DOI BK010053 XK010053 XK010000 Metadata rights reserved Springer special CC-BY-NC licence nationallicence 1 research-article jats NATIONALLICENCE NATIONALLICENCE NL-springer NATIONALLICENCE 856 40 https://doi.org/10.1007/s10897-014-9772-x text/html Onlinezugriff via DOI NATIONALLICENCE 700 1- Reid Gabrielle Genetic Services of Western Australia, Perth, Australia aut NATIONALLICENCE 700 1- Walter Fiona The Primary Care Unit, Department of Public Health & Primary Care, University of Cambridge, Cambridge, UK aut NATIONALLICENCE 700 1- Emery Jon Discipline of General Practice, University of Western Australia, Perth, Australia aut NATIONALLICENCE 773 0- Journal of Genetic Counseling Springer US; http://www.springer-ny.com 24/2(2015-04-01), 312-324 1059-7700 24:2<312 2015 24 10897