How Can Psychological Science Inform Research About Genetic Counseling for Clinical Genomic Sequencing?

Verfasser / Beitragende:
[Cynthia Khan, Christine Rini, Barbara Bernhardt, J. Roberts, Kurt Christensen, James Evans, Kyle Brothers, Myra Roche, Jonathan Berg, Gail Henderson]
Ort, Verlag, Jahr:
2015
Enthalten in:
Journal of Genetic Counseling, 24/2(2015-04-01), 193-204
Format:
Artikel (online)
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024 7 0 |a 10.1007/s10897-014-9804-6  |2 doi 
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245 0 0 |a How Can Psychological Science Inform Research About Genetic Counseling for Clinical Genomic Sequencing?  |h [Elektronische Daten]  |c [Cynthia Khan, Christine Rini, Barbara Bernhardt, J. Roberts, Kurt Christensen, James Evans, Kyle Brothers, Myra Roche, Jonathan Berg, Gail Henderson] 
520 3 |a Next generation genomic sequencing technologies (including whole genome or whole exome sequencing) are being increasingly applied to clinical care. Yet, the breadth and complexity of sequencing information raise questions about how best to communicate and return sequencing information to patients and families in ways that facilitate comprehension and optimal health decisions. Obtaining answers to such questions will require multidisciplinary research. In this paper, we focus on how psychological science research can address questions related to clinical genomic sequencing by explaining emotional, cognitive, and behavioral processes in response to different types of genomic sequencing information (e.g., diagnostic results and incidental findings). We highlight examples of psychological science that can be applied to genetic counseling research to inform the following questions: (1) What factors influence patients' and providers' informational needs for developing an accurate understanding of what genomic sequencing results do and do not mean?; (2) How and by whom should genomic sequencing results be communicated to patients and their family members?; and (3) How do patients and their families respond to uncertainties related to genomic information? 
540 |a National Society of Genetic Counselors, Inc., 2014 
690 7 |a Communication  |2 nationallicence 
690 7 |a Genome sequencing  |2 nationallicence 
690 7 |a Patient understanding  |2 nationallicence 
690 7 |a Psychological  |2 nationallicence 
690 7 |a Psychosocial  |2 nationallicence 
700 1 |a Khan  |D Cynthia  |u Department of Health Behavior, University of North Carolina-Chapel Hill, 312 Rosenau Hall, CB#7440, 27599-7440, Chapel Hill, NC, USA  |4 aut 
700 1 |a Rini  |D Christine  |u Health Behavior, Lineberger Comprehensive Cancer Center, University of North Carolina-Chapel Hill, Chapel Hill, NC, USA  |4 aut 
700 1 |a Bernhardt  |D Barbara  |u Translational Medicine and Human Genetics, University of Pennsylvania, Philadelphia, PA, USA  |4 aut 
700 1 |a Roberts  |D J.  |u Health Behavior & Health Education, Center for Bioethics and Social Sciences in Medicine, University of Michigan-Ann Arbor, Ann Arbor, MI, USA  |4 aut 
700 1 |a Christensen  |D Kurt  |u Genetics, Department of Medicine, Brigham and Women's Hospital and Harvard Medical School, Boston, MA, USA  |4 aut 
700 1 |a Evans  |D James  |u Genetics, University of North Carolina-Chapel Hill, Chapel Hill, NC, USA  |4 aut 
700 1 |a Brothers  |D Kyle  |u Family and Geriatric Medicine, University of Louisville School of Medicine, Louisville, KY, USA  |4 aut 
700 1 |a Roche  |D Myra  |u Genetics, University of North Carolina-Chapel Hill, Chapel Hill, NC, USA  |4 aut 
700 1 |a Berg  |D Jonathan  |u Genetics, University of North Carolina-Chapel Hill, Chapel Hill, NC, USA  |4 aut 
700 1 |a Henderson  |D Gail  |u Social Medicine, Center for Genomics & Society, University of North Carolina-Chapel Hill, Chapel Hill, NC, USA  |4 aut 
773 0 |t Journal of Genetic Counseling  |d Springer US; http://www.springer-ny.com  |g 24/2(2015-04-01), 193-204  |x 1059-7700  |q 24:2<193  |1 2015  |2 24  |o 10897 
856 4 0 |u https://doi.org/10.1007/s10897-014-9804-6  |q text/html  |z Onlinezugriff via DOI 
898 |a BK010053  |b XK010053  |c XK010000 
900 7 |a Metadata rights reserved  |b Springer special CC-BY-NC licence  |2 nationallicence 
908 |D 1  |a research-article  |2 jats 
949 |B NATIONALLICENCE  |F NATIONALLICENCE  |b NL-springer 
950 |B NATIONALLICENCE  |P 856  |E 40  |u https://doi.org/10.1007/s10897-014-9804-6  |q text/html  |z Onlinezugriff via DOI 
950 |B NATIONALLICENCE  |P 700  |E 1-  |a Khan  |D Cynthia  |u Department of Health Behavior, University of North Carolina-Chapel Hill, 312 Rosenau Hall, CB#7440, 27599-7440, Chapel Hill, NC, USA  |4 aut 
950 |B NATIONALLICENCE  |P 700  |E 1-  |a Rini  |D Christine  |u Health Behavior, Lineberger Comprehensive Cancer Center, University of North Carolina-Chapel Hill, Chapel Hill, NC, USA  |4 aut 
950 |B NATIONALLICENCE  |P 700  |E 1-  |a Bernhardt  |D Barbara  |u Translational Medicine and Human Genetics, University of Pennsylvania, Philadelphia, PA, USA  |4 aut 
950 |B NATIONALLICENCE  |P 700  |E 1-  |a Roberts  |D J.  |u Health Behavior & Health Education, Center for Bioethics and Social Sciences in Medicine, University of Michigan-Ann Arbor, Ann Arbor, MI, USA  |4 aut 
950 |B NATIONALLICENCE  |P 700  |E 1-  |a Christensen  |D Kurt  |u Genetics, Department of Medicine, Brigham and Women's Hospital and Harvard Medical School, Boston, MA, USA  |4 aut 
950 |B NATIONALLICENCE  |P 700  |E 1-  |a Evans  |D James  |u Genetics, University of North Carolina-Chapel Hill, Chapel Hill, NC, USA  |4 aut 
950 |B NATIONALLICENCE  |P 700  |E 1-  |a Brothers  |D Kyle  |u Family and Geriatric Medicine, University of Louisville School of Medicine, Louisville, KY, USA  |4 aut 
950 |B NATIONALLICENCE  |P 700  |E 1-  |a Roche  |D Myra  |u Genetics, University of North Carolina-Chapel Hill, Chapel Hill, NC, USA  |4 aut 
950 |B NATIONALLICENCE  |P 700  |E 1-  |a Berg  |D Jonathan  |u Genetics, University of North Carolina-Chapel Hill, Chapel Hill, NC, USA  |4 aut 
950 |B NATIONALLICENCE  |P 700  |E 1-  |a Henderson  |D Gail  |u Social Medicine, Center for Genomics & Society, University of North Carolina-Chapel Hill, Chapel Hill, NC, USA  |4 aut 
950 |B NATIONALLICENCE  |P 773  |E 0-  |t Journal of Genetic Counseling  |d Springer US; http://www.springer-ny.com  |g 24/2(2015-04-01), 193-204  |x 1059-7700  |q 24:2<193  |1 2015  |2 24  |o 10897