How Can Psychological Science Inform Research About Genetic Counseling for Clinical Genomic Sequencing?
Gespeichert in:
Verfasser / Beitragende:
[Cynthia Khan, Christine Rini, Barbara Bernhardt, J. Roberts, Kurt Christensen, James Evans, Kyle Brothers, Myra Roche, Jonathan Berg, Gail Henderson]
Ort, Verlag, Jahr:
2015
Enthalten in:
Journal of Genetic Counseling, 24/2(2015-04-01), 193-204
Format:
Artikel (online)
Online Zugang:
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| 024 | 7 | 0 | |a 10.1007/s10897-014-9804-6 |2 doi |
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| 245 | 0 | 0 | |a How Can Psychological Science Inform Research About Genetic Counseling for Clinical Genomic Sequencing? |h [Elektronische Daten] |c [Cynthia Khan, Christine Rini, Barbara Bernhardt, J. Roberts, Kurt Christensen, James Evans, Kyle Brothers, Myra Roche, Jonathan Berg, Gail Henderson] |
| 520 | 3 | |a Next generation genomic sequencing technologies (including whole genome or whole exome sequencing) are being increasingly applied to clinical care. Yet, the breadth and complexity of sequencing information raise questions about how best to communicate and return sequencing information to patients and families in ways that facilitate comprehension and optimal health decisions. Obtaining answers to such questions will require multidisciplinary research. In this paper, we focus on how psychological science research can address questions related to clinical genomic sequencing by explaining emotional, cognitive, and behavioral processes in response to different types of genomic sequencing information (e.g., diagnostic results and incidental findings). We highlight examples of psychological science that can be applied to genetic counseling research to inform the following questions: (1) What factors influence patients' and providers' informational needs for developing an accurate understanding of what genomic sequencing results do and do not mean?; (2) How and by whom should genomic sequencing results be communicated to patients and their family members?; and (3) How do patients and their families respond to uncertainties related to genomic information? | |
| 540 | |a National Society of Genetic Counselors, Inc., 2014 | ||
| 690 | 7 | |a Communication |2 nationallicence | |
| 690 | 7 | |a Genome sequencing |2 nationallicence | |
| 690 | 7 | |a Patient understanding |2 nationallicence | |
| 690 | 7 | |a Psychological |2 nationallicence | |
| 690 | 7 | |a Psychosocial |2 nationallicence | |
| 700 | 1 | |a Khan |D Cynthia |u Department of Health Behavior, University of North Carolina-Chapel Hill, 312 Rosenau Hall, CB#7440, 27599-7440, Chapel Hill, NC, USA |4 aut | |
| 700 | 1 | |a Rini |D Christine |u Health Behavior, Lineberger Comprehensive Cancer Center, University of North Carolina-Chapel Hill, Chapel Hill, NC, USA |4 aut | |
| 700 | 1 | |a Bernhardt |D Barbara |u Translational Medicine and Human Genetics, University of Pennsylvania, Philadelphia, PA, USA |4 aut | |
| 700 | 1 | |a Roberts |D J. |u Health Behavior & Health Education, Center for Bioethics and Social Sciences in Medicine, University of Michigan-Ann Arbor, Ann Arbor, MI, USA |4 aut | |
| 700 | 1 | |a Christensen |D Kurt |u Genetics, Department of Medicine, Brigham and Women's Hospital and Harvard Medical School, Boston, MA, USA |4 aut | |
| 700 | 1 | |a Evans |D James |u Genetics, University of North Carolina-Chapel Hill, Chapel Hill, NC, USA |4 aut | |
| 700 | 1 | |a Brothers |D Kyle |u Family and Geriatric Medicine, University of Louisville School of Medicine, Louisville, KY, USA |4 aut | |
| 700 | 1 | |a Roche |D Myra |u Genetics, University of North Carolina-Chapel Hill, Chapel Hill, NC, USA |4 aut | |
| 700 | 1 | |a Berg |D Jonathan |u Genetics, University of North Carolina-Chapel Hill, Chapel Hill, NC, USA |4 aut | |
| 700 | 1 | |a Henderson |D Gail |u Social Medicine, Center for Genomics & Society, University of North Carolina-Chapel Hill, Chapel Hill, NC, USA |4 aut | |
| 773 | 0 | |t Journal of Genetic Counseling |d Springer US; http://www.springer-ny.com |g 24/2(2015-04-01), 193-204 |x 1059-7700 |q 24:2<193 |1 2015 |2 24 |o 10897 | |
| 856 | 4 | 0 | |u https://doi.org/10.1007/s10897-014-9804-6 |q text/html |z Onlinezugriff via DOI |
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| 900 | 7 | |a Metadata rights reserved |b Springer special CC-BY-NC licence |2 nationallicence | |
| 908 | |D 1 |a research-article |2 jats | ||
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| 950 | |B NATIONALLICENCE |P 856 |E 40 |u https://doi.org/10.1007/s10897-014-9804-6 |q text/html |z Onlinezugriff via DOI | ||
| 950 | |B NATIONALLICENCE |P 700 |E 1- |a Khan |D Cynthia |u Department of Health Behavior, University of North Carolina-Chapel Hill, 312 Rosenau Hall, CB#7440, 27599-7440, Chapel Hill, NC, USA |4 aut | ||
| 950 | |B NATIONALLICENCE |P 700 |E 1- |a Rini |D Christine |u Health Behavior, Lineberger Comprehensive Cancer Center, University of North Carolina-Chapel Hill, Chapel Hill, NC, USA |4 aut | ||
| 950 | |B NATIONALLICENCE |P 700 |E 1- |a Bernhardt |D Barbara |u Translational Medicine and Human Genetics, University of Pennsylvania, Philadelphia, PA, USA |4 aut | ||
| 950 | |B NATIONALLICENCE |P 700 |E 1- |a Roberts |D J. |u Health Behavior & Health Education, Center for Bioethics and Social Sciences in Medicine, University of Michigan-Ann Arbor, Ann Arbor, MI, USA |4 aut | ||
| 950 | |B NATIONALLICENCE |P 700 |E 1- |a Christensen |D Kurt |u Genetics, Department of Medicine, Brigham and Women's Hospital and Harvard Medical School, Boston, MA, USA |4 aut | ||
| 950 | |B NATIONALLICENCE |P 700 |E 1- |a Evans |D James |u Genetics, University of North Carolina-Chapel Hill, Chapel Hill, NC, USA |4 aut | ||
| 950 | |B NATIONALLICENCE |P 700 |E 1- |a Brothers |D Kyle |u Family and Geriatric Medicine, University of Louisville School of Medicine, Louisville, KY, USA |4 aut | ||
| 950 | |B NATIONALLICENCE |P 700 |E 1- |a Roche |D Myra |u Genetics, University of North Carolina-Chapel Hill, Chapel Hill, NC, USA |4 aut | ||
| 950 | |B NATIONALLICENCE |P 700 |E 1- |a Berg |D Jonathan |u Genetics, University of North Carolina-Chapel Hill, Chapel Hill, NC, USA |4 aut | ||
| 950 | |B NATIONALLICENCE |P 700 |E 1- |a Henderson |D Gail |u Social Medicine, Center for Genomics & Society, University of North Carolina-Chapel Hill, Chapel Hill, NC, USA |4 aut | ||
| 950 | |B NATIONALLICENCE |P 773 |E 0- |t Journal of Genetic Counseling |d Springer US; http://www.springer-ny.com |g 24/2(2015-04-01), 193-204 |x 1059-7700 |q 24:2<193 |1 2015 |2 24 |o 10897 | ||