Using Formative Research to Develop a Counselor Training Program for Newborn Screening in Ghana
| LEADER | caa a22 4500 | ||
|---|---|---|---|
| 001 | 605545103 | ||
| 003 | CHVBK | ||
| 005 | 20210128100934.0 | ||
| 007 | cr unu---uuuuu | ||
| 008 | 210128e20150401xx s 000 0 eng | ||
| 024 | 7 | 0 | |a 10.1007/s10897-014-9759-7 |2 doi |
| 035 | |a (NATIONALLICENCE)springer-10.1007/s10897-014-9759-7 | ||
| 245 | 0 | 0 | |a Using Formative Research to Develop a Counselor Training Program for Newborn Screening in Ghana |h [Elektronische Daten] |c [Marsha Treadwell, Kofi Anie, Althea Grant, Solomon Ofori-Acquah, Kwaku Ohene-Frempong] |
| 520 | 3 | |a Sickle cell disease (SCD), sickle cell trait (SCT) and related conditions are highly prevalent in sub-Saharan Africa. Despite the public health implications, there is limited understanding of the unique needs regarding establishing and implementing extensive screening for newborns and appropriate family counseling. We sought to gain understanding of community attitudes and beliefs about SCD/SCT from counselors and potential counselors in Ghana; obtain their input about goals for counseling following newborn screening; and obtain guidance about developing effective counselor education. Five focus groups with 32 health care providers and health educators from 9 of 10 regions in Ghana were conducted by trained facilitators according to a structured protocol. Qualitative data were coded and categorized to reflect common themes. Saturation was achieved in themes related to genetics/inheritance; common complications of SCD; potential for stigmatization; marital strain; and emotional stress. Misconceptions about SCT as a form of SCD were prevalent as were cultural and spiritual beliefs about the causes of SCD/SCT. Potential positive aspects included affected children′s academic achievement as compensation for physical limitations, and family cohesion. This data informed recommendations for content and structure of a counselor training program that was provided to the Ministry of Health in Ghana. | |
| 540 | |a National Society of Genetic Counselors, Inc., 2014 | ||
| 690 | 7 | |a Genetic counseling |2 nationallicence | |
| 690 | 7 | |a newborn infant screening |2 nationallicence | |
| 690 | 7 | |a formative research |2 nationallicence | |
| 690 | 7 | |a counselor training |2 nationallicence | |
| 690 | 7 | |a sickle cell disease |2 nationallicence | |
| 690 | 7 | |a Ghana |2 nationallicence | |
| 700 | 1 | |a Treadwell |D Marsha |u Hematology/Oncology Department, UCSF Benioff Children′s Hospital Oakland, 747 52nd Street, 94609, Oakland, CA, USA |4 aut | |
| 700 | 1 | |a Anie |D Kofi |u Haematology and Sickle Cell Centre, North West London Hospitals, National Health Service (NHS) Trust, Central Middlesex Hospital Acton Lane, NW10 7NS, London, UK |4 aut | |
| 700 | 1 | |a Grant |D Althea |u Epidemiology and Surveillance Branch, National Center for Birth Defects and Developmental Disabilities, Division of Blood Disorders, Centers for Disease Control and Prevention, 1600 Clifton Road, MS E64, 30333, Atlanta, GA, USA |4 aut | |
| 700 | 1 | |a Ofori-Acquah |D Solomon |u Center for Translational and International Hematology, Vascular Medicine Institute, University of Pittsburgh, 200 Lothrop Street, 15262, Pittsburgh, PA, USA |4 aut | |
| 700 | 1 | |a Ohene-Frempong |D Kwaku |u Sickle Cell Foundation of Ghana, 4 Harper Road, 3rd Floor Adum, Kumasi, Ghana |4 aut | |
| 773 | 0 | |t Journal of Genetic Counseling |d Springer US; http://www.springer-ny.com |g 24/2(2015-04-01), 267-277 |x 1059-7700 |q 24:2<267 |1 2015 |2 24 |o 10897 | |
| 856 | 4 | 0 | |u https://doi.org/10.1007/s10897-014-9759-7 |q text/html |z Onlinezugriff via DOI |
| 898 | |a BK010053 |b XK010053 |c XK010000 | ||
| 900 | 7 | |a Metadata rights reserved |b Springer special CC-BY-NC licence |2 nationallicence | |
| 908 | |D 1 |a research-article |2 jats | ||
| 949 | |B NATIONALLICENCE |F NATIONALLICENCE |b NL-springer | ||
| 950 | |B NATIONALLICENCE |P 856 |E 40 |u https://doi.org/10.1007/s10897-014-9759-7 |q text/html |z Onlinezugriff via DOI | ||
| 950 | |B NATIONALLICENCE |P 700 |E 1- |a Treadwell |D Marsha |u Hematology/Oncology Department, UCSF Benioff Children′s Hospital Oakland, 747 52nd Street, 94609, Oakland, CA, USA |4 aut | ||
| 950 | |B NATIONALLICENCE |P 700 |E 1- |a Anie |D Kofi |u Haematology and Sickle Cell Centre, North West London Hospitals, National Health Service (NHS) Trust, Central Middlesex Hospital Acton Lane, NW10 7NS, London, UK |4 aut | ||
| 950 | |B NATIONALLICENCE |P 700 |E 1- |a Grant |D Althea |u Epidemiology and Surveillance Branch, National Center for Birth Defects and Developmental Disabilities, Division of Blood Disorders, Centers for Disease Control and Prevention, 1600 Clifton Road, MS E64, 30333, Atlanta, GA, USA |4 aut | ||
| 950 | |B NATIONALLICENCE |P 700 |E 1- |a Ofori-Acquah |D Solomon |u Center for Translational and International Hematology, Vascular Medicine Institute, University of Pittsburgh, 200 Lothrop Street, 15262, Pittsburgh, PA, USA |4 aut | ||
| 950 | |B NATIONALLICENCE |P 700 |E 1- |a Ohene-Frempong |D Kwaku |u Sickle Cell Foundation of Ghana, 4 Harper Road, 3rd Floor Adum, Kumasi, Ghana |4 aut | ||
| 950 | |B NATIONALLICENCE |P 773 |E 0- |t Journal of Genetic Counseling |d Springer US; http://www.springer-ny.com |g 24/2(2015-04-01), 267-277 |x 1059-7700 |q 24:2<267 |1 2015 |2 24 |o 10897 | ||