caa a22 4500 606177949 CHVBK 20210128100754.0 cr unu---uuuuu 210128e20150101xx s 000 0 eng 10.1007/s11136-014-0744-2 doi (NATIONALLICENCE)springer-10.1007/s11136-014-0744-2 Does spouse participation influence quality of life reporting in patients with Parkinson's disease? [Elektronische Daten] [Chelsea Morrow, Katherine Smentkowski, Stacy Schwartz, Melissa Armstrong, Ann Gruber-Baldini, Karen Anderson, Stephen Reich, William Weiner, Lisa Shulman] Purpose: To investigate whether patient-spouse co-reporting (patient reporting with assistance from their spouse) results in the same ratings of health-related quality of life (HRQoL) as patient ratings without co-reporting, and to assess whether mutuality of the marital relationship is a determinant of co-reported ratings. Patients are the best source of HRQoL; however, co-reporting is common in clinical settings, but has not been compared to independent patient reporting of HRQoL. Methods: Fifty-nine Parkinson's disease (PD) patient-spouse pairs completed the Short Form Health Status Survey (SF-12), measuring mental and physical HRQoL. Initially, the patient and spouse completed the SF-12 independently (about the patient). Then, patient-spouse pairs completed the SF-12 together assessing the patient's HRQoL. Patients and spouses independently completed the Mutuality Scale rating the intimacy of their relationship. Results: Patients rated physical HRQoL higher (M=46.6) than spouses alone (M=43.4, p<0.01) and co-reporting (M=44.8, p<0.05). Co-reporting rated physical HRQoL in between that of patients and spouses, (p<0.05). Spouses who reported greater mutuality showed greater concordance with the patient regarding the patient's mental HRQoL (B=−0.43, p<0.05). Conclusion: Consistency of the mode of completion of HRQoL instruments is important since co-reporting may alter HRQoL ratings in PD and lead to inaccurate conclusions. Mutuality is a mediator of mental HRQoL. Springer International Publishing Switzerland, 2014 Health-related quality of life nationallicence Proxy nationallicence Parkinson's disease nationallicence Mutuality nationallicence Co-report nationallicence Morrow Chelsea Department of Neurology, University of Maryland School of Medicine, Baltimore, MD, USA aut Smentkowski Katherine Eastern Virginia Medical School, Norfolk, VA, USA aut Schwartz Stacy University of Maryland School of Medicine, Baltimore, MD, USA aut Armstrong Melissa Department of Neurology, University of Maryland School of Medicine, Baltimore, MD, USA aut Gruber-Baldini Ann Department of Epidemiology and Preventive Medicine, University of Maryland School of Medicine, Baltimore, MD, USA aut Anderson Karen MedStar Georgetown University Hospital and Georgetown University Medical Center, Huntington Disease Care, Education and Research Center, Washington, DC, USA aut Reich Stephen Department of Neurology, University of Maryland School of Medicine, Baltimore, MD, USA aut Weiner William Department of Neurology, University of Maryland School of Medicine, Baltimore, MD, USA aut Shulman Lisa Department of Neurology, University of Maryland School of Medicine, Baltimore, MD, USA aut Quality of Life Research Springer International Publishing 24/1(2015-01-01), 245-249 0962-9343 24:1<245 2015 24 11136 https://doi.org/10.1007/s11136-014-0744-2 text/html Onlinezugriff via DOI BK010053 XK010053 XK010000 Metadata rights reserved Springer special CC-BY-NC licence nationallicence 1 brief-communication jats NATIONALLICENCE NATIONALLICENCE NL-springer NATIONALLICENCE 856 40 https://doi.org/10.1007/s11136-014-0744-2 text/html Onlinezugriff via DOI NATIONALLICENCE 700 1- Morrow Chelsea Department of Neurology, University of Maryland School of Medicine, Baltimore, MD, USA aut NATIONALLICENCE 700 1- Smentkowski Katherine Eastern Virginia Medical School, Norfolk, VA, USA aut NATIONALLICENCE 700 1- Schwartz Stacy University of Maryland School of Medicine, Baltimore, MD, USA aut NATIONALLICENCE 700 1- Armstrong Melissa Department of Neurology, University of Maryland School of Medicine, Baltimore, MD, USA aut NATIONALLICENCE 700 1- Gruber-Baldini Ann Department of Epidemiology and Preventive Medicine, University of Maryland School of Medicine, Baltimore, MD, USA aut NATIONALLICENCE 700 1- Anderson Karen MedStar Georgetown University Hospital and Georgetown University Medical Center, Huntington Disease Care, Education and Research Center, Washington, DC, USA aut NATIONALLICENCE 700 1- Reich Stephen Department of Neurology, University of Maryland School of Medicine, Baltimore, MD, USA aut NATIONALLICENCE 700 1- Weiner William Department of Neurology, University of Maryland School of Medicine, Baltimore, MD, USA aut NATIONALLICENCE 700 1- Shulman Lisa Department of Neurology, University of Maryland School of Medicine, Baltimore, MD, USA aut NATIONALLICENCE 773 0- Quality of Life Research Springer International Publishing 24/1(2015-01-01), 245-249 0962-9343 24:1<245 2015 24 11136