caa a22 4500 606178147 CHVBK 20210128100755.0 cr unu---uuuuu 210128e20150601xx s 000 0 eng 10.1007/s11136-014-0860-z doi (NATIONALLICENCE)springer-10.1007/s11136-014-0860-z Identifying key domains of health-related quality of life for patients with chronic obstructive pulmonary disease: interviews with healthcare professionals [Elektronische Daten] [Muirne Paap, Christina Bode, Lonneke Lenferink, Caroline Terwee, Job van der Palen] Purpose: The aim of this paper is to identify which domains of health-related quality of life (HRQoL) are most important for patients with chronic obstructive pulmonary disease (COPD), from the perspective of healthcare professionals (HCPs). Methods: Thirteen Dutch HCPs [six pulmonologists, three pulmonology nurse practitioners, two physiotherapists and two general practitioners; 9 men; mean age 51.0 (SD=10.6) years; mean years of experience 12.1 (SD=7.2)] specialized in the field of COPD were recruited. The only inclusion criterion was that the HCP had to have extensive experience in treating COPD patients. The face-to-face interviews took 30-40min. Results: Physical health emerged as the most important theme from the spontaneous statements that HCPs made when asked about HRQoL in relation to COPD, closely followed by social health and coping with COPD-related complaints and restrictions. The most frequently selected PROMIS domains were fatigue, physical function, emotional support and depression. If the related domains satisfaction with participation in social roles and activities and ability to participate in social roles and activities were to be combined, it would come in second place after fatigue. Conclusion: When comparing the domains chosen by HCPs to the ones chosen by patients in a recent study, there is a high degree of agreement, with the exception of depression. We argue that it is important to take into account both patient and HCP perspective when developing/selecting HRQoL instruments. Our results may be used to inform domain selection to measure HRQoL in patients with COPD, as well as instrument development. Springer International Publishing Switzerland, 2014 COPD nationallicence PROMIS nationallicence Qualitative research nationallicence Physical health nationallicence Social health nationallicence Mental health nationallicence Paap Muirne Department of Research Methodology, Measurement, and Data-Analysis, Behavioral Sciences, University of Twente, P.O. Box 217, 7500 AE, Enschede, The Netherlands aut Bode Christina Department of Psychology, Health and Technology, Behavioral Sciences, University of Twente, Enschede, The Netherlands aut Lenferink Lonneke University of Twente, Enschede, The Netherlands aut Terwee Caroline Department of Epidemiology and Biostatistics, The EMGO Institute for Health and Care Research, VU University Medical Center, Amsterdam, The Netherlands aut van der Palen Job Department of Research Methodology, Measurement, and Data-Analysis, Behavioral Sciences, University of Twente, P.O. Box 217, 7500 AE, Enschede, The Netherlands aut Quality of Life Research Springer International Publishing 24/6(2015-06-01), 1351-1367 0962-9343 24:6<1351 2015 24 11136 https://doi.org/10.1007/s11136-014-0860-z text/html Onlinezugriff via DOI BK010053 XK010053 XK010000 Metadata rights reserved Springer special CC-BY-NC licence nationallicence 1 research-article jats NATIONALLICENCE NATIONALLICENCE NL-springer NATIONALLICENCE 856 40 https://doi.org/10.1007/s11136-014-0860-z text/html Onlinezugriff via DOI NATIONALLICENCE 700 1- Paap Muirne Department of Research Methodology, Measurement, and Data-Analysis, Behavioral Sciences, University of Twente, P.O. Box 217, 7500 AE, Enschede, The Netherlands aut NATIONALLICENCE 700 1- Bode Christina Department of Psychology, Health and Technology, Behavioral Sciences, University of Twente, Enschede, The Netherlands aut NATIONALLICENCE 700 1- Lenferink Lonneke University of Twente, Enschede, The Netherlands aut NATIONALLICENCE 700 1- Terwee Caroline Department of Epidemiology and Biostatistics, The EMGO Institute for Health and Care Research, VU University Medical Center, Amsterdam, The Netherlands aut NATIONALLICENCE 700 1- van der Palen Job Department of Research Methodology, Measurement, and Data-Analysis, Behavioral Sciences, University of Twente, P.O. Box 217, 7500 AE, Enschede, The Netherlands aut NATIONALLICENCE 773 0- Quality of Life Research Springer International Publishing 24/6(2015-06-01), 1351-1367 0962-9343 24:6<1351 2015 24 11136