caa a22 4500 606178171 CHVBK 20210128100755.0 cr unu---uuuuu 210128e20150601xx s 000 0 eng 10.1007/s11136-014-0869-3 doi (NATIONALLICENCE)springer-10.1007/s11136-014-0869-3 Anxiety and worry when coping with cancer treatment: agreement between patient and proxy responses [Elektronische Daten] [Ana Hermont, Ana Scarpelli, Saul Paiva, Sheyla Auad, Isabela Pordeus] Purpose: Assess agreement between proxy respondents (caregivers) and children/adolescents related to the impact of cancer on children's/adolescents' health-related quality of life, with respect to anxiety and worry issues. Methods: A cross-sectional study was conducted among 83 Brazilian children/adolescents, of both genders, diagnosed with cancer, aged 5-18years and their proxy respondents. Anxiety and worry were assessed through items of the instrument Pediatric Quality of Life Inventory™ Cancer Module Scale. Participants were recruited from the pediatric hematology/oncology centers at two public hospitals. All individuals were receiving medical care. Descriptive statistics were performed as well as a weighted kappa coefficient, Spearman's correlation coefficient, Wilcoxon signed-rank test and Bland-Altman plots. The magnitude of the difference between the mean scores obtained from children/adolescents and that of their proxy respondents was evaluated through effect size. Results: The proxy respondents underestimated the feelings of worry among children (8-12years) (p<0.001; effect size 0.71) and overestimated adolescents' (13-18years) treatment anxiety (p<0.05; effect size 0.57). The comparison between the three age groups (5-7, 8-12, 13-18years) showed a tendency for children/adolescents to report increasing feelings of worry as they got older. In the ‘treatment anxiety' subscale, there was a tendency for proxy respondents to present higher mean scores, revealing that proxy respondents believed the children's/adolescents' treatment anxiety decreased as they aged. Conclusions: Discrepancies between the reports of children/adolescents and their proxy respondents were observed. Children's/adolescents' reports should not be ignored nor replaced by proxy reports; both reports should be analyzed together. Springer International Publishing Switzerland, 2014 Quality of life nationallicence Neoplasms nationallicence Self-report nationallicence Proxy nationallicence Child nationallicence Agreement nationallicence Hermont Ana Department of Pediatric Dentistry and Orthodontics, Faculty of Dentistry, Universidade Federal de Minas Gerais, Av. Antônio Carlos 6627, 31270-901, Belo Horizonte, MG, Brazil aut Scarpelli Ana Department of Pediatric Dentistry and Orthodontics, Faculty of Dentistry, Universidade Federal de Minas Gerais, Av. Antônio Carlos 6627, 31270-901, Belo Horizonte, MG, Brazil aut Paiva Saul Department of Pediatric Dentistry and Orthodontics, Faculty of Dentistry, Universidade Federal de Minas Gerais, Av. Antônio Carlos 6627, 31270-901, Belo Horizonte, MG, Brazil aut Auad Sheyla Department of Pediatric Dentistry and Orthodontics, Faculty of Dentistry, Universidade Federal de Minas Gerais, Av. Antônio Carlos 6627, 31270-901, Belo Horizonte, MG, Brazil aut Pordeus Isabela Department of Pediatric Dentistry and Orthodontics, Faculty of Dentistry, Universidade Federal de Minas Gerais, Av. Antônio Carlos 6627, 31270-901, Belo Horizonte, MG, Brazil aut Quality of Life Research Springer International Publishing 24/6(2015-06-01), 1389-1396 0962-9343 24:6<1389 2015 24 11136 https://doi.org/10.1007/s11136-014-0869-3 text/html Onlinezugriff via DOI BK010053 XK010053 XK010000 Metadata rights reserved Springer special CC-BY-NC licence nationallicence 1 research-article jats NATIONALLICENCE NATIONALLICENCE NL-springer NATIONALLICENCE 856 40 https://doi.org/10.1007/s11136-014-0869-3 text/html Onlinezugriff via DOI NATIONALLICENCE 700 1- Hermont Ana Department of Pediatric Dentistry and Orthodontics, Faculty of Dentistry, Universidade Federal de Minas Gerais, Av. Antônio Carlos 6627, 31270-901, Belo Horizonte, MG, Brazil aut NATIONALLICENCE 700 1- Scarpelli Ana Department of Pediatric Dentistry and Orthodontics, Faculty of Dentistry, Universidade Federal de Minas Gerais, Av. Antônio Carlos 6627, 31270-901, Belo Horizonte, MG, Brazil aut NATIONALLICENCE 700 1- Paiva Saul Department of Pediatric Dentistry and Orthodontics, Faculty of Dentistry, Universidade Federal de Minas Gerais, Av. Antônio Carlos 6627, 31270-901, Belo Horizonte, MG, Brazil aut NATIONALLICENCE 700 1- Auad Sheyla Department of Pediatric Dentistry and Orthodontics, Faculty of Dentistry, Universidade Federal de Minas Gerais, Av. Antônio Carlos 6627, 31270-901, Belo Horizonte, MG, Brazil aut NATIONALLICENCE 700 1- Pordeus Isabela Department of Pediatric Dentistry and Orthodontics, Faculty of Dentistry, Universidade Federal de Minas Gerais, Av. Antônio Carlos 6627, 31270-901, Belo Horizonte, MG, Brazil aut NATIONALLICENCE 773 0- Quality of Life Research Springer International Publishing 24/6(2015-06-01), 1389-1396 0962-9343 24:6<1389 2015 24 11136