caa a22 4500 606178309 CHVBK 20210128100756.0 cr unu---uuuuu 210128e20150901xx s 000 0 eng 10.1007/s11136-015-0953-3 doi (NATIONALLICENCE)springer-10.1007/s11136-015-0953-3 PROMIS® pediatric self-report scales distinguish subgroups of children within and across six common pediatric chronic health conditions [Elektronische Daten] [Darren DeWalt, Heather Gross, Debbie Gipson, David Selewski, Esi DeWitt, Carlton Dampier, Pamela Hinds, I-Chan Huang, David Thissen, James Varni] Purpose: To conduct a comparative analysis of eight pediatric self-report scales for ages 8-17years from the National Institutes of Health (NIH) Patient Reported Outcomes Measurement Information System (PROMIS®) in six pediatric chronic health conditions, using indicators of disease severity. Methods: Pediatric patients (N=1454) with asthma, cancer, chronic kidney disease, obesity, rheumatic disease, and sickle cell disease completed items from the PROMIS pediatric mobility, upper extremity functioning, depressive symptoms, anxiety, anger, peer relationships, pain interference, and fatigue self-report scales. Comparisons within the six pediatric chronic health conditions were conducted by examining differences in groups based on the disease severity using markers of severity that were specific to characteristics of each disease. A comparison was also made across diseases between children who had been recently hospitalized and those who had not. Results: In general, there were differences in self-reported health outcomes within each chronic health condition, with patients who had higher disease severity showing worse outcomes. Across health conditions, when children with recent hospitalizations were compared with those who had not been hospitalized in the past 6months, we found significant differences in the expected directions for all PROMIS domains, except anger. Conclusions: PROMIS measures discriminate between different clinically meaningful subgroups within several chronic illnesses. Further research is needed to determine the responsiveness of the PROMIS pediatric scales to change over time. Springer International Publishing Switzerland, 2015 PROMIS nationallicence Pediatrics nationallicence Self-report nationallicence Patient-reported outcomes nationallicence Item response theory nationallicence PROMIS® : PatientReported Outcomes Measurement Information System nationallicence NIH : National Institutes of Health nationallicence DeWalt Darren Division of General Medicine and Clinical Epidemiology, Cecil G. Sheps Center for Health Services Research, University of North Carolina at Chapel Hill, 5041 Old Clinic Building, CB 7110, 27599, Chapel Hill, NC, USA aut Gross Heather Cecil G. Sheps Center for Health Services Research, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA aut Gipson Debbie Department of Pediatrics and Communicable Diseases, C.S. Mott Children's Hospital, University of Michigan, Ann Arbor, MI, USA aut Selewski David Department of Pediatrics and Communicable Diseases, C.S. Mott Children's Hospital, University of Michigan, Ann Arbor, MI, USA aut DeWitt Esi Division of Rheumatology, Department of Pediatrics, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, USA aut Dampier Carlton Department of Pediatrics, Emory University, Atlanta, GA, USA aut Hinds Pamela Children's National Medical Center, George Washington University, Washington, DC, USA aut Huang I-Chan Department of Epidemiology and Cancer Control, St. Jude Children's Research Hospital, Memphis, TN, USA aut Thissen David Department of Psychology, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA aut Varni James Department of Pediatrics, College of Medicine, Texas A&M University, College Station, TX, USA aut Quality of Life Research Springer International Publishing 24/9(2015-09-01), 2195-2208 0962-9343 24:9<2195 2015 24 11136 https://doi.org/10.1007/s11136-015-0953-3 text/html Onlinezugriff via DOI BK010053 XK010053 XK010000 Metadata rights reserved Springer special CC-BY-NC licence nationallicence 1 research-article jats NATIONALLICENCE NATIONALLICENCE NL-springer NATIONALLICENCE 856 40 https://doi.org/10.1007/s11136-015-0953-3 text/html Onlinezugriff via DOI NATIONALLICENCE 700 1- DeWalt Darren Division of General Medicine and Clinical Epidemiology, Cecil G. Sheps Center for Health Services Research, University of North Carolina at Chapel Hill, 5041 Old Clinic Building, CB 7110, 27599, Chapel Hill, NC, USA aut NATIONALLICENCE 700 1- Gross Heather Cecil G. Sheps Center for Health Services Research, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA aut NATIONALLICENCE 700 1- Gipson Debbie Department of Pediatrics and Communicable Diseases, C.S. Mott Children's Hospital, University of Michigan, Ann Arbor, MI, USA aut NATIONALLICENCE 700 1- Selewski David Department of Pediatrics and Communicable Diseases, C.S. Mott Children's Hospital, University of Michigan, Ann Arbor, MI, USA aut NATIONALLICENCE 700 1- DeWitt Esi Division of Rheumatology, Department of Pediatrics, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, USA aut NATIONALLICENCE 700 1- Dampier Carlton Department of Pediatrics, Emory University, Atlanta, GA, USA aut NATIONALLICENCE 700 1- Hinds Pamela Children's National Medical Center, George Washington University, Washington, DC, USA aut NATIONALLICENCE 700 1- Huang I-Chan Department of Epidemiology and Cancer Control, St. Jude Children's Research Hospital, Memphis, TN, USA aut NATIONALLICENCE 700 1- Thissen David Department of Psychology, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA aut NATIONALLICENCE 700 1- Varni James Department of Pediatrics, College of Medicine, Texas A&M University, College Station, TX, USA aut NATIONALLICENCE 773 0- Quality of Life Research Springer International Publishing 24/9(2015-09-01), 2195-2208 0962-9343 24:9<2195 2015 24 11136