caa a22 4500 606178368 CHVBK 20210128100756.0 cr unu---uuuuu 210128e20150901xx s 000 0 eng 10.1007/s11136-015-0965-z doi (NATIONALLICENCE)springer-10.1007/s11136-015-0965-z Reliability of the autoimmune bullous disease quality of life (ABQOL) questionnaire in the USA [Elektronische Daten] [Deshan Sebaratnam, Joyce Okawa, Aimee Payne, Dédée Murrell, Victoria Werth] Purpose: To evaluate the reliability of the autoimmune bullous diseases quality of life (ABQOL) questionnaire in a North American patient cohort. Methods: Patients attending the dermatology clinics of the University of Pennsylvania with a histological diagnosis of an autoimmune bullous disease (AIBD) and self-reported proficiency in English were recruited to participate in the study. Patients completed the ABQOL questionnaire at Day 0 and Day 3. Internal consistency was calculated through Cronbach's alpha. Test-retest reliability was determined by the intraclass correlation coefficient. Results: Of the 45 patients enrolled in the study, 39 patients (87%) participated to completion. The mean age was 60.7years with an equal sex distribution observed. Patients had a range of AIBD including pemphigus vulgaris, bullous pemphigoid, pemphigus foliaceus, epidermolysis bullosa acquisita, mucous membrane pemphigoid and linear IgA disease. Cronbach's alpha was calculated to be 0.90. The intraclass correlation coefficient was calculated to be 0.93 (95% confidence interval 0.88-0.94). Conclusion: The ABQOL was found to be reliable tested by internal consistency and test-retest reliability in an American patient cohort. It represents a promising disease-specific outcome measure for patients with AIBD. Springer International Publishing Switzerland(out side the USA), 2015 Quality of life nationallicence Vesiculobullous skin diseases nationallicence Pemphigus nationallicence Bullous pemphigoid nationallicence Sebaratnam Deshan Department of Dermatology, University of New South Wales, St George Hospital Campus, Sydney, Australia aut Okawa Joyce Department of Dermatology, University of Pennsylvania, Philadelphia, PA, USA aut Payne Aimee Department of Dermatology, University of Pennsylvania, Philadelphia, PA, USA aut Murrell Dédée Department of Dermatology, University of New South Wales, St George Hospital Campus, Sydney, Australia aut Werth Victoria Department of Dermatology, University of Pennsylvania, Philadelphia, PA, USA aut Quality of Life Research Springer International Publishing 24/9(2015-09-01), 2257-2260 0962-9343 24:9<2257 2015 24 11136 https://doi.org/10.1007/s11136-015-0965-z text/html Onlinezugriff via DOI BK010053 XK010053 XK010000 Metadata rights reserved Springer special CC-BY-NC licence nationallicence 1 brief-communication jats NATIONALLICENCE NATIONALLICENCE NL-springer NATIONALLICENCE 856 40 https://doi.org/10.1007/s11136-015-0965-z text/html Onlinezugriff via DOI NATIONALLICENCE 700 1- Sebaratnam Deshan Department of Dermatology, University of New South Wales, St George Hospital Campus, Sydney, Australia aut NATIONALLICENCE 700 1- Okawa Joyce Department of Dermatology, University of Pennsylvania, Philadelphia, PA, USA aut NATIONALLICENCE 700 1- Payne Aimee Department of Dermatology, University of Pennsylvania, Philadelphia, PA, USA aut NATIONALLICENCE 700 1- Murrell Dédée Department of Dermatology, University of New South Wales, St George Hospital Campus, Sydney, Australia aut NATIONALLICENCE 700 1- Werth Victoria Department of Dermatology, University of Pennsylvania, Philadelphia, PA, USA aut NATIONALLICENCE 773 0- Quality of Life Research Springer International Publishing 24/9(2015-09-01), 2257-2260 0962-9343 24:9<2257 2015 24 11136