caa a22 4500 606179216 CHVBK 20210128100800.0 cr unu---uuuuu 210128e20150301xx s 000 0 eng 10.1007/s11136-014-0786-5 doi (NATIONALLICENCE)springer-10.1007/s11136-014-0786-5 Spanish translation and linguistic validation of the quality of life in neurological disorders (Neuro-QoL) measurement system [Elektronische Daten] [H. Correia, B. Pérez, B. Arnold, Alex Wong, JS Lai, M. Kallen, D. Cella] Introduction: The quality of life in neurological disorders (Neuro-QoL) measurement system is a 470-item compilation of health-related quality of life domains for adults and children with neurological disorders. It was developed and cognitively debriefed in English and Spanish, with general population and clinical samples in the USA. This paper describes the Spanish translation and linguistic validation process. Methods: The translation methodology combined forward and back-translations, multiple reviews, and cognitive debriefing with 30 adult and 30 pediatric Spanish-speaking respondents in the USA. The adult Fatigue bank was later also tested in Spain and Argentina. A universal approach to translation was adopted to produce a Spanish version that can be used in various countries. Translators from several countries were involved in the process. Results: Cognitive debriefing results indicated that most of the 470 Spanish items were well understood. Translations were revised as needed where difficulty was reported or where participants' comments revealed misunderstanding of an item's intended meaning. Additional testing of the universal Spanish adult Fatigue item bank in Spain and Argentina confirmed good understanding of the items and that no country-specific word changes were necessary. Conclusion: All the adult and pediatric Neuro-QoL measures have been linguistically validated with Spanish speakers in the USA. Instruments are available for use at www.assessmentcenter.net . Springer International Publishing Switzerland, 2014 Neuro-QoL nationallicence Translation methodology nationallicence Linguistic validation nationallicence Correia H. Department of Medical Social Sciences, Northwestern University Feinberg School of Medicine, Chicago, IL, USA aut Pérez B. FACITtrans, Elmhurst, IL, USA aut Arnold B. FACITtrans, Elmhurst, IL, USA aut Wong Alex Center for Healthcare Studies, Northwestern University Feinberg School of Medicine, Chicago, IL, USA aut Lai JS Department of Medical Social Sciences, Northwestern University Feinberg School of Medicine, Chicago, IL, USA aut Kallen M. Department of Medical Social Sciences, Northwestern University Feinberg School of Medicine, Chicago, IL, USA aut Cella D. Department of Medical Social Sciences, Northwestern University Feinberg School of Medicine, Chicago, IL, USA aut Quality of Life Research Springer International Publishing 24/3(2015-03-01), 753-756 0962-9343 24:3<753 2015 24 11136 https://doi.org/10.1007/s11136-014-0786-5 text/html Onlinezugriff via DOI BK010053 XK010053 XK010000 Metadata rights reserved Springer special CC-BY-NC licence nationallicence 1 brief-communication jats NATIONALLICENCE NATIONALLICENCE NL-springer NATIONALLICENCE 856 40 https://doi.org/10.1007/s11136-014-0786-5 text/html Onlinezugriff via DOI NATIONALLICENCE 700 1- Correia H. Department of Medical Social Sciences, Northwestern University Feinberg School of Medicine, Chicago, IL, USA aut NATIONALLICENCE 700 1- Pérez B. FACITtrans, Elmhurst, IL, USA aut NATIONALLICENCE 700 1- Arnold B. FACITtrans, Elmhurst, IL, USA aut NATIONALLICENCE 700 1- Wong Alex Center for Healthcare Studies, Northwestern University Feinberg School of Medicine, Chicago, IL, USA aut NATIONALLICENCE 700 1- Lai JS Department of Medical Social Sciences, Northwestern University Feinberg School of Medicine, Chicago, IL, USA aut NATIONALLICENCE 700 1- Kallen M. Department of Medical Social Sciences, Northwestern University Feinberg School of Medicine, Chicago, IL, USA aut NATIONALLICENCE 700 1- Cella D. Department of Medical Social Sciences, Northwestern University Feinberg School of Medicine, Chicago, IL, USA aut NATIONALLICENCE 773 0- Quality of Life Research Springer International Publishing 24/3(2015-03-01), 753-756 0962-9343 24:3<753 2015 24 11136