caa a22 4500 60617933X CHVBK 20210128100800.0 cr unu---uuuuu 210128e20151001xx s 000 0 eng 10.1007/s11136-015-0990-y doi (NATIONALLICENCE)springer-10.1007/s11136-015-0990-y Living with oropharyngeal dysphagia: effects of bolus modification on health-related quality of life—a systematic review [Elektronische Daten] [Katina Swan, Renée Speyer, Bas Heijnen, Bethany Wagg, Reinie Cordier] Purpose: Difficulty swallowing, oropharyngeal dysphagia, is widespread among many patient populations (such as stroke and cancer groups) and aged community-dwelling individuals. It is commonly managed with bolus modification: altering food (usually cutting, mashing or puréeing) or fluids (typically thickening) to make them easier or safer to swallow. Although this treatment is ubiquitous, anecdotal evidence suggests patients dislike this management, and this may affect compliance and well-being. This review aimed to examine the impact of bolus modification on health-related quality of life. Methods: A systematic review of the literature was conducted by speech pathologists with experience in oropharyngeal dysphagia. The literature search was completed with electronic databases, PubMed and Embase, and all available exclusion dates up to September 2012 were used. The search was limited to English-language publications which were full text and appeared in peer-reviewed journals. Results: Eight studies met the inclusion criteria. Generally, bolus modification was typically associated with worse quality of life. Modifications to foods appeared to be more detrimental than modifications to fluids, but this may be due to the increased severity of dysfunction that is implied by the necessity for significant alterations to foods. The number of studies retrieved was quite small. The diverse nature of methodologies, terminologies and assessment procedures found in the studies makes the results difficult to generalise. Conclusion: Overall, even though the severity of dysphagia may have been a confounding factor, the impact of bolus modification on health-related quality of life in patients with oropharyngeal dysphagia appears to be negative, with increased modification of food and fluids often correlating to a decreased quality of life. Further, associated disease factors, such as decreased life expectancy, may also have affected health-related quality of life. More research is needed. Springer International Publishing Switzerland, 2015 Systematic review nationallicence Oropharyngeal dysphagia nationallicence Deglutition nationallicence Bolus modification nationallicence Health-related quality of life nationallicence Swan Katina Discipline of Speech Pathology, School of Public Health, Tropical Medicine and Rehabilitation Sciences, James Cook University, 4811, Townsville, QLD, Australia aut Speyer Renée Discipline of Speech Pathology, School of Public Health, Tropical Medicine and Rehabilitation Sciences, James Cook University, 4811, Townsville, QLD, Australia aut Heijnen Bas Department of Otorhinolaryngology and Head and Neck Surgery, Leiden University Medical Center, Leiden, The Netherlands aut Wagg Bethany Discipline of Speech Pathology, School of Public Health, Tropical Medicine and Rehabilitation Sciences, James Cook University, 4811, Townsville, QLD, Australia aut Cordier Reinie Discipline of Speech Pathology, School of Public Health, Tropical Medicine and Rehabilitation Sciences, James Cook University, 4811, Townsville, QLD, Australia aut Quality of Life Research Springer International Publishing 24/10(2015-10-01), 2447-2456 0962-9343 24:10<2447 2015 24 11136 https://doi.org/10.1007/s11136-015-0990-y text/html Onlinezugriff via DOI BK010053 XK010053 XK010000 Metadata rights reserved Springer special CC-BY-NC licence nationallicence 1 review-article jats NATIONALLICENCE NATIONALLICENCE NL-springer NATIONALLICENCE 856 40 https://doi.org/10.1007/s11136-015-0990-y text/html Onlinezugriff via DOI NATIONALLICENCE 700 1- Swan Katina Discipline of Speech Pathology, School of Public Health, Tropical Medicine and Rehabilitation Sciences, James Cook University, 4811, Townsville, QLD, Australia aut NATIONALLICENCE 700 1- Speyer Renée Discipline of Speech Pathology, School of Public Health, Tropical Medicine and Rehabilitation Sciences, James Cook University, 4811, Townsville, QLD, Australia aut NATIONALLICENCE 700 1- Heijnen Bas Department of Otorhinolaryngology and Head and Neck Surgery, Leiden University Medical Center, Leiden, The Netherlands aut NATIONALLICENCE 700 1- Wagg Bethany Discipline of Speech Pathology, School of Public Health, Tropical Medicine and Rehabilitation Sciences, James Cook University, 4811, Townsville, QLD, Australia aut NATIONALLICENCE 700 1- Cordier Reinie Discipline of Speech Pathology, School of Public Health, Tropical Medicine and Rehabilitation Sciences, James Cook University, 4811, Townsville, QLD, Australia aut NATIONALLICENCE 773 0- Quality of Life Research Springer International Publishing 24/10(2015-10-01), 2447-2456 0962-9343 24:10<2447 2015 24 11136