caa a22 4500 606179364 CHVBK 20210128100800.0 cr unu---uuuuu 210128e20151001xx s 000 0 eng 10.1007/s11136-015-0974-y doi (NATIONALLICENCE)springer-10.1007/s11136-015-0974-y Communicating patient-reported outcome scores using graphic formats: results from a mixed-methods evaluation [Elektronische Daten] [Michael Brundage, Katherine Smith, Emily Little, Elissa Bantug, Claire Snyder] Background: Patient-reported outcomes (PROs) promote patient-centered care by using PRO research results ("group-leveldata”) to inform decision making and by monitoring individual patient's PROs ("individual-leveldata”) to inform care. We investigated the interpretability of current PRO data presentation formats. Method: This cross-sectional mixed-methods study randomized purposively sampled cancer patients and clinicians to evaluate six group-data or four individual-data formats. A self-directed exercise assessed participants' interpretation accuracy and ratings of ease-of-understanding and usefulness (0=least to 10=most) of each format. Semi-structured qualitative interviews explored helpful and confusing format attributes. Results: We reached thematic saturation with 50 patients (44%<college graduate) and 20 clinicians. For group-leveldata, patients rated simple line graphs highest for ease-of-understanding and usefulness (median 8.0; 33% selected for easiest to understand/most useful) and clinicians rated simple line graphs highest for ease-of-understanding and usefulness (median 9.0, 8.5) but most often selected line graphs with confidence limits or norms (30% for each format for easiest to understand/most useful). Qualitative results support that clinicians value confidence intervals, norms, and p values, but patients find them confusing. For individual-leveldata, both patients and clinicians rated line graphs highest for ease-of-understanding (median 8.0 patients, 8.5 clinicians) and usefulness (median 8.0, 9.0) and selected them as easiest to understand (50, 70%) and most useful (62, 80%). The qualitative interviews supported highlighting scores requiring clinical attention and providing reference values. Conclusions: This study has identified preferences and opportunities for improving on current formats for PRO presentation and will inform development of best practices for PRO presentation. Both patients and clinicians prefer line graphs across group-leveldata and individual-leveldata formats, but clinicians prefer greater detail (e.g., statistical details) for group-leveldata. Springer International Publishing Switzerland, 2015 Patient-reported outcomes nationallicence Clinical trials nationallicence Clinical practice nationallicence Communication nationallicence Brundage Michael Queen's Cancer Research Institute, Queen's University, 10 Stuart St, Level 2, K7L 3N6, Kingston, ON, Canada aut Smith Katherine Sidney Kimmel Comprehensive Cancer Center at Johns Hopkins, 1650 Orleans St, 21287, Baltimore, MD, USA aut Little Emily Division of General Internal Medicine, Johns Hopkins School of Medicine, 624 N. Broadway, 21205, Baltimore, MD, USA aut Bantug Elissa Sidney Kimmel Comprehensive Cancer Center at Johns Hopkins, 1650 Orleans St, 21287, Baltimore, MD, USA aut Snyder Claire Sidney Kimmel Comprehensive Cancer Center at Johns Hopkins, 1650 Orleans St, 21287, Baltimore, MD, USA aut Quality of Life Research Springer International Publishing 24/10(2015-10-01), 2457-2472 0962-9343 24:10<2457 2015 24 11136 https://doi.org/10.1007/s11136-015-0974-y text/html Onlinezugriff via DOI BK010053 XK010053 XK010000 Metadata rights reserved Springer special CC-BY-NC licence nationallicence 1 research-article jats NATIONALLICENCE NATIONALLICENCE NL-springer NATIONALLICENCE 856 40 https://doi.org/10.1007/s11136-015-0974-y text/html Onlinezugriff via DOI NATIONALLICENCE 700 1- Brundage Michael Queen's Cancer Research Institute, Queen's University, 10 Stuart St, Level 2, K7L 3N6, Kingston, ON, Canada aut NATIONALLICENCE 700 1- Smith Katherine Sidney Kimmel Comprehensive Cancer Center at Johns Hopkins, 1650 Orleans St, 21287, Baltimore, MD, USA aut NATIONALLICENCE 700 1- Little Emily Division of General Internal Medicine, Johns Hopkins School of Medicine, 624 N. Broadway, 21205, Baltimore, MD, USA aut NATIONALLICENCE 700 1- Bantug Elissa Sidney Kimmel Comprehensive Cancer Center at Johns Hopkins, 1650 Orleans St, 21287, Baltimore, MD, USA aut NATIONALLICENCE 700 1- Snyder Claire Sidney Kimmel Comprehensive Cancer Center at Johns Hopkins, 1650 Orleans St, 21287, Baltimore, MD, USA aut NATIONALLICENCE 773 0- Quality of Life Research Springer International Publishing 24/10(2015-10-01), 2457-2472 0962-9343 24:10<2457 2015 24 11136