caa a22 4500 606179593 CHVBK 20210128100802.0 cr unu---uuuuu 210128e20150401xx s 000 0 eng 10.1007/s11136-014-0832-3 doi (NATIONALLICENCE)springer-10.1007/s11136-014-0832-3 Quality of life domains important and relevant to family caregivers of advanced cancer patients in an Asian population: a qualitative study [Elektronische Daten] [Geok Lee, Mandy Ow, Ramaswamy Akhileswaran, Grace Pang, Gilbert Fan, Brandon Goh, Cai Wong, Yin Cheung, Hwee Wee] Purpose: This study aims to identify domains of quality of life (QoL) that are culturally relevant to Chinese caregivers of advanced cancer patients in Singapore and to evaluate content adequacy of currently available instruments for use in the target population. Methods: English- and Chinese-speaking caregivers of advanced cancer patients receiving care under a tertiary cancer center and/or a community hospice home care/day care provider were recruited for in-depth interviews. The interviews were analyzed using thematic analysis. The identified domains, themes and sub-themes were compared to concepts addressed by items from five existing cancer-specific caregiver QoL instruments. Results: Eighteen female and eight male caregivers aged 28-74years participated in the study. Twenty-nine QoL themes and 59 sub-themes were identified in six domains, namely physical health, mental health, social health, spiritual health, financial health and daily life. Collectively, but not individually, the content of the five existing instruments adequately cover the physical health domain, social health domain and some themes on mental health domain for the study population. Content gaps were identified in the domains of mental health, spiritual health, daily life and financial health. Conclusions: The present study found culturally and contextually specific themes and sub-themes about positive emotional health, spiritual health and financial health. Springer International Publishing Switzerland, 2014 Advanced cancer nationallicence Caregiver nationallicence Psychosocial oncology nationallicence Quality of life nationallicence Qualitative research nationallicence Lee Geok Department of Social Work, National University of Singapore, 3 Arts Link, 117570, Singapore, Singapore aut Ow Mandy Center for Quantitative Medicine, Duke-NUS Graduate Medical School, 20 College Road, 169856, Singapore, Singapore aut Akhileswaran Ramaswamy HCA Hospice Care, 12 Jalan Tan Tock Seng, 308437, Singapore, Singapore aut Pang Grace Department of Palliative Medicine, National Cancer Centre Singapore, 11 Hospital Drive, 169610, Singapore, Singapore aut Fan Gilbert Department of Psychosocial Oncology, National Cancer Centre Singapore, 11 Hospital Drive, 169610, Singapore, Singapore aut Goh Brandon Department of Psychosocial Oncology, National Cancer Centre Singapore, 11 Hospital Drive, 169610, Singapore, Singapore aut Wong Cai Center for Quantitative Medicine, Duke-NUS Graduate Medical School, 20 College Road, 169856, Singapore, Singapore aut Cheung Yin Center for Quantitative Medicine, Duke-NUS Graduate Medical School, 20 College Road, 169856, Singapore, Singapore aut Wee Hwee Department of Pharmacy, National University of Singapore, 18 Science Drive 4, 117543, Singapore, Singapore aut Quality of Life Research Springer International Publishing 24/4(2015-04-01), 817-828 0962-9343 24:4<817 2015 24 11136 https://doi.org/10.1007/s11136-014-0832-3 text/html Onlinezugriff via DOI BK010053 XK010053 XK010000 Metadata rights reserved Springer special CC-BY-NC licence nationallicence 1 research-article jats NATIONALLICENCE NATIONALLICENCE NL-springer NATIONALLICENCE 856 40 https://doi.org/10.1007/s11136-014-0832-3 text/html Onlinezugriff via DOI NATIONALLICENCE 700 1- Lee Geok Department of Social Work, National University of Singapore, 3 Arts Link, 117570, Singapore, Singapore aut NATIONALLICENCE 700 1- Ow Mandy Center for Quantitative Medicine, Duke-NUS Graduate Medical School, 20 College Road, 169856, Singapore, Singapore aut NATIONALLICENCE 700 1- Akhileswaran Ramaswamy HCA Hospice Care, 12 Jalan Tan Tock Seng, 308437, Singapore, Singapore aut NATIONALLICENCE 700 1- Pang Grace Department of Palliative Medicine, National Cancer Centre Singapore, 11 Hospital Drive, 169610, Singapore, Singapore aut NATIONALLICENCE 700 1- Fan Gilbert Department of Psychosocial Oncology, National Cancer Centre Singapore, 11 Hospital Drive, 169610, Singapore, Singapore aut NATIONALLICENCE 700 1- Goh Brandon Department of Psychosocial Oncology, National Cancer Centre Singapore, 11 Hospital Drive, 169610, Singapore, Singapore aut NATIONALLICENCE 700 1- Wong Cai Center for Quantitative Medicine, Duke-NUS Graduate Medical School, 20 College Road, 169856, Singapore, Singapore aut NATIONALLICENCE 700 1- Cheung Yin Center for Quantitative Medicine, Duke-NUS Graduate Medical School, 20 College Road, 169856, Singapore, Singapore aut NATIONALLICENCE 700 1- Wee Hwee Department of Pharmacy, National University of Singapore, 18 Science Drive 4, 117543, Singapore, Singapore aut NATIONALLICENCE 773 0- Quality of Life Research Springer International Publishing 24/4(2015-04-01), 817-828 0962-9343 24:4<817 2015 24 11136