caa a22 4500 606180168 CHVBK 20210128100804.0 cr unu---uuuuu 210128e20150501xx s 000 0 eng 10.1007/s11136-014-0893-3 doi (NATIONALLICENCE)springer-10.1007/s11136-014-0893-3 Conceptual and practical foundations of patient engagement in research at the patient-centered outcomes research institute [Elektronische Daten] [Lori Frank, Laura Forsythe, Lauren Ellis, Suzanne Schrandt, Sue Sheridan, Jason Gerson, Kristen Konopka, Sarah Daugherty] Purpose: To provide an overview of PCORI's approach to engagement in research. Methods: The Patient-Centered Outcomes Research Institute (PCORI) was established in 2010 to fund patient-centered comparative effectiveness research. Requirements for research funding from PCORI include meaningful engagement of patients and other stakeholders in the research. PCORI's approach to engagement in research is guided by a conceptual model of patient-centered outcomes research (PCOR), that provides a structure for understanding engagement in research. Results: To understand and improve engagement in research PCORI is learning from awardees and other stakeholders. Those efforts are described along with PCORI's capacity building and guidance to awardees via the Engagement Rubric. PCORI's unique model of engaging patients and other stakeholders in merit review of funding applications is also described. Additional support for learning about engagement in research is provided through specific research funding and through PCORI's major infrastructure initiative, PCORnet. Conclusion: PCORI requires engagement of stakeholders in the research it funds. In addition PCORI engages stakeholders in activities including review of funding applications and establishment of CER research infrastructure through PCORnet. The comprehensive approach to engagement is being evaluated to help guide the field toward promising practices in research engagement. The Author(s), 2015 Patient engagement nationallicence Stakeholder engagement nationallicence Patient-centered outcomes research nationallicence Comparative effectiveness research nationallicence Research funding nationallicence Frank Lori Patient-Centered Outcomes Research Institute (PCORI), 1828 L Street NW 9th Floor, 20036, Washington, DC, USA aut Forsythe Laura Patient-Centered Outcomes Research Institute (PCORI), 1828 L Street NW 9th Floor, 20036, Washington, DC, USA aut Ellis Lauren Patient-Centered Outcomes Research Institute (PCORI), 1828 L Street NW 9th Floor, 20036, Washington, DC, USA aut Schrandt Suzanne Patient-Centered Outcomes Research Institute (PCORI), 1828 L Street NW 9th Floor, 20036, Washington, DC, USA aut Sheridan Sue Patient-Centered Outcomes Research Institute (PCORI), 1828 L Street NW 9th Floor, 20036, Washington, DC, USA aut Gerson Jason Patient-Centered Outcomes Research Institute (PCORI), 1828 L Street NW 9th Floor, 20036, Washington, DC, USA aut Konopka Kristen Patient-Centered Outcomes Research Institute (PCORI), 1828 L Street NW 9th Floor, 20036, Washington, DC, USA aut Daugherty Sarah Patient-Centered Outcomes Research Institute (PCORI), 1828 L Street NW 9th Floor, 20036, Washington, DC, USA aut Quality of Life Research Springer International Publishing 24/5(2015-05-01), 1033-1041 0962-9343 24:5<1033 2015 24 11136 https://doi.org/10.1007/s11136-014-0893-3 text/html Onlinezugriff via DOI BK010053 XK010053 XK010000 Metadata rights reserved Springer special CC-BY-NC licence nationallicence 1 research-article jats NATIONALLICENCE NATIONALLICENCE NL-springer NATIONALLICENCE 856 40 https://doi.org/10.1007/s11136-014-0893-3 text/html Onlinezugriff via DOI NATIONALLICENCE 700 1- Frank Lori Patient-Centered Outcomes Research Institute (PCORI), 1828 L Street NW 9th Floor, 20036, Washington, DC, USA aut NATIONALLICENCE 700 1- Forsythe Laura Patient-Centered Outcomes Research Institute (PCORI), 1828 L Street NW 9th Floor, 20036, Washington, DC, USA aut NATIONALLICENCE 700 1- Ellis Lauren Patient-Centered Outcomes Research Institute (PCORI), 1828 L Street NW 9th Floor, 20036, Washington, DC, USA aut NATIONALLICENCE 700 1- Schrandt Suzanne Patient-Centered Outcomes Research Institute (PCORI), 1828 L Street NW 9th Floor, 20036, Washington, DC, USA aut NATIONALLICENCE 700 1- Sheridan Sue Patient-Centered Outcomes Research Institute (PCORI), 1828 L Street NW 9th Floor, 20036, Washington, DC, USA aut NATIONALLICENCE 700 1- Gerson Jason Patient-Centered Outcomes Research Institute (PCORI), 1828 L Street NW 9th Floor, 20036, Washington, DC, USA aut NATIONALLICENCE 700 1- Konopka Kristen Patient-Centered Outcomes Research Institute (PCORI), 1828 L Street NW 9th Floor, 20036, Washington, DC, USA aut NATIONALLICENCE 700 1- Daugherty Sarah Patient-Centered Outcomes Research Institute (PCORI), 1828 L Street NW 9th Floor, 20036, Washington, DC, USA aut NATIONALLICENCE 773 0- Quality of Life Research Springer International Publishing 24/5(2015-05-01), 1033-1041 0962-9343 24:5<1033 2015 24 11136