caa a22 4500 606180192 CHVBK 20210128100804.0 cr unu---uuuuu 210128e20150501xx s 000 0 eng 10.1007/s11136-015-0967-x doi (NATIONALLICENCE)springer-10.1007/s11136-015-0967-x Embedding the perceptions of people with dementia into quantitative research design [Elektronische Daten] [Hannah O'Rourke, Wendy Duggleby, Kimberly Fraser] Purpose: Patient perspectives about quality of life are often found in the results of qualitative research and could be applied to steer the direction of future research. The purpose of this paper was to describe how findings from a body of qualitative research on patient perspectives about quality of life were linked to a clinical administrative dataset and then used to design a subsequent quantitative study. Methods: Themes from two systematic reviews of qualitative evidence (i.e., metasyntheses) identified what affects quality of life according to people with dementia. Selected themes and their sub-concepts were then mapped to an administrative dataset (the Resident Assessment Instrument 2.0) to determine the study focus, formulate nine hypotheses, and select a patient-reported outcome. A literature review followed to confirm existence of a knowledge gap, identify adjustment variables, and support design decisions. Results: A quantitative study to test the association between conflict and sadness for people with dementia in long-term care was derived from metasynthesis themes. Challenges included (1) mapping broad themes to the administrative dataset; (2) decisions associated with inclusion of variables not identified by people with dementia from the qualitative research; and (3) selecting a patient-reported outcome, when the dataset lacked a valid subjective quality-of-life measure. Conclusions: Themes derived from a body of qualitative research capturing a target populations' perspective can be linked to administrative data and used to design a quantitative study. Using this approach, the quantitative findings will be meaningful with respect to the quality of life of the target population. Springer International Publishing Switzerland, 2015 Dementia nationallicence Quality of life nationallicence Alzheimer disease nationallicence Patient perspectives nationallicence Mixed methods nationallicence O'Rourke Hannah Daphne Cockwell School of Nursing, 350 Victoria Street, M5B 2K3, Toronto, ON, Canada aut Duggleby Wendy Faculty of Nursing, Level 3, Edmonton Clinic Health Academy, University of Alberta, 11405 87 Avenue, T6G 1C9, Edmonton, AB, Canada aut Fraser Kimberly Faculty of Nursing, Level 3, Edmonton Clinic Health Academy, University of Alberta, 11405 87 Avenue, T6G 1C9, Edmonton, AB, Canada aut Quality of Life Research Springer International Publishing 24/5(2015-05-01), 1145-1155 0962-9343 24:5<1145 2015 24 11136 https://doi.org/10.1007/s11136-015-0967-x text/html Onlinezugriff via DOI BK010053 XK010053 XK010000 Metadata rights reserved Springer special CC-BY-NC licence nationallicence 1 research-article jats NATIONALLICENCE NATIONALLICENCE NL-springer NATIONALLICENCE 856 40 https://doi.org/10.1007/s11136-015-0967-x text/html Onlinezugriff via DOI NATIONALLICENCE 700 1- O'Rourke Hannah Daphne Cockwell School of Nursing, 350 Victoria Street, M5B 2K3, Toronto, ON, Canada aut NATIONALLICENCE 700 1- Duggleby Wendy Faculty of Nursing, Level 3, Edmonton Clinic Health Academy, University of Alberta, 11405 87 Avenue, T6G 1C9, Edmonton, AB, Canada aut NATIONALLICENCE 700 1- Fraser Kimberly Faculty of Nursing, Level 3, Edmonton Clinic Health Academy, University of Alberta, 11405 87 Avenue, T6G 1C9, Edmonton, AB, Canada aut NATIONALLICENCE 773 0- Quality of Life Research Springer International Publishing 24/5(2015-05-01), 1145-1155 0962-9343 24:5<1145 2015 24 11136