caa a22 4500 606180214 CHVBK 20210128100805.0 cr unu---uuuuu 210128e20150501xx s 000 0 eng 10.1007/s11136-014-0841-2 doi (NATIONALLICENCE)springer-10.1007/s11136-014-0841-2 Validation of the Care-Related Quality of Life Instrument in different study settings: findings from The Older Persons and Informal Caregivers Survey Minimum DataSet (TOPICS-MDS) [Elektronische Daten] [J. Lutomski, N. van Exel, G. Kempen, E. Moll van Charante, W. den Elzen, A. Jansen, P. Krabbe, B. Steunenberg, E. Steyerberg, M. Olde Rikkert, R. Melis] Purpose: Validity is a contextual aspect of a scale which may differ across sample populations and study protocols. The objective of our study was to validate the Care-Related Quality of Life Instrument (CarerQol) across two different study design features, sampling framework (general population vs. different care settings) and survey mode (interview vs. written questionnaire). Methods: Data were extracted from The Older Persons and Informal Caregivers Minimum DataSet (TOPICS-MDS, www.topics-mds.eu ), a pooled public-access data set with information on >3,000 informal caregivers throughout the Netherlands. Meta-correlations and linear mixed models between the CarerQol's seven dimensions (CarerQol-7D) and caregiver's level of happiness (CarerQol-VAS) and self-rated burden (SRB) were performed. Results: The CarerQol-7D dimensions were correlated to the CarerQol-VAS and SRB in the pooled data set and the subgroups. The strength of correlations between CarerQol-7D dimensions and SRB was weaker among caregivers who were interviewed versus those who completed a written questionnaire. The directionality of associations between the CarerQol-VAS, SRB and the CarerQol-7D dimensions in the multivariate model supported the construct validity of the CarerQol in the pooled population. Significant interaction terms were observed in several dimensions of the CarerQol-7D across sampling frame and survey mode, suggesting meaningful differences in reporting levels. Conclusions: Although good scientific practice emphasises the importance of re-evaluating instrument properties in individual research studies, our findings support the validity and applicability of the CarerQol instrument in a variety of settings. Due to minor differential reporting, pooling CarerQol data collected using mixed administration modes should be interpreted with caution; for TOPICS-MDS, meta-analytic techniques may be warranted. Springer International Publishing Switzerland, 2014 CarerQol-7D nationallicence Caregivers nationallicence Quality of life nationallicence Geriatric health services nationallicence Visual analogue scale nationallicence Lutomski J. Department of Geriatric Medicine, Radboud University Medical Center, Postbus 9101, 6500 HB, Nijmegen, The Netherlands aut van Exel N. Institute of Health Policy and Management, Erasmus University, Rotterdam, Netherlands aut Kempen G. Department of Health Services Research, CAPHRI School for Public Health and Primary Care, Maastricht University, Maastricht, Netherlands aut Moll van Charante E. Department of Internal Medicine and Geriatrics, Academic Medical Center, Amsterdam, Netherlands aut den Elzen W. Department of Public Health and Primary Care, Leiden University Medical Center, Leiden, Netherlands aut Jansen A. Department of General Practice and Elderly Care Medicine/EMGO+Institute for Health and Care Research, VU University Medical Center, Amsterdam, Netherlands aut Krabbe P. Department of Epidemiology, University Medical Centre Groningen, University of Groningen, Groningen, Netherlands aut Steunenberg B. Julius Center for Health Sciences and Primary Care, UMC Utrecht, Utrecht, Netherlands aut Steyerberg E. Department of Public Health, Erasmus MC University Medical Center, Rotterdam, Netherlands aut Olde Rikkert M. Department of Geriatric Medicine, Radboud University Medical Center, Postbus 9101, 6500 HB, Nijmegen, The Netherlands aut Melis R. Department of Geriatric Medicine, Radboud University Medical Center, Postbus 9101, 6500 HB, Nijmegen, The Netherlands aut Quality of Life Research Springer International Publishing 24/5(2015-05-01), 1281-1293 0962-9343 24:5<1281 2015 24 11136 https://doi.org/10.1007/s11136-014-0841-2 text/html Onlinezugriff via DOI BK010053 XK010053 XK010000 Metadata rights reserved Springer special CC-BY-NC licence nationallicence 1 research-article jats NATIONALLICENCE NATIONALLICENCE NL-springer NATIONALLICENCE 856 40 https://doi.org/10.1007/s11136-014-0841-2 text/html Onlinezugriff via DOI NATIONALLICENCE 700 1- Lutomski J. Department of Geriatric Medicine, Radboud University Medical Center, Postbus 9101, 6500 HB, Nijmegen, The Netherlands aut NATIONALLICENCE 700 1- van Exel N. Institute of Health Policy and Management, Erasmus University, Rotterdam, Netherlands aut NATIONALLICENCE 700 1- Kempen G. Department of Health Services Research, CAPHRI School for Public Health and Primary Care, Maastricht University, Maastricht, Netherlands aut NATIONALLICENCE 700 1- Moll van Charante E. Department of Internal Medicine and Geriatrics, Academic Medical Center, Amsterdam, Netherlands aut NATIONALLICENCE 700 1- den Elzen W. Department of Public Health and Primary Care, Leiden University Medical Center, Leiden, Netherlands aut NATIONALLICENCE 700 1- Jansen A. Department of General Practice and Elderly Care Medicine/EMGO+Institute for Health and Care Research, VU University Medical Center, Amsterdam, Netherlands aut NATIONALLICENCE 700 1- Krabbe P. Department of Epidemiology, University Medical Centre Groningen, University of Groningen, Groningen, Netherlands aut NATIONALLICENCE 700 1- Steunenberg B. Julius Center for Health Sciences and Primary Care, UMC Utrecht, Utrecht, Netherlands aut NATIONALLICENCE 700 1- Steyerberg E. Department of Public Health, Erasmus MC University Medical Center, Rotterdam, Netherlands aut NATIONALLICENCE 700 1- Olde Rikkert M. Department of Geriatric Medicine, Radboud University Medical Center, Postbus 9101, 6500 HB, Nijmegen, The Netherlands aut NATIONALLICENCE 700 1- Melis R. Department of Geriatric Medicine, Radboud University Medical Center, Postbus 9101, 6500 HB, Nijmegen, The Netherlands aut NATIONALLICENCE 773 0- Quality of Life Research Springer International Publishing 24/5(2015-05-01), 1281-1293 0962-9343 24:5<1281 2015 24 11136