caa a22 4500 606180222 CHVBK 20210128100805.0 cr unu---uuuuu 210128e20150501xx s 000 0 eng 10.1007/s11136-014-0843-0 doi (NATIONALLICENCE)springer-10.1007/s11136-014-0843-0 "A gift wrapped in barbed wire” Positive and negative life changes after being diagnosed with inflammatory bowel disease [Elektronische Daten] [Rebecca Purc-Stephenson, Desirae Bowlby, S. Qaqish] Purpose: A growing interest in posttraumatic growth among individuals who have experienced a traumatic event has given rise to measures such as the Posttraumatic Growth Inventory (PTGI; Tedeschi and Calhoun, 1996). However, such measures may not fully represent all dimensions of change among individuals diagnosed with a chronic disease and fail to highlight the negative changes that may also occur. This study explores the positive and negative changes patients with inflammatory bowel disease (IBD) have experienced since diagnosis. Methods: Three hundred and seventy-eight IBD patients provided answers to the qualitative question "Could you please describe the (positive/negative) effect(s) IBD has had on your life?” A grounded theory approach using NVivo was performed on participants' responses. Results: Nearly 73% of participants reported their disease positively affected their life in some way, and five themes related to positive changes emerged from the analysis: Interpersonal Relations, Personal Growth, Valuing Life, New Life Paths, and Spiritual Growth. However, almost 80% of participants also reported their disease negatively affected their lives, with three themes emerging from the analysis: Freedom Restrictions, Psychological Side Effects, and Social Isolation. Conclusions: Our results support previous findings but also reveal that some dimensions related to the positive changes following adversity are not adequately assessed by the PTGI (e.g., appraising existing friendships, openness to try different forms of treatment or therapies, and psychological preparedness). The implications of these findings for future measurement and research of posttraumatic growth with IBD patients are discussed. Springer International Publishing Switzerland, 2014 Inflammatory bowel disease nationallicence Qualitative nationallicence Posttraumatic growth nationallicence Quality of life nationallicence Chronic diseases nationallicence Purc-Stephenson Rebecca Department of Social Sciences (Psychology), Augustana Faculty, University of Alberta, 4901-46 Avenue, T4V2R3, Camrose, AB, Canada aut Bowlby Desirae Government of Alberta, Edmonton, AB, Canada aut Qaqish S. Covenant Health, Edmonton, AB, Canada aut Quality of Life Research Springer International Publishing 24/5(2015-05-01), 1197-1205 0962-9343 24:5<1197 2015 24 11136 https://doi.org/10.1007/s11136-014-0843-0 text/html Onlinezugriff via DOI BK010053 XK010053 XK010000 Metadata rights reserved Springer special CC-BY-NC licence nationallicence 1 research-article jats NATIONALLICENCE NATIONALLICENCE NL-springer NATIONALLICENCE 856 40 https://doi.org/10.1007/s11136-014-0843-0 text/html Onlinezugriff via DOI NATIONALLICENCE 700 1- Purc-Stephenson Rebecca Department of Social Sciences (Psychology), Augustana Faculty, University of Alberta, 4901-46 Avenue, T4V2R3, Camrose, AB, Canada aut NATIONALLICENCE 700 1- Bowlby Desirae Government of Alberta, Edmonton, AB, Canada aut NATIONALLICENCE 700 1- Qaqish S. Covenant Health, Edmonton, AB, Canada aut NATIONALLICENCE 773 0- Quality of Life Research Springer International Publishing 24/5(2015-05-01), 1197-1205 0962-9343 24:5<1197 2015 24 11136