caa a22 4500 606180265 CHVBK 20210128100805.0 cr unu---uuuuu 210128e20150501xx s 000 0 eng 10.1007/s11136-014-0846-x doi (NATIONALLICENCE)springer-10.1007/s11136-014-0846-x Engaging patients to recover life projectuality: an Italian cross-disease framework [Elektronische Daten] [Serena Barello, Guendalina Graffigna] Purpose: Chronic disease is recognized as having a large impact on patient quality of life (QoL), which can be defined as an individual's satisfaction or happiness with life in domains he or she considers important. Policy makers and clinicians recognize increasingly that patients can safeguard their QoL by making healthy lifestyle choices and being actively engaged in their health care. However, in the emphasis on promoting patient engagement to enhance patients' QoL, there is no consensus regarding the relationship between QOL and patient engagement, resulting in a lack of shared guidelines among clinicians on interventions. Furthermore, no studies have provided an in-depth exploration of the perspective of patients with chronic conditions who are engaged in their health care and their requirements to achieve an improved QoL. Given this theoretical gap, the present study attempted to explore the patient engagement experience and its relationship with patient QoL in the context of the Italian healthcare system and in relation to different chronic diseases. Methods: In-depth qualitative interviews on a sample of 99 patients with a wide variety of chronic conditions (heart failure, chronic obstructive pulmonary disease, stroke, diabetes, and cancer). Results: Patient engagement in health care can be defined as a context-based and cross-disease process that appears to enable patients to recover their life projectuality, which had been impaired by the onset of chronic disease. Successful patient engagement may also be related to a positive shift in the ways in which patients perceive self and life and experience empowerment to realize their life potential, thus improving quality of life. Patient engagement is a powerful concept capable of reflecting significant psychosocial changes that promote patient QoL along the care process. There appears to be theoretical and empirical justification for a broad definition of QoL. Conclusions: QoL deeply depends on the patient ability to engage in their care and on the health expectations they have. We propose a model of the relation between patient engagement and patients' trajectories in critical event responses and use it to illustrate a new perspective on QoL. This research showed the heuristic value patient engagement as a is a key concept in the promotion of a patients' experience-sensitive QoL interventions and assessment measures. Springer International Publishing Switzerland, 2014 Patient engagement nationallicence Quality of life nationallicence Cultural issues nationallicence Qualitative research nationallicence Chronic disease nationallicence Barello Serena Faculty of Psychology, Università Cattolica del Sacro Cuore, Largo Gemelli 1, 20123, Milan, Italy aut Graffigna Guendalina Faculty of Psychology, Università Cattolica del Sacro Cuore, Largo Gemelli 1, 20123, Milan, Italy aut Quality of Life Research Springer International Publishing 24/5(2015-05-01), 1087-1096 0962-9343 24:5<1087 2015 24 11136 https://doi.org/10.1007/s11136-014-0846-x text/html Onlinezugriff via DOI BK010053 XK010053 XK010000 Metadata rights reserved Springer special CC-BY-NC licence nationallicence 1 research-article jats NATIONALLICENCE NATIONALLICENCE NL-springer NATIONALLICENCE 856 40 https://doi.org/10.1007/s11136-014-0846-x text/html Onlinezugriff via DOI NATIONALLICENCE 700 1- Barello Serena Faculty of Psychology, Università Cattolica del Sacro Cuore, Largo Gemelli 1, 20123, Milan, Italy aut NATIONALLICENCE 700 1- Graffigna Guendalina Faculty of Psychology, Università Cattolica del Sacro Cuore, Largo Gemelli 1, 20123, Milan, Italy aut NATIONALLICENCE 773 0- Quality of Life Research Springer International Publishing 24/5(2015-05-01), 1087-1096 0962-9343 24:5<1087 2015 24 11136