caa a22 4500 606180400 CHVBK 20210128100806.0 cr unu---uuuuu 210128e20150201xx s 000 0 eng 10.1007/s11136-014-0779-4 doi (NATIONALLICENCE)springer-10.1007/s11136-014-0779-4 Quality of life after pulmonary embolism: first cross-cultural evaluation of the pulmonary embolism quality-of-life (PEmb-QoL) questionnaire in a Norwegian cohort [Elektronische Daten] [Mazdak Tavoly, Lars-Petter Jelsness-Jørgensen, Hilde Wik, Christina Roaldsnes, Per Sandset, Waleed Ghanima] Purpose: The aim of the current study was to translate and test the psychometrical properties of the disease-specific pulmonary embolism quality-of-life questionnaire (PEmb-QoL). Methods: Patients with a prior history of pulmonary embolism (PE) were identified from the thrombosis registry at Østfold Hospital Trust, Fredrikstad, Norway. All eligible patients were asked to complete the generic EuroQol 5-dimension (EQ-5D) QoL questionnaire as well as the disease-specific PEmb-QoL at baseline and after 2weeks. Construct validity was tested using principal component factor analysis. Criterion validity was tested using Spearman's correlation coefficients (rho) between EQ-5D and PEmb-QoL. Internal consistency reliability was calculated using Cronbach's alpha coefficient, while test-retest reliability was calculated using the intra-class correlation coefficients (ICC). Results: A total of 213 participants had complete datasets and were included in further analyses. Factor analysis with varimax rotation yielded six factors explaining 71% of the cumulative variance. Cronbach's alpha coefficient was found to be 0.94, indicating a very good intercorrelation of items. Of the 213 participants, 145 (68%) completed the questionnaire a second time. The ICC ranged from 0.75 to 0.86, indicating good test-retest reliability. All factors were found significant with p values <0.001. The criterion validity of the PEmb-QoL was confirmed through good correlation with other similar health-related quality-of-life constructs in the EQ-5D. Conclusions: Findings of the current study indicate that Norwegian version of the PEmb-QoL is both valid and reliable, thus representing an important supplement in subjective outcomes measurement among patients sustaining PE. Springer International Publishing Switzerland, 2014 PEmb-QoL nationallicence HRQoL nationallicence Pulmonary embolism nationallicence Psychometric evaluation nationallicence Disease-specific questionnaires nationallicence Tavoly Mazdak Østfold Hospital Trust, Fredrikstad, Norway aut Jelsness-Jørgensen Lars-Petter Østfold Hospital Trust, Fredrikstad, Norway aut Wik Hilde Department of Haematology, Oslo University Hospital, Oslo, Norway aut Roaldsnes Christina Østfold Hospital Trust, Fredrikstad, Norway aut Sandset Per Department of Haematology, Oslo University Hospital, Oslo, Norway aut Ghanima Waleed Østfold Hospital Trust, Fredrikstad, Norway aut Quality of Life Research Springer International Publishing 24/2(2015-02-01), 417-425 0962-9343 24:2<417 2015 24 11136 https://doi.org/10.1007/s11136-014-0779-4 text/html Onlinezugriff via DOI BK010053 XK010053 XK010000 Metadata rights reserved Springer special CC-BY-NC licence nationallicence 1 research-article jats NATIONALLICENCE NATIONALLICENCE NL-springer NATIONALLICENCE 856 40 https://doi.org/10.1007/s11136-014-0779-4 text/html Onlinezugriff via DOI NATIONALLICENCE 700 1- Tavoly Mazdak Østfold Hospital Trust, Fredrikstad, Norway aut NATIONALLICENCE 700 1- Jelsness-Jørgensen Lars-Petter Østfold Hospital Trust, Fredrikstad, Norway aut NATIONALLICENCE 700 1- Wik Hilde Department of Haematology, Oslo University Hospital, Oslo, Norway aut NATIONALLICENCE 700 1- Roaldsnes Christina Østfold Hospital Trust, Fredrikstad, Norway aut NATIONALLICENCE 700 1- Sandset Per Department of Haematology, Oslo University Hospital, Oslo, Norway aut NATIONALLICENCE 700 1- Ghanima Waleed Østfold Hospital Trust, Fredrikstad, Norway aut NATIONALLICENCE 773 0- Quality of Life Research Springer International Publishing 24/2(2015-02-01), 417-425 0962-9343 24:2<417 2015 24 11136