caa a22 4500 606180516 CHVBK 20210128100806.0 cr unu---uuuuu 210128e20150201xx s 000 0 eng 10.1007/s11136-014-0758-9 doi (NATIONALLICENCE)springer-10.1007/s11136-014-0758-9 Exploring the influence of demographic and medical characteristics of African-American and Latinas on enrollment in a behavioral intervention study for breast cancer survivors [Elektronische Daten] [Kimlin Ashing, Monica Rosales, Alejandro Fernandez] Purpose: To better understand research participation among hard-to-reach populations, this exploratory investigation examined characteristics of enrollees and non-enrollees from a population-based longitudinal study with African-American and Latina-American breast cancer survivors. Methods: A mixed-method recruitment approach was utilized to enroll participants from cancer registries and community groups who were 1-6years post-diagnosis. Results: Four hundred and sixty-eight participants agreed to participate constituting an 81% participation rate; 65 and 55% completed Time-1, and both Time-1 and Time-2 assessments, respectively. African-Americans were more likely to agree to participate and complete the T1 assessment (73%) than Latinas (62%) (p<0.05). Participation was influenced by educational attainment and comorbidities (p<0.05) for African-Americans. Among Latinas, language proficiency, comorbidities and psychological difficulties (p<0.01) influenced participation. Conclusions: Our findings suggest that enrollment in research studies may be influenced by complex and multi-dimensional factors stemming from subjects' characteristics including ethnicity, culture, language proficiency and literary, and socioeconomic status, as well as medical characteristics including co-occurring chronic illness and psychological status. Thus, comprehensive, multi-method research studies are urgently needed to better understand and address the challenge of minority recruitment in biomedical research. To increase research participation among cancer survivors, it is imperative to implement focused strategies that will support and encourage individuals' enrollment and continued participation in studies. Springer International Publishing Switzerland, 2014 Recruitment nationallicence Retention nationallicence Ethnic minority nationallicence Breast cancer nationallicence Response bias nationallicence Ashing Kimlin Center of Community Alliance for Research and Education (CCARE), Department of Population Sciences, City of Hope, 1500 E Duarte Road, 91010-3000, Duarte, CA, USA aut Rosales Monica Center of Community Alliance for Research and Education (CCARE), Department of Population Sciences, City of Hope, 1500 E Duarte Road, 91010-3000, Duarte, CA, USA aut Fernandez Alejandro Center of Community Alliance for Research and Education (CCARE), Department of Population Sciences, City of Hope, 1500 E Duarte Road, 91010-3000, Duarte, CA, USA aut Quality of Life Research Springer International Publishing 24/2(2015-02-01), 445-454 0962-9343 24:2<445 2015 24 11136 https://doi.org/10.1007/s11136-014-0758-9 text/html Onlinezugriff via DOI BK010053 XK010053 XK010000 Metadata rights reserved Springer special CC-BY-NC licence nationallicence 1 research-article jats NATIONALLICENCE NATIONALLICENCE NL-springer NATIONALLICENCE 856 40 https://doi.org/10.1007/s11136-014-0758-9 text/html Onlinezugriff via DOI NATIONALLICENCE 700 1- Ashing Kimlin Center of Community Alliance for Research and Education (CCARE), Department of Population Sciences, City of Hope, 1500 E Duarte Road, 91010-3000, Duarte, CA, USA aut NATIONALLICENCE 700 1- Rosales Monica Center of Community Alliance for Research and Education (CCARE), Department of Population Sciences, City of Hope, 1500 E Duarte Road, 91010-3000, Duarte, CA, USA aut NATIONALLICENCE 700 1- Fernandez Alejandro Center of Community Alliance for Research and Education (CCARE), Department of Population Sciences, City of Hope, 1500 E Duarte Road, 91010-3000, Duarte, CA, USA aut NATIONALLICENCE 773 0- Quality of Life Research Springer International Publishing 24/2(2015-02-01), 445-454 0962-9343 24:2<445 2015 24 11136