caa a22 4500 60618077X CHVBK 20210128100807.0 cr unu---uuuuu 210128e20151101xx s 000 0 eng 10.1007/s11136-015-1012-9 doi (NATIONALLICENCE)springer-10.1007/s11136-015-1012-9 Khalil Marwa Public Health Department, Faculty of Medicine, Zagazig University, Zagazig, Egypt aut Long-term health-related quality of life for patients with Hirschsprung's disease at 5years after transanal endorectal pull-through operation [Elektronische Daten] [Marwa Khalil] Purpose: This study aims to evaluate the health-related quality of life (HRQoL) for children as well as parents' satisfaction 5-7years after transanal pull-through operation of Hirschsprung's disease. Methods: The PedsQL™ 4.0—Core Measurement Model—and the PedsQL™ 3.0 Healthcare Satisfaction Generic Module were used to evaluate the quality of life and parents' satisfaction, respectively. Parents of 53 children who were operated by transanal pull-through operation 5-7years earlier were included in the study. Results: The HRQoL of children was generally good. The mean scores were 87.3, 95.5, 92.3 and 93.2% for physical, emotional, social and school functioning, respectively. Overflow incontinence was significantly affecting physical (ß=−.261), emotional (ß=−.299), social (ß=−.42) and school functioning (ß=−.534). Constipation significantly affected emotional (ß=−.742), social (ß=−.108) and school (ß=−.282) functioning. Failure to thrive was significantly affecting social (ß=−.215) and school functioning (ß=−.176). Age at time of surgery was affecting physical, emotional, social and school functioning (ß=−.686, −.627, −.865 and −.907, respectively). Parents were generally satisfied from the healthcare service with an overall satisfaction of 90.7 with the least satisfaction (79.8) in family inclusion category. Conclusions: Transanal pull-through operation disease showed a good postoperative long-term HRQoL. Overflow incontinence and age at time of surgery had a significant negative effect on all the aspects of children's HRQoL. Parental satisfaction was good and could be improved by more family inclusion. Springer International Publishing Switzerland, 2015 Health-related quality of life nationallicence Parent satisfaction nationallicence Transanal endorectal pull-through nationallicence Hirschsprung's disease nationallicence Quality of Life Research Springer International Publishing 24/11(2015-11-01), 2733-2738 0962-9343 24:11<2733 2015 24 11136 https://doi.org/10.1007/s11136-015-1012-9 text/html Onlinezugriff via DOI BK010053 XK010053 XK010000 Metadata rights reserved Springer special CC-BY-NC licence nationallicence 1 research-article jats NATIONALLICENCE NATIONALLICENCE NL-springer NATIONALLICENCE 856 40 https://doi.org/10.1007/s11136-015-1012-9 text/html Onlinezugriff via DOI NATIONALLICENCE 100 1- Khalil Marwa Public Health Department, Faculty of Medicine, Zagazig University, Zagazig, Egypt aut NATIONALLICENCE 773 0- Quality of Life Research Springer International Publishing 24/11(2015-11-01), 2733-2738 0962-9343 24:11<2733 2015 24 11136