caa a22 4500 60621688X CHVBK 20210128101105.0 cr unu---uuuuu 210128e20151101xx s 000 0 eng 10.1007/s00701-015-2515-4 doi (NATIONALLICENCE)springer-10.1007/s00701-015-2515-4 Diagnosis, medication, and surgical management for patients with trigeminal neuralgia: a qualitative study [Elektronische Daten] [Matthew Allsop, Maureen Twiddy, Hilary Grant, Carolyn Czoski-Murray, Mark Mon-Williams, Faisal Mushtaq, Nick Phillips, Joanna Zakrzewska, Sue Pavitt] Background: Trigeminal neuralgia (TN) is a serious health problem, causing brief, recurrent episodes of stabbing or burning facial pain, which patients describe as feeling like an electric shock. The consequences of living with the condition are severe. There is currently no cure for TN and management of the condition can be complex, often delayed by misdiagnosis. Patients' qualitative experiential accounts of TN have not been reported in the literature. Capturing subjective experiences can be used to inform the impact of the condition on quality of life and may contribute to a better understanding of current clinical practice with the aim of improving patient care. Methods: Participants with TN (n = 16; 11 female), including those who have and have not undergone surgical intervention(s), took part in one of four focus groups. We conducted a thematic analysis within an essentialist framework using transcripts. Results: The impact of TN and treatment on the lives of participants emerged as four predominant themes: (1) diagnosis and support with TN, (2) living in fear of TN pain, (3) isolation and social withdrawal, and (4) medication burden and looking for a cure. Each theme is discussed and illustrated with extracts from the transcripts. Conclusions: Key issues to address in the management of patients with TN include continued delays in diagnosis, persistent side effects from medication, and a lack of psychological support. Developing strategies to enhance the management of patients with TN, informed by a biopsychosocial approach and multidisciplinary team working, is essential to enhancing the provision of current care. The Author(s), 2015 Trigeminal neuralgia nationallicence Medication nationallicence Surgery nationallicence Management nationallicence Qualitative research nationallicence Allsop Matthew Leeds Institute of Health Sciences, University of Leeds, 101 Clarendon Road, LS2 9LJ, Leeds, UK aut Twiddy Maureen Leeds Institute of Health Sciences, University of Leeds, 101 Clarendon Road, LS2 9LJ, Leeds, UK aut Grant Hilary Leeds Institute of Health Sciences, University of Leeds, 101 Clarendon Road, LS2 9LJ, Leeds, UK aut Czoski-Murray Carolyn Leeds Institute of Health Sciences, University of Leeds, 101 Clarendon Road, LS2 9LJ, Leeds, UK aut Mon-Williams Mark Institute of Psychological Sciences, University of Leeds, LS2 9JT, Leeds, UK aut Mushtaq Faisal Institute of Psychological Sciences, University of Leeds, LS2 9JT, Leeds, UK aut Phillips Nick Department of Neurosurgery, Leeds General Infirmary, Great George Street, LS1 3EX, Leeds, UK aut Zakrzewska Joanna Eastman Dental Hospital, UCLH NHS Foundation Trust, 256 Gray's Inn Road, WC1X 8LD, London, UK aut Pavitt Sue School of Dentistry, University of Leeds, Worsley Building, LS2 9JT, Leeds, UK aut Acta Neurochirurgica Springer Vienna 157/11(2015-11-01), 1925-1933 0001-6268 157:11<1925 2015 157 701 https://doi.org/10.1007/s00701-015-2515-4 text/html Onlinezugriff via DOI BK010053 XK010053 XK010000 Metadata rights reserved Springer special CC-BY-NC licence nationallicence 1 research-article jats NATIONALLICENCE NATIONALLICENCE NL-springer NATIONALLICENCE 856 40 https://doi.org/10.1007/s00701-015-2515-4 text/html Onlinezugriff via DOI NATIONALLICENCE 700 1- Allsop Matthew Leeds Institute of Health Sciences, University of Leeds, 101 Clarendon Road, LS2 9LJ, Leeds, UK aut NATIONALLICENCE 700 1- Twiddy Maureen Leeds Institute of Health Sciences, University of Leeds, 101 Clarendon Road, LS2 9LJ, Leeds, UK aut NATIONALLICENCE 700 1- Grant Hilary Leeds Institute of Health Sciences, University of Leeds, 101 Clarendon Road, LS2 9LJ, Leeds, UK aut NATIONALLICENCE 700 1- Czoski-Murray Carolyn Leeds Institute of Health Sciences, University of Leeds, 101 Clarendon Road, LS2 9LJ, Leeds, UK aut NATIONALLICENCE 700 1- Mon-Williams Mark Institute of Psychological Sciences, University of Leeds, LS2 9JT, Leeds, UK aut NATIONALLICENCE 700 1- Mushtaq Faisal Institute of Psychological Sciences, University of Leeds, LS2 9JT, Leeds, UK aut NATIONALLICENCE 700 1- Phillips Nick Department of Neurosurgery, Leeds General Infirmary, Great George Street, LS1 3EX, Leeds, UK aut NATIONALLICENCE 700 1- Zakrzewska Joanna Eastman Dental Hospital, UCLH NHS Foundation Trust, 256 Gray's Inn Road, WC1X 8LD, London, UK aut NATIONALLICENCE 700 1- Pavitt Sue School of Dentistry, University of Leeds, Worsley Building, LS2 9JT, Leeds, UK aut NATIONALLICENCE 773 0- Acta Neurochirurgica Springer Vienna 157/11(2015-11-01), 1925-1933 0001-6268 157:11<1925 2015 157 701