caa a22 4500 606237984 CHVBK 20210128101256.0 cr unu---uuuuu 210128e20150801xx s 000 0 eng 10.1007/s10677-014-9553-5 doi (NATIONALLICENCE)springer-10.1007/s10677-014-9553-5 Gerver Mollie London, UK aut Consent for Data on Consent [Elektronische Daten] [Mollie Gerver] There are instances where the provider of an intervention, such as surgery, has failed to obtain necessary informed consent from the recipient of the intervention. Perhaps the surgeon has failed to warn the patient that she may go into a coma, or even be killed, from the surgery. Sometimes, as a result of this intervention, the recipient cannot give informed consent to researchers for the release of their personal data precisely because of the intervention. If they are in a coma, they cannot be reached. Sometimes, this personal data itself can prove that the provider of the intervention failed to obtain informed consent for the intervention. For example, a personal file may include a consent form that does not include warnings about the risk of falling into a coma from the surgery. Paradoxically, those who cannot give informed consent for the disclosure of their personal data on an intervention may have been especially ill-informed about the repercussions of the intervention. In such instances, should researchers ever use the data and disclose the data in their research? In an attempt to demonstrate when this dilemma may be relevant, and how it may be solved, I will present a real-world case of this dilemma in my own empirical research on refugees who agreed to repatriate to their countries of origin from Israel. I will consider what theories on consent, if any, can help us resolve this dilemma. Springer Science+Business Media Dordrecht, 2014 Informed consent nationallicence Data disclosure nationallicence Right to privacy nationallicence Immigration nationallicence Refugees nationallicence Ethical Theory and Moral Practice Springer Netherlands 18/4(2015-08-01), 799-816 1386-2820 18:4<799 2015 18 10677 https://doi.org/10.1007/s10677-014-9553-5 text/html Onlinezugriff via DOI BK010053 XK010053 XK010000 Metadata rights reserved Springer special CC-BY-NC licence nationallicence 1 research-article jats NATIONALLICENCE NATIONALLICENCE NL-springer NATIONALLICENCE 856 40 https://doi.org/10.1007/s10677-014-9553-5 text/html Onlinezugriff via DOI NATIONALLICENCE 100 1- Gerver Mollie London, UK aut NATIONALLICENCE 773 0- Ethical Theory and Moral Practice Springer Netherlands 18/4(2015-08-01), 799-816 1386-2820 18:4<799 2015 18 10677